2020
DOI: 10.1111/hex.13126
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Partnering to power progress towards a paradigm shift: Response to Riggare et al

Abstract: | 975 LETTER TO THE EDITOR patient engagement projects. The patient advocates involved successfully changed study protocol, resulting in a complete restart of the study months after it originally launched. This project was so successful that we had many other patient engagement partnerships with the same company, including one that I engaged in. I took this example, along with others, and shared it with a couple hundred people in another division of the company to educate them about how best to collaborate wit… Show more

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“…For subsequent interview rounds, programme members (researchers and patient innovators) have been invited to contribute with adjustments to the interview guide. The importance of clarifying patient and public contributions in the research process, and as coauthors, has been emphasized in the community of patient advocates 53,54 . To assess the transferability of our findings to other settings, careful consideration of the context is required.…”
Section: Discussionmentioning
confidence: 99%
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“…For subsequent interview rounds, programme members (researchers and patient innovators) have been invited to contribute with adjustments to the interview guide. The importance of clarifying patient and public contributions in the research process, and as coauthors, has been emphasized in the community of patient advocates 53,54 . To assess the transferability of our findings to other settings, careful consideration of the context is required.…”
Section: Discussionmentioning
confidence: 99%
“…The importance of clarifying patient and public contributions in the research process, and as coauthors, has been emphasized in the community of patient advocates. 53 , 54 To assess the transferability of our findings to other settings, careful consideration of the context is required. In this article, we have used the term partnership to illustrate our ambition to create a research programme where researchers, patients, and caregivers together share power and responsibility for the research throughout, as proposed by Hickey et al 21 In this research programme, a partnership approach seemed like the only way forward as we focused on innovations initiated and driven by patients and caregivers.…”
Section: Discussionmentioning
confidence: 99%