Patient perspectives on hepatitis C and its treatment

Abstract

Areas of concern expressed in these focus groups represent underexplored areas that may warrant additional attention or areas for intervention and investigation, such as exploring differences between perceptions of patients and providers regarding the hepatitis C treatment process and addressing barriers to care.

Living with Hepatitis C Virus: A Systematic Review and Narrative Synthesis of Qualitative Literature

“…Seventeen studies were conducted in Australia [21–23, 25, 30, 32, 33, 38, 39, 51, 53, 56–59, 64, 65], fifteen in the UK [24, 31, 34, 35, 37, 40, 46, 47, 49, 52, 55, 60, 61, 63, 66], eight in the United States [26, 27, 36, 41, 43, 48, 54, 62], four in Canada [28, 29, 45, 50], and one each from Pakistan [42] and France [44]. The studies were published between 1999 [39] and 2014 [40, 48].…”

“…The studies were published between 1999 [39] and 2014 [40, 48]. Data in these studies were analyzed using a variety of methods, including thematic and content analysis [21–23, 27, 45, 48, 56, 60, 64], inductive approach [28, 54, 57, 59], grounded theory [30, 32, 35, 46, 63], framework approach [61], phenomenological approach [31, 37, 40, 43, 51, 52, 66], interpretive approach [33, 39], and constant comparative analysis [41, 50]. Various software programs were used by these studies: NVivo [28, 29, 47, 48, 55, 62], atlas.ti [21–23, 26], and QSR ∗ NUDIST [41].…”

“…Individuals reported that they had been given negligible information about HCV after diagnosis or were poorly informed [25, 40, 48, 59, 64], that they were told different information every visit [39], and that they were not given practical advice [40, 50]. One patient said “a lack of information from health care practitioners resulted in individuals seeking information from other sources” [48, 59].…”

“…One patient said “a lack of information from health care practitioners resulted in individuals seeking information from other sources” [48, 59]. People generally felt less stressed when more information was given [33].…”

“…People generally felt less stressed when more information was given [33]. One participant suggested that an education class would be valuable to those diagnosed with HCV [48]. In only one study, by Temple-Smith et al, did participants note that they felt that they had received adequate information [56].…”