Parental Opinions About Attending Parent Support Groups

Smith, Kathryn E.; Gabard, Donald L.; Dale, Diane; Drucker, A. P.

doi:10.1207/s15326888chc2302_5

Cited by 29 publications

(33 citation statements)

References 3 publications

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“…15 Ideally, this group should be interdisciplinary, including a neonatologist, a nurse, a psychologist, and other health professionals. [16][17][18][19] Several NICUs have a support group. 14,[17][18][19] Participants interact more with their children during the hospital stay and show greater interest in their development after hospital discharge.…”

Section: Birth and Nicu Admission After Hospital Dischargementioning

confidence: 99%

“…Obviously, the kind of support given during the support group meetings to families that have to cope with the admission of their children to the NICU depends on the status of each newborn, if he/she is in the acute or chronic stage, or on the severity of his/her condition. 16 After childbirth and during the acute stage of NICU admission, parents and family members keep investigating further into the situation and gathering as much information as possible about the newborn. Based on the issues discussed in the support group, their perceptions about their child are down-to-earth and minimally propelled by fantasies, provided that they are given regular, repeated, and careful information that is appropriate to their level of concern and understanding.…”

Section: Birth and Nicu Admission After Hospital Dischargementioning

confidence: 99%

“…Smith et al 16 report that parents who participated in support groups remarkably reduced stress and their feelings of social isolation, interacted more with their child, improving their parenting skills, with positive effects on their child s development. 8,9,15,17,[25][26][27] Several authors, in consistency with the qualification value of the support group, have mentioned that the participation of parents in child care restores their competence and parental confidence; they are more responsive to the presence of their child, and there is more interaction between parents and children, and parents are more able to control their feelings during the stay of their child in the NICU.…”

Section: Birth and Nicu Admission After Hospital Dischargementioning

confidence: 99%

“…These parents need less information and more emotional support, since they often feel isolated. 16 For Wiggins, 24 parents should be instructed to assess their child s process on a regular basis, perhaps weekly instead of daily, so that they can alleviate their feelings of frustration.…”

Section: Birth and Nicu Admission After Hospital Dischargementioning

confidence: 99%

“…Parents and family members recognize Smith et al 16 Intergenerational support 30 also plays a crucial role and so does parent-to-parent support. …”

Section: Birth and Nicu Admission After Hospital Dischargementioning

confidence: 99%

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O significado do grupo de apoio para a família de recém-nascidos de risco e equipe de profissionais na unidade neonatal

Buarque¹,

Lima²,

Scott³

et al. 2006

J. Pediatr. (Rio J.)

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Objective: To investigate the influence of support groups on the family of risk newborn infants and on neonatal unit workers. Methods:We used a qualitative approach, and as theoretical basis, family-centered care. The study was conducted in the neonatal unit of Hospital Prontolinda, in Pernambuco, Brazil. From January to June 2004, 25 meetings were held by the family support group. Data were collected through the observations of participants and through tape-recorded interviews with 13 mothers, six fathers, two grandmothers and 16 healthcare workers. The interviews were submitted to speech content analysis (thematic modality).Results: The analysis revealed that the support group to the family of risk newborns provided parents and family members with information, emotional support and strengthening so that they could come to terms with the birth of their child and his/her admission to the neonatal unit, in addition to enabling parents to take care of the newborn infant. There was interpersonal growth in the interaction between parents, family members, and healthcare workers. Conclusions:The support group to the family of risk newborns uses an approach that is based on familycentered care. These principles allow restoring parental competence, helping healthcare workers to respect values and feelings of family members, and establishing a collaborative work between parents and healthcare workers in the neonatal unit. ORIGINAL ARTICLE

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Section: Birth and Nicu Admission After Hospital Dischargementioning

confidence: 99%

Section: Birth and Nicu Admission After Hospital Dischargementioning

confidence: 99%

Section: Birth and Nicu Admission After Hospital Dischargementioning

confidence: 99%

Section: Birth and Nicu Admission After Hospital Dischargementioning

confidence: 99%

“…Parents and family members recognize Smith et al 16 Intergenerational support 30 also plays a crucial role and so does parent-to-parent support. …”

Section: Birth and Nicu Admission After Hospital Dischargementioning

confidence: 99%

See 3 more Smart Citations

O significado do grupo de apoio para a família de recém-nascidos de risco e equipe de profissionais na unidade neonatal

Buarque¹,

Lima²,

Scott³

et al. 2006

J. Pediatr. (Rio J.)

View full text Add to dashboard Cite

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Parents of children with rheumatic disease as peer counselors

DeNardo

Stebulis

Tucker

et al. 1995

Arthritis & Rheumatism

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Objective. A parent consultant program was established to promote active family involvement in the health care process and to provide parent-to-parent support, education, and training.Methods. Parents of children with rheumatic disease were hired by 7 pediatric rheumatology centers to serve as role models and advocates for other parents whose children attended the clinics. In the clinic, the parent consultants provided support, advocacy, and education regarding specific nonmedical issues. At the local level, they assisted parents in obtaining community-based services, such as individual educational plans at school, local physical therapy, or access to recreational resources.Program impact was evaluated by an anonymous, mail-response questionnaire sent to parents who met with a parent consultant during a clinic visit for their child. Surveys were sent within 6 months of the initial parent consultant meeting; 257 questionnaires were mailed, 33% were returned. The majority of respondents [87%) felt their interaction with the parent consultant was helpful. The general support received and the specific information and/or assis- tance received were found to be equally useful by respondents. The majority of respondents (98%) stated they would recommend that other parents meet with the parent consultant. Results.Conclusion. Parents of children with rheumatic disease are effective peer counselors, providing general support and specific assistance to enhance family involvement in care.

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Striving to support the supporters: A mixed methods evaluation of the strive support groups for caregivers of individuals with an eating disorder

Lefkovits,

Pepin,

Phillipou

et al. 2024

Euro Eating Disorders Rev

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This mixed‐methods study evaluated a peer‐led support group for ED caregivers; the Eating Disorders Families Australia strive support groups. Quantitatively, 110 past or current strive attendees completed an online survey assessing their own and their care recipients' demographic profiles, strive's impact on caregiving experiences, and caregivers' psychological distress, burden, caregiving skills and self‐efficacy. Qualitative assessment comprised open‐ended survey questions about caregivers' strive experiences, reinforced by in‐depth focus group assessment of nine participants. Quantitative analyses revealed that participants felt more confident and supported, and less isolated in their caregiving since attending strive. Caregivers displayed mid‐range psychological distress and caregiver burden, and moderate caregiver skills and self‐efficacy. Qualitatively, the most helpful aspects of strive were the shared experience among participants, education, and support. The most difficult elements were emotional distress and overly dominant members. Reflections discussed the necessity of caregiver support and factors impacting strive attendance. Participants recommended resuming face‐to‐face contact and differentiating groups based on participant characteristics (e.g. care recipients' age/stage of illness). The current findings provide support for the importance and overall positive contribution of support groups led by caregivers, such as strive.

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Parental Opinions About Attending Parent Support Groups

Cited by 29 publications

References 3 publications

O significado do grupo de apoio para a família de recém-nascidos de risco e equipe de profissionais na unidade neonatal

O significado do grupo de apoio para a família de recém-nascidos de risco e equipe de profissionais na unidade neonatal

Parents of children with rheumatic disease as peer counselors

Striving to support the supporters: A mixed methods evaluation of the strive support groups for caregivers of individuals with an eating disorder

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