Patients with implantable cardioverter‐defibrillators and their conceptions of the life situation: a qualitative analysis

Fridlund, Bengt; Lindgren, Eva-Carin; Ivarsson, Anita; Jinhage, Britt-Marie; Bolse, Kärstin; Flemme, Inger; Sandstedt, Bengt; Mårtensson, Jan

doi:10.1046/j.1365-2702.2000.00335.x

Cited by 45 publications

(58 citation statements)

References 22 publications

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“…In a qualitative study 18 of 15 ICD recipients' life situations, the researchers reported the beneficial and intrusive effects of the ICD device and the need for support groups. Use of social supports and support groups improved ability to cope and facilitated psychological adjustment.…”

Section: Literature Reviewmentioning

confidence: 99%

Technology-patient interactions: Internet use for gaining a healthy context for living with an implantable cardioverter defibrillator

Dickerson

2005

Heart & Lung

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Section: Literature Reviewmentioning

confidence: 99%

Technology-patient interactions: Internet use for gaining a healthy context for living with an implantable cardioverter defibrillator

Dickerson

2005

Heart & Lung

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“…Several studies have shown that patients ask for more information about the device and explanations as to why they need an ICD. 4,20 This was also considered important from the healthcare professionals' point of view in the present study. Individual support in combination with a high level of technological knowledge makes it easier for patients to deal with their new life situation.…”

Section: Discussion Of Findingsmentioning

confidence: 88%

“…They tried to be responsive and ask the right probing questions to help the patients with their entire life situation. Today, there is a great deal of knowledge, not only about the technical aspects of the ICD and the patients' physical reactions to it, 14,19,20 but also on how having a device implanted in the body can be experienced as a major life event that may lead to anxiety, depression and impaired quality of life.…”

Section: Discussion Of Findingsmentioning

confidence: 99%

Healthcare professionals’ experiences of delivering care to patients with an implantable cardioverter defibrillator

Bolse

Thylén

Strömberg

2012

European Journal of Cardiovascular Nursing

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The healthcare professionals described how they wished to develop the care further. Both nurses and physicians were consistent in wanting to provide competent and confirming care based on a holistic perspective with high accessibility to the ICD team. The findings describe how healthcare professionals strive to provide professional clinical care in order to give the patients tools to handle their life situation. They suggested that more structured education and counselling according to guidelines should be provided. They also highlighted the need to increase their own competence by improving their knowledge and skills.

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“…Det är emellertid inte alltid möjligt att skapa en sådan tydlig struktur för varje utfallsrum. När fenomenografi används i studier av vidare erfarenhetsfält som hur det är att leva med implanterad defibrillator (126) …”

Section: Fenomenografiunclassified

Att leva med en kropp som värker : samtal med fysioterapeuten

Afrell¹

2014

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Background and aim: Physiotherapists in primary care meet, assess and treat patients with long-standing benign musculoskeletal pain. As a clinical condition, long-standing pain is common but nonetheless it is quite complex. The aim of this thesis has been, from a bodily existential perspective, to investigate and conceptualise the experience of living with longstanding benign musculoskeletal pain, and from there, to work out a method for conversation and assessment within non-specialised physiotherapy. Methods: Our first study was an interview study where we applied a phenomenological approach and investigated the ways individuals suffering from long-standing pain experienced their body and their illness. Four aspects of body experience were described, and based on these aspects, four typologies of attitudes to pain were distinguished. In the second study, we made two group interviews with six physiotherapists about their experiences of using, in their clinical work, questions from the interview guide in study I that had given particularly rich responses. Transcripts were analysed using phenomenography. In the third study, patients’ verbal responses to the key questions, directed to them by physiotherapists in clinical situations, were investigated, and the four aspects of body experience from study I formed the concepts of a deductive analysis. In study IV, finally, the key questions and typologies were tried by a larger group (31), and their experiences and the possible applicability of the method were studied by qualitative content analysis combined with the counting of codes. Results: We created four typologies of attitudes to long-standing pain: “Surrendering to one’s fate”, “Accepting by an active process of change”, “Balancing between hope and resignation” and “Rejecting the body”. These typologies, in turn, were based on four aspects of body experience: “The body as an aspect of identity”. “Body reliance”, “Body awareness”, and “Ways of understanding pain”. In study II, by the aid of key questions, patient and physiotherapist managed to have a conversation on bodily existential matters. The physiotherapist learnt to know the patient as a person, a process appeared to be initiated in the patient, and their relation changed. The patient was willing to talk about her body in pain, and had the words to do this. In study III, the key questions opened ways to reflections on body, existence, and biography. The four aspects of body experience were central to the patients’ descriptions. In study IV, the participating physiotherapists reported by large positive experiences from applying key questions and typologies. The patients reflected, emotions were evoked, and the relation and the communication often improved. The typologies helped in giving a comprehensive perspective of the patient’s problem, and to grasp where in the process of rehabilitation the patient was to be found. Conclusions: The method, seven key questions combined with the tentative frame of interpretation of the answers, seemed to be easily appl...

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Patients with implantable cardioverter‐defibrillators and their conceptions of the life situation: a qualitative analysis

Cited by 45 publications

References 22 publications

Technology-patient interactions: Internet use for gaining a healthy context for living with an implantable cardioverter defibrillator

Technology-patient interactions: Internet use for gaining a healthy context for living with an implantable cardioverter defibrillator

Healthcare professionals’ experiences of delivering care to patients with an implantable cardioverter defibrillator

Att leva med en kropp som värker : samtal med fysioterapeuten

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