Parents’ experiences and need for social support after pregnancy termination for fetal anomaly: a qualitative study in China

Abstract

ObjectiveThe aim of this study was to explore the experiences and need for social support of Chinese parents after termination of pregnancy for fetal anomalies.DesignA qualitative study using semistructured, in-depth interviews combined with observations. Data were analysed by Claizzi’s phenomenological procedure.SettingA large, tertiary obstetrics and gynaecology hospital in China.ParticipantsUsing purposive sampling approach, we interviewed 12 couples and three additional women (whose spouses were not present).ResultsFour themes were identified from the experiences of parents: the shock of facing reality, concerns surrounding termination of pregnancy, the embarrassment of the two-child policy and the urgent need for social support.ConclusionParents experienced complicated and intense emotional reactions, had concerns surrounding the termination of pregnancy and an urgent need for social support. Paternal psychological reactions were often neglected by healthcare providers and the fathers, themselves. These findings suggest that both mothers and fathers should receive appropriate support from family, medical staff and peers to promote their physical and psychological rehabilitation.