Peer support interventions for parents and carers of children with complex needs

Sartore, Gina-Maree; Pourliakas, Anastasia; Lagioia, Vince

doi:10.1002/14651858.cd010618.pub2

Cited by 25 publications

(19 citation statements)

References 113 publications

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“…It is generally accepted that peer support is valuable, especially for women with T1D who have complex needs. 35 However, most studies on peer support for patients with T1D focus on patients in childhood/adolescence or in early adulthood. 36 37 As far as we are concerned, there is a dearth of research on peer support in pregnancy for women with T1D.…”

Section: Discussionmentioning

confidence: 99%

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Current practice, attitude and views of providing pregnancy care for women with type 1 diabetes in China: a qualitative study

et al. 2022

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ObjectiveData are sparse on healthcare needs related to pregnancy among Chinese women with type 1 diabetes (T1D) or the gap between the needs and healthcare provision in China. We aimed to identify their needs and the gaps in pregnancy care provision.DesignThis is a qualitative, face-to-face, one-to-one in-depth interview study. We recruited our participants using a purposive sampling strategy. Semistructural outlines were used to guide the interviews. The interviews were digitally recorded, transcribed and analysed using a thematic framework method with NVivo V.10.0.SettingGuangdong Province in China.ParticipantsThis study involved three key stakeholders of pregnancy care for women with T1D: 29 women with T1D of childbearing age (aged 18–50 years), 16 family members (husbands, parents and parents-in-law of women with T1D) and 35 relevant healthcare providers (HCPs).ResultsWe found that women with T1D and the family members had a more pessimistic attitude towards pregnancy outcomes, which was different from the more positive view of HCPs. However, all three stakeholders shared the following perspectives regarding pregnancy-related care for women with T1D: (1) lack of knowledge and access to education, (2) lack of multidisciplinary cooperation, (3) education should be started earlier in adulthood, (3) positive role of peer support, and (4) hope for future training of HCPs for relevant knowledge and skills specified for T1D and pregnancy with T1D.ConclusionsAn immense gap was identified between the needs of women with T1D regarding pregnancy-related care and current care provision in China. These findings suggest that education be provided to patients and HCPs, and the role of professional and multidisciplinary support should be enhanced to optimise pregnancy care for women with T1D in China.

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Section: Discussionmentioning

confidence: 99%

“…However, in reality, peer support in pregnancy-related care for T1D is lacking. It is generally accepted that peer support is valuable, especially for women with T1D who have complex needs 35. However, most studies on peer support for patients with T1D focus on patients in childhood/adolescence or in early adulthood 36 37.…”

Section: Discussionmentioning

confidence: 99%

Current practice, attitude and views of providing pregnancy care for women with type 1 diabetes in China: a qualitative study

et al. 2022

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“…Based on their clinical expertise, group members also recommended implementing structured support groups and one-on-one peer mentorship programs for patients and their caregivers, as well as developing evidence-based resources with practical information on living with scoliosis; these suggestions mirror those made in the two systematic reviews previously described 1 3. However, it should be noted that while peer support interventions have been shown to have potential value, limitations in the quality of the literature have prevented strong conclusions regarding their efficacy 36 37…”

Section: Discussionmentioning

confidence: 98%

Effectiveness of psychosocial interventions for pediatric patients with scoliosis: a systematic review

Niekerk

Richey²,

Vorhies³

et al. 2023

World Jnl Ped Surgery

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BackgroundPediatric patients affected by scoliosis have complex psychological and social care needs, and may benefit from psychosocial interventions. We therefore aimed to summarize evidence of the efficacy of psychosocial interventions for this patient population.MethodsLiterature was identified by searching Medline, PsycINFO, Embase, EBSCO Cumulated Index to Nursing and Allied Health Literature (CINAHL), and Cochrane Central Register of Controlled Trials (CENTRAL) from database inception to 20 March 2022. Articles that evaluated the effectiveness of psychosocial interventions for pediatric patients diagnosed with scoliosis and reported at least one quantitative outcome were included. Article eligibility, data extraction, and quality assessment (using the Cochrane Collaboration’s Risk of Bias Tool and Methodological Index for Non-Randomized Studies) were performed by two independent researchers. Findings are presented using narrative synthesis.ResultsWe identified ten studies, all of which focused on adolescent idiopathic scoliosis. Studies included a total of 1007 participants, most of whom were female. Three studies focused on patients undergoing bracing, six on patients undergoing spinal surgery, and one on patients broadly. Brace compliance monitoring and counseling were found to significantly improve brace compliance quality and quantity. Proactive mental healthcare delivery by nurses after spinal surgery was similarly found to improve outcomes. Several studies examined the efficacy of brief educational interventions; most did not report clear evidence of their efficacy. The methodological quality of studies was often unclear due to limitations in articles’ reporting quality.ConclusionsResearch on the efficacy of psychosocial interventions for pediatric patients with scoliosis is limited, with interventions involving frequent patient-provider interactions showing the most promise. Future clinical and research efforts should focus on developing and testing psychosocial interventions for this patient population, with emphasis on multidisciplinary teams delivering holistic care.Trial registration numberPROSPERO number CRD42022326957

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“…This study provides preliminary insights into medium‐ and long‐term outcomes of peer support. Recent systematic reviews conducted by Shilling et al, (2013), Sartore et al (2021) and Lancaster et al (2022) conclude that none of the included studies incorporated a medium‐ or longer‐term follow‐up time point. Some positive outcomes occurred, which deserve replication in other studies.…”

Section: Discussionmentioning

confidence: 99%

Exploring long‐term outcomes of a peer support programme for parents* of children with disability in Australia

Lancaster,

Kern,

Harding

et al. 2024

Child

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Peer support groups can offer parents of children with disability, positive well‐being outcomes. Peer support groups not only provide opportunities for connections with others with similar experiences but also provide resources and information, emotional support, a sense of belonging and may help reduce stress and isolation. Peer support groups are an established form of support existing within family centred practice. However, it is unclear whether peer support groups achieve the outcomes that they aim to deliver. Further, little is known about the longer‐term outcomes for parents attending such groups. This study aimed to explore the medium‐ and long‐term outcomes and experiences of parents who participated in a peer support programme (the Now and Next programme) for parents of children with disability. Well‐being data were collected at three timepoints (Ts): prior to commencing the programme (T1), immediately after completion of the programme (T2) and 6–30 months after completion of the programme (T3). Results of the study showed empowerment and well‐being improved from T1 to T2, with gains maintained at T3. Hope scores did not significantly change over time. Participants continued to set and achieve goals over time using resources from the programme. Improvements in parents' well‐being and empowerment scores were maintained in the longer‐term. Our study contributes to evidence confirming sustained long‐term outcomes of peer support programmes and demonstrates that building parent capacity, empowerment and well‐being has a lasting effect on the parents of children with disability.

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Peer support interventions for parents and carers of children with complex needs

Cited by 25 publications

References 113 publications

Current practice, attitude and views of providing pregnancy care for women with type 1 diabetes in China: a qualitative study

Current practice, attitude and views of providing pregnancy care for women with type 1 diabetes in China: a qualitative study

Effectiveness of psychosocial interventions for pediatric patients with scoliosis: a systematic review

Exploring long‐term outcomes of a peer support programme for parents* of children with disability in Australia

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