Patient narratives – a still undervalued resource for healthcare improvement

Spitale, Giovanni; Glässel, Andrea; Tyebally-Fang, Mirriam; Dorey, Corine Mouton; Biller‐Andorno, Nikola

doi:10.57187/smw.2023.40022

Cited by 5 publications

(2 citation statements)

References 29 publications

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“…The coded data was then thematically analysed. The entire methodological process has been described by Spitale et al 2023 [ 44 ].…”

Section: Methodsmentioning

confidence: 99%

Women’s experiences with non-invasive prenatal testing in Switzerland: a qualitative analysis

Fang,

Germani,

Spitale

et al. 2023

BMC Med Ethics

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Background Prenatal genetic testing, in particular non-invasive prenatal testing (NIPT), as well as screening for risks associated with pregnancy, and counseling, play pivotal roles in reproductive healthcare, offering valuable information about the health of the fetus to expectant parents. This study aims to delve into the perspectives and experiences of women considering genetic testing and screening during pregnancy, focusing on their decision-making processes and the implications for informed consent. Methods A nationwide qualitative study was conducted in Switzerland, involving in-depth interviews with women who were 1 to 2 years post-partum, covered by basic compulsory Swiss insurance, including women with a migration background. Thematic analysis was employed to identify key themes and patterns in the data. Results The findings underscore the significance of effective communication during prenatal counseling, suggesting that healthcare providers could not only convey technical information but also support women in their decision-making processes. Women need comprehensive information about genetic testing and its implications, as well as the reasons for screening during pregnancy, as there might be a need to bridge knowledge gaps and clarify misconceptions. Furthermore, the study highlights the multifaceted nature of decision-making, with women considering factors such as uncertainty, values, emotional responses, and societal support systems. The concept of acceptance emerged as a crucial theme, with some women expressing their readiness to love and accept their child, regardless of genetic anomalies or disabilities. Conclusion This study offers valuable insights into the perspectives and needs of women regarding prenatal genetic testing, screening, and counseling in Switzerland. It underscores the importance of enhancing the clinical interaction and informed consent process by providing comprehensive information, addressing misconceptions, and supporting women in decision-making about pregnancy management and the management of the child’s health, following prenatal genetic testing, including NIPT. These findings can inform healthcare providers and policymakers in improving the quality of prenatal counseling, ensuring informed consent, and supporting women in making well-informed and meaningful decisions about genetic testing, and on the use of screening during pregnancy.

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“…The coded data was then thematically analysed. The entire methodological process has been described by Spitale et al 2023 [ 44 ].…”

Section: Methodsmentioning

confidence: 99%

Women’s experiences with non-invasive prenatal testing in Switzerland: a qualitative analysis

Fang,

Germani,

Spitale

et al. 2023

BMC Med Ethics

Self Cite

View full text Add to dashboard Cite

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“…Manually analyzing and sorting a substantial volume of case reports with traditional approaches such as thematic analysis (Clarke and Braun, 2017 ) is a labor-intensive and time-consuming task. Human limitations, such as fatigue and potential biases, can hinder the accuracy and efficiency of classification (Spitale et al, 2023 ). This creates a space for innovative approaches to streamline the process, ensuring that critical insights are not lost due to the constraints of manual labor.…”

Section: Introductionmentioning

confidence: 99%

Exploring the role of AI in classifying, analyzing, and generating case reports on assisted suicide cases: feasibility and ethical implications

Spitale,

Schneider,

Germani

et al. 2023

Front. Artif. Intell.

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This paper presents a study on the use of AI models for the classification of case reports on assisted suicide procedures. The database of the five Dutch regional bioethics committees was scraped to collect the 72 case reports available in English. We trained several AI models for classification according to the categories defined by the Dutch Termination of Life on Request and Assisted Suicide (Review Procedures) Act. We also conducted a related project to fine-tune an OpenAI GPT-3.5-turbo large language model for generating new fictional but plausible cases. As AI is increasingly being used for judgement, it is possible to imagine an application in decision-making regarding assisted suicide. Here we explore two arising questions: feasibility and ethics, with the aim of contributing to a critical assessment of the potential role of AI in decision-making in highly sensitive areas.

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Doing isolation – Caring Citizens. A cross-country comparative analysis of patient experiences with isolation practices during the early phase of the Covid-19 pandemic

Holmberg,

Nettleton,

Sakuma Sato

et al. 2023

SSM - Qualitative Research in Health

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Patient narratives – a still undervalued resource for healthcare improvement

Cited by 5 publications

References 29 publications

Women’s experiences with non-invasive prenatal testing in Switzerland: a qualitative analysis

Women’s experiences with non-invasive prenatal testing in Switzerland: a qualitative analysis

Exploring the role of AI in classifying, analyzing, and generating case reports on assisted suicide cases: feasibility and ethical implications

Doing isolation – Caring Citizens. A cross-country comparative analysis of patient experiences with isolation practices during the early phase of the Covid-19 pandemic

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