Patient Centered Design: Challenges and Lessons Learned from Working with Health Professionals and Schizophrenic Patients in e-Therapy Contexts

Abstract

Abstract. Patient Centered Design (PCD) is a particular type of User CenteredDesign (UCD) where the end-user is a patient that will use an Information and Communications Technology (ICT) solution for healthcare. It focuses on needs, wants and skills of the product's primary user and implies involving end-users in the decision-making and development process of the solution. e-Therapy aims to provide support to therapy sessions through ICT solutions. It has grown in the last years and in the mental health arena is being used for specific therapeutic contexts. It is an especially difficult environment due to specificities of the patients' conditions and where the physical access to patients is restricted and, sometimes, not even possible. Thus, a PCD approach can be accomplished through the health professionals involved, applying some of the most wellknown methods of UCD: interviews, questionnaires, focus groups and participatory design. eSchi is an e-Therapy tool that complements traditional practices for the cognitive rehabilitation and training of schizophrenic patients. It was successfully developed using a PCD approach.

Use of participatory design in the development of person-centred web-based support for persons with long-term illness

“…Lately, participatory design (PD) approaches have been shown to be a useful instrument in applying a more patient-centric design. In the development of web-based support for patients with chronic health conditions, PD has, for instance, successfully been used to design web-based self-care for patients with type 2 diabetes [7], peer-support on the web for patients with rare diagnoses [8], web resources for social support for breast cancer patients [9] and in development of e-therapy for patients with schizophrenia [10].…”

Diseño de una herramienta educativa digital para pacientes de trasplante renal

“…Este último es una metodología que se enfoca en las necesidades, deseos y habilidades del paciente y lo involucra en la toma de decisiones y desarrollo de una solución de diseño. Así, el equipo de diseño busca cumplir las expectativas del paciente mediante un proceso de co-creación, apoyándolo en su empoderamiento (Reis et al, 2011). transplant patients and their families is focused in reducing the risk of KT rejection and establishing the knowledge, skills, and attitudes necessary for people to have control over their health (Pueyo-Garrigues et al, 2016).…”

A study on usability and design parameters in face mask: Concept design of UVW face mask for COVID‐19 protection

“…Human factors are one of the main disciplines in design for health (Branaghan et al, 2020). The patient-oriented design focuses on preventing or controlling a disease known to be of great importance in work-oriented approaches (Reis et al, 2011). The usability test is a one-step design experiment in which designers technically evaluate the background of a product to grasp a better design (Geisen & Romano Bergstrom, 2017;Rosson & Carroll, 2002).…”

“…However, in the patient-centered design approach, all activities move to prevent the development of the disease in a normal user and prevent the recurrence of the disease (Reis et al, 2011).…”