Patient‐targeted websites on overactive bladder: What are our patients reading?

Clancy, Aisling A.; Hickling, Duane; Didomizio, Laura; Sanaee, May; Shehata, Fady; Zee, Rebekah A; Khalil, Hisham

doi:10.1002/nau.23359

Cited by 17 publications

(7 citation statements)

References 25 publications

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“…As 1 point is allocated for each of the criteria met, scores range from 0 to 4; a higher score indicates better quality. Although these benchmarks have been applied to evaluate the quality of website-derived health information on various diseases [19-21], the quality of IBD-related information on websites has not yet been reported.…”

Section: Methodsmentioning

confidence: 99%

Quality of information on the Internet for Korean patients with inflammatory bowel disease

Yoon

Lee

Kim

et al. 2019

Korean J Intern Med

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Background/AimsThe Internet is the main resource for health-related information. The incidence of inflammatory bowel disease (IBD) is rapidly increasing in Asian countries. However, the quality of websites for IBD available in this region has not been evaluated. We aimed to evaluate the quality of the information on IBD obtained from Korean websites.MethodsUsing the terms “Crohn’s disease” or “ulcerative colitis,” websites were selected from those obtained with the three most renowned search engines in Korea; 60 websites from the results of each engine were chosen. The websites were classified into institutional, commercial, charitable, supportive, or alternative medicine types according to the characteristics of each site. The websites were evaluated regarding content quality using the validated DISCERN instrument and the Journal of the American Medical Association benchmarks.ResultsThe median score of all the websites according to the DISCERN instrument was 32 (interquartile range, 25 to 47) out of 80, indicating an insufficient overall quality of information. The alternative medicine sites scored the lowest, whereas the institutional sites scored the highest (p < 0.05). The quality of information was significantly different among the search engines (p = 0.028). The rank of appearance in the Google search result did not correlate with the quality level of the information.ConclusionsThe quality of information on the Internet regarding IBD varied according to the website type and search engine. Accreditation and quality assurance systems should be implemented for websites to ensure that the public and patients obtain accurate information on IBD.

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Section: Methodsmentioning

confidence: 99%

Quality of information on the Internet for Korean patients with inflammatory bowel disease

Yoon

Lee

Kim

et al. 2019

Korean J Intern Med

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“…This is a nonprofit charity organization providing an online calculator tool enabling page administrators to assess the quality of the contents of their sites. [8][9][10][11] If a WEB site respects all the eight HON principles (authoritative, complementarily, privacy, attribution, justifiability, transparency, financial disclosure, and advertising policy), a HON recognition seal is awarded with one-year validation. 12,13 DISCERN is another project handled by the University of Oxford allowing web users to provide feedbacks.…”

Section: Introductionmentioning

confidence: 99%

“…12,15,16 This test was used to evaluate randomly 35 web sites to check quality and readability of overactive bladder (OAB) sites. 11 Three sites only satisfied JAMA criteria and six disclosed authorship contribution. The simplified measure of gobbledygook (SMOG) and the flesh-Kinkaid index are other tools to address language issues of web texts.…”

Section: Introductionmentioning

confidence: 99%

Factors affecting the quality and reliability of online health information

et al. 2020

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Background Internet represents a relevant source of information, but reliability of data that can be obtained by the web is still an unsolved issue. Non-reliable online information may have a relevance, especially in taking decisions related to health problems. Uncertainties on the quality of online health data may have a negative impact on health-related choices of citizens. Objective This work consisted in a cross-sectional literature review of published papers on online health information. The two main research objectives consisted in the analysis of trends in the use of health web sites and in the quality assessment and reliability levels of web medical sites. Methods Literature research was made using four digital reference databases, namely PubMed, British Medical Journal, Biomed, and CINAHL. Entries used were “trustworthy of medical information online,” “survey to evaluate medical information online,” “medical information online,” and “habits of web-based health information users”. Analysis included only papers published in English. The Newcastle Ottawa Scale was used to conduct quality checks of selected works. Results Literature analysis using the above entries resulted in 212 studies. Twenty-four articles in line with study objectives, and user characteristics were selected. People more prone to use the internet for obtaining health information were females, younger people, scholars, and employees. Reliability of different online health sites is an issue taken into account by the majority of people using the internet for obtaining health information and physician assistance could help people to surf more safe health web sites. Conclusions Limited health information and/or web literacy can cause misunderstandings in evaluating medical data found in the web. An appropriate education plan and evaluation tools could enhance user skills and bring to a more cautious analysis of health information found in the web.

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“…Nevertheless, Mazloomdoost et al 12 conclude a potential benefit of more detailed patient information due to increasing internet use. In 2018, Clancy et al 13 published a study evaluating the quality and the content of information of websites on overactive bladder (OAB) concluding a low quality and often lack adequate information.…”

Section: Introductionmentioning

confidence: 99%

Comprehensive analysis of Twitter activity on #Incontinence

Grabbert

Khoder

Gratzke

et al. 2019

Neurourology and Urodynamics

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Aim: The aim of this study is comprehensive analysis of the Twitter activity on #Incontinence.Material and Methods: The following six functional-urology hashtags on Twitter were analyzed from 2015 to 2018 to gain a comprehensive insight into the topic: #Incontinence, #InterstitialCystitis, #OAB, #FPMRS, #BPH, and #UroBPH. For the Twitter analysis, Symplur Signals was used, which is a health care social media analytics tool.Results: In total 191 383 tweets by 54 094 users in 2015 through 2018 were analyzed. A rise in the number of tweets could be identified for all six analyzed hashtags on functional urology, in summary, the numbers raised from 25 629 tweets in 2015 to 66 551 tweets in 2018. For the hashtag incontinence (#Incontinence), the number of tweets raised from 13 823 in 2015 to 19 996 in 2018 (+44.7%). Main influencers on functional urology topics identified by the Symplur algorithm were individuals from the health care sector in 44.6% of the cases and health care organizations in 36.5% of the cases, whereas for #Incontinence, only 7% of influencers were patients in 2018. The ten most common words connected to #Incontinence were Incontinence, Urinary, Women, Help, New, Bladder, Stress, Treatment, Pelvic, and Sex. Of the tweets, 66% were categorized as positive statements and 34% were categorized as negative.Conclusion: Social media is an emerging tool of communication in urology, whereas discussions on #Incontinence are underrepresented compared to the high prevalence of urinary incontinence. In addition, patients' activity is low. K E Y W O R D S functional urology, social media, Twitter, urinary incontinence Johannes Salem and Ricarda M. Bauer contributed equally to this study.

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Patient‐targeted websites on overactive bladder: What are our patients reading?

Abstract: Popular websites on OAB are of low quality, written for a high school to college-level readership, and often lack adequate information to assess the potential for commercial bias. Patients should be cautioned that incomplete and potentially biased information on OAB is prevalent online.

Cited by 17 publications

References 25 publications

Quality of information on the Internet for Korean patients with inflammatory bowel disease

Quality of information on the Internet for Korean patients with inflammatory bowel disease

Factors affecting the quality and reliability of online health information

Comprehensive analysis of Twitter activity on #Incontinence

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