Pediatric otoplasty and informed consent: Do information handouts improve parental risk recall?

Papsin, Emily; Haworth, Rebecca; Chorney, Jill; Bezuhly, Michael; Hong, Paul

doi:10.1016/j.ijporl.2014.10.028

Cited by 20 publications

(19 citation statements)

References 12 publications

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“…Although this content was likely discussed during the consultation, parents clearly preferred to have additional access to this information before and after the consultation. This is consistent with literature that has shown that parents tend to have suboptimal recollection of the information provided during surgical consultations [13,14]. This can lead to poor adherence with treatment options and confusion about symptoms [15].…”

Section: Contentsupporting

confidence: 90%

Parental knowledge in pediatric otolaryngology surgical consultations: A qualitative content analysis

Gorodzinsky

Hong

Chorney

2015

International Journal of Pediatric Otorhinolaryngology

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Section: Contentsupporting

confidence: 90%

Parental knowledge in pediatric otolaryngology surgical consultations: A qualitative content analysis

Gorodzinsky

Hong

Chorney

2015

International Journal of Pediatric Otorhinolaryngology

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“…The provision of these decision aids has previously been found to increase both comprehension and risk recall. 34 In addition to improving informed consent, these interventions may increase overall satisfaction with the decision-making process. 35 This is especially relevant to the craniosynostosis patient population, as parents described significant anxiety associated with therapeutic decision making.…”

Section: Discussionmentioning

confidence: 99%

Understanding families’ experiences following a diagnosis of non-syndromic craniosynostosis: a qualitative study

et al. 2020

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ObjectivesCraniosynostosis is typically diagnosed and surgically corrected within the first year of life. The diagnosis and surgical correction of the condition can be a very stressful experience for families. Despite this, there is little research exploring the impact that craniosynostosis has on families, especially in the period immediately following diagnosis and correction. In this study, the authors aimed to qualitatively examine the psychosocial experience of families with a child diagnosed with craniosynostosis.DesignQualitative study.SettingTertiary care paediatric health centre.ParticipantsMothers of children newly diagnosed with single-suture, non-syndromic craniosynostosis.InterventionSemistructured interviews regarding parental experience with the initial diagnosis, their decision on corrective surgery for their child, the operative experience, the impact of craniosynostosis on the family and the challenges they encountered throughout their journey.Primary and secondary outcome measuresThematic analysis, a type of qualitative analysis that provides an in-depth account of participant’s experiences, was used to analyse the interview data.ResultsOver a 4-year period, 12 families meeting eligibility criteria completed the study. Three main themes (six subthemes) emerged from the preoperative interviews: frustration with diagnostic delays (parental intuition and advocacy, hope for improved awareness), understanding what to expect (healthcare supports, interest in connecting with other families) and justifying the need for corrective surgery (influence of the surgeon, struggle with cosmetic indications). Two main themes (four subthemes) were drawn from the postoperative interviews: overcoming fear (the role of healthcare professionals, transition home) and relief (reduction in parental anxiety, cosmetic improvements).ConclusionsOverall, the diagnosis of craniosynostosis has a profound impact on families, leading them to face many struggles throughout their journey. A better understanding of these experiences will help to inform future practice, with a hope to improve this experience for other families moving forward.

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“…However, studies in pediatrics to date have demonstrated that shared decision-making may be limited in clinical practice [12], and the format in which information is provided to parents currently does not facilitate adequate recall of information shared during consultations [12–14]. …”

Section: Introductionmentioning

confidence: 99%

Decision aid prototype development for parents considering adenotonsillectomy for their children with sleep disordered breathing

Maguire

Hong

Ritchie

et al. 2016

Journal of Otolaryngology - Head & Neck Surgery

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BackgroundTo describe the process involved in developing a decision aid prototype for parents considering adenotonsillectomy for their children with sleep disordered breathing.MethodsA paper-based decision aid prototype was developed using the framework proposed by the International Patient Decision Aids Standards Collaborative. The decision aid focused on two main treatment options: watchful waiting and adenotonsillectomy. Usability was assessed with parents of pediatric patients and providers with qualitative content analysis of semi-structured interviews, which included open-ended user feedback.ResultsA steering committee composed of key stakeholders was assembled. A needs assessment was then performed, which confirmed the need for a decision support tool. A decision aid prototype was developed and modified based on semi-structured qualitative interviews and a scoping literature review. The prototype provided information on the condition, risk and benefits of treatments, and values clarification. The prototype underwent three cycles of accessibility, feasibility, and comprehensibility testing, incorporating feedback from all stakeholders to develop the final decision aid prototype.ConclusionA standardized, iterative methodology was used to develop a decision aid prototype for parents considering adenotonsillectomy for their children with sleep disordered breathing. The decision aid prototype appeared feasible, acceptable and comprehensible, and may serve as an effective means of improving shared decision-making.

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Pediatric otoplasty and informed consent: Do information handouts improve parental risk recall?

Cited by 20 publications

References 12 publications

Parental knowledge in pediatric otolaryngology surgical consultations: A qualitative content analysis

Parental knowledge in pediatric otolaryngology surgical consultations: A qualitative content analysis

Understanding families’ experiences following a diagnosis of non-syndromic craniosynostosis: a qualitative study

Decision aid prototype development for parents considering adenotonsillectomy for their children with sleep disordered breathing

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