Patterns of care for Multiple Sclerosis in a setting of universal care access: A cross-sectional study

Barin, Laura; Kaufmann, Marco; Salmen, Anke; Kamm, Christian P.; Gobbi, Claudio; Kuhle, Jens; Pot, Caroline; Chan, Andrew; Czapliński, Adam; Ajdacic-Gross, Vladeta; Rodgers, Stephanie; Kesselring, Jürg; Puhan, Milo A.; Wyl, Viktor von

doi:10.1016/j.msard.2018.11.033

Cited by 14 publications

(31 citation statements)

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“…Analyses for associations between the independent and the dependent variables were conducted with correlation analyses. To keep the regression models parsimonious, the non-significant independent variables (p > 0.10), except common control variables used in previous research (such as sex and time since MS diagnosis [2,31]), were excluded from the following regression analyses. To explore factors associated with currently working PwMS, multivariable logistic regression models were fitted using socio-demographic characteristics as independent variables and the dichotomized item "currently working" versus "not currently working" as dependent variable.…”

Section: Discussionmentioning

confidence: 99%

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Factors associated with employment and expected work retention among persons with multiple sclerosis: findings of a cross-sectional citizen science study

et al. 2020

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Background Multiple sclerosis (MS) notably affects adults of working age. For persons with MS (PwMS), being employed enhances their quality of life and it may be regarded as an indicator of overall functioning. Thus, ensuring work participation in PwMS is of general public health interest. Objective To examine relevant socio-demographic, MS-, health- and work-related factors, including psychosocial working conditions, associated with currently working PwMS in Switzerland and their expected work retention. Methods Using cross-sectional data of PwMS in the Swiss MS Registry (n = 541, median age = 48 [IQR 40;55]), multivariable logistic regression models were computed. First, currently working PwMS were characterised in comparison with those not currently working. Second, expected work retention, operationalized as subjective judgement “likely to work in the same job in 2 years”, was examined within the group of currently working PwMS. Results The factors age (OR 0.96, 95% CI 0.92–0.99), sex (OR 0.28, 95% CI 0.13–0.60), highest achieved job position (OR 1.21, 95% CI 1.01–1.46), health-related quality of life (HRQoL) (OR 1.02, 95% CI 1.01–1.04) and the number of MS symptoms (OR 0.90, 95% CI 0.82–0.98) were associated with currently working PwMS. Moreover, HRQoL (OR 1.07, 95% CI 1.04–1.10) and psychosocial working conditions, such as job resources (e.g. autonomy, control or social support) (OR 2.83, 95% CI 1.50–5.33) and job demands (e.g. workload, time pressure) (OR 0.41, 95% CI 0.18–0.90) were important factors for expected work retention among this group. Conclusions Resourceful psychosocial working conditions are crucial for PwMS to maintain employment. Employers could contribute to work retention among PwMS by creating a work environment with resourceful psychosocial working conditions and providing, for instance, social support.

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Section: Discussionmentioning

confidence: 99%

“…In addition, it provides an estimation of a single utility figure (also referred to as the EQ-5D-index) and a visual analogue scale (EQ-VAS). The French value set was used for the present study [29,30] and the EQ-5D-index was rescaled from 0 (worst health) to 100 (best health) [31].…”

Section: Socio-demographic Ms-and Health-related Factorsmentioning

confidence: 99%

Factors associated with employment and expected work retention among persons with multiple sclerosis: findings of a cross-sectional citizen science study

et al. 2020

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“…The process ended once no variable further reduced the AIC by at least two units. Another description of this process can also be found in a previous study (Barin et al, 2019).…”

Section: Discussionmentioning

confidence: 80%

“…As shown by an earlier study, as many as 43% of the participants in the Swiss MS Registry reported to receive physiotherapy on a regular basis. (Barin et al, 2019). Studies to investigate possible reasons for limited physiotherapy access or uptake have been performed in other countries, but not in Switzerland.…”

Section: Introductionmentioning

confidence: 99%

Physiotherapy use and access-barriers in persons with multiple sclerosis: A cross-sectional analysis

Fortunato

Maas²,

Biland-Thommen

et al. 2021

Multiple Sclerosis and Related Disorders

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“…Due to the mandatory health insurance system in Switzerland with very comprehensive coverage of essential treatments, DMTs are reimbursed fully if drugs are utilized according to formal approval criteria. Therefore, the access to DMT and neurological care in general is unrestricted (15, 16). In consequence, the Swiss national MS treatment registry delivers a good estimate of DMT users in the insurances covered by the Swiss association for joint tasks of health insurances.…”

Section: Methodsmentioning

confidence: 99%

A Framework for Estimating the Burden of Chronic Diseases: Design and Application in the Context of Multiple Sclerosis

et al. 2019

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Background: When population-based databases are unavailable, nationwide assessments of the disease burden of multiple sclerosis (MS) resort to clinical, administrative or convenience-sampled data sources, which may produce results of limited external validity. Our aim was to develop a framework for estimating measures of occurrence of chronic diseases, and more broadly disease burden, that mitigate these limitations and to apply this framework to estimate the prevalence of multiple sclerosis (MS) in Switzerland.Methods: We developed a 7-step framework which implements the combination of several data sources together with a resampling and critical appraisal approach. The framework was applied to estimate the MS prevalence for 2016 in Switzerland, for which four distinct data sources (Swiss MS registry, Swiss national MS treatment registry, MediService database, and Swiss MS cohort study) were combined. Results were reviewed by disease experts and compared to earlier Swiss estimates and current prevalence estimates from other countries.Results: We estimate that in the year 2016 between 14,650 and 15,700 persons with MS have been living in Switzerland, yielding a period prevalence of 174–187/100,000 inhabitants. Compared to the last estimate in 1986, we detected a substantial increase of MS diagnoses which coincides with a higher number of diagnoses in women below the age of 65.Conclusions: Internationally, Switzerland is a high-prevalence country for MS, although estimates were somewhat lower than recent evaluations of Northern European countries. In addition, we corroborate previous reports that the prevalence increase coincides with a higher number of MS diagnoses among women. The proposed framework has wide applicability and the potential to place estimates of disease occurrence and burden with imperfect data availability on more solid grounds.

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Patterns of care for Multiple Sclerosis in a setting of universal care access: A cross-sectional study

Cited by 14 publications

References 20 publications

Factors associated with employment and expected work retention among persons with multiple sclerosis: findings of a cross-sectional citizen science study

Factors associated with employment and expected work retention among persons with multiple sclerosis: findings of a cross-sectional citizen science study

Physiotherapy use and access-barriers in persons with multiple sclerosis: A cross-sectional analysis

A Framework for Estimating the Burden of Chronic Diseases: Design and Application in the Context of Multiple Sclerosis

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