Patient Reported Outcome and Experience Measures (PROMs and PREMs) in substance use disorder treatment services: A scoping review

Migchels, Charlotte; Zerrouk, Amine; Crunelle, Cleo L.; Matthys, Frieda; Gremeaux, Lies; Fernandez, Kim; Antoine, Jérôme; van den Brink, Wim; Vanderplasschen, Wouter

doi:10.1016/j.drugalcdep.2023.111017

Cited by 10 publications

(1 citation statement)

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“…However, harmonisation of national data programs remains elusive and ambitious, and the rise of various behavioural addictions requires further adjustments to measures. Recent work on patient-reported outcome measures (PROMs) has made inroads to this challenge and ongoing developments in Health Informatics make it important to reach agreement on measurements in the addictions field [22].…”

Section: Introductionmentioning

confidence: 99%

An International, Multidisciplinary Consensus Set of Patient-Centered Outcome Measures for Substance-Related and Addictive Disorders

Black,

Chung,

Tisdale

et al. 2024

JCM

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Background: In 1990, the United States’ Institute of Medicine promoted the principles of outcomes monitoring in the alcohol and other drugs treatment field to improve the evidence synthesis and quality of research. While various national outcome measures have been developed and employed, no global consensus on standard measurement has been agreed for addiction. It is thus timely to build an international consensus. Convened by the International Consortium for Health Outcomes Measurement (ICHOM), an international, multi-disciplinary working group reviewed the existing literature and reached consensus for a globally applicable minimum set of outcome measures for people who seek treatment for addiction. Methods: To this end, 26 addiction experts from 11 countries and 5 continents, including people with lived experience (n = 5; 19%), convened over 16 months (December 2018–March 2020) to develop recommendations for a minimum set of outcome measures. A structured, consensus-building, modified Delphi process was employed. Evidence-based proposals for the minimum set of measures were generated and discussed across eight videoconferences and in a subsequent structured online consultation. The resulting set was reviewed by 123 professionals and 34 people with lived experience internationally. Results: The final consensus-based recommendation includes alcohol, substance, and tobacco use disorders, as well as gambling and gaming disorders in people aged 12 years and older. Recommended outcome domains are frequency and quantity of addictive disorders, symptom burden, health-related quality of life, global functioning, psychosocial functioning, and overall physical and mental health and wellbeing. Standard case-mix (moderator) variables and measurement time points are also recommended. Conclusions: Use of consistent and meaningful outcome measurement facilitates carer–patient relations, shared decision-making, service improvement, benchmarking, and evidence synthesis for the evaluation of addiction treatment services and the dissemination of best practices. The consensus set of recommended outcomes is freely available for adoption in healthcare settings globally.

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Section: Introductionmentioning

confidence: 99%