Perceptions of self-defined memory problems vary in south Asian minority older people who consult a GP and those who do not: a mixed-method pilot study

Giebel, Clarissa; Challis, David; Worden, Angela; Jolley, David; Bhui, Kamaldeep; Lambat, Ahmed; Purandare, Nitin

doi:10.1002/gps.4337

Cited by 14 publications

(28 citation statements)

References 35 publications

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“…Despite living for several decades in the United Kingdom, and also having family members in the area, many older migrants are not claiming welfare benefits they are entitled to or do not know about how to access social care services to support them with the tasks of daily living (See Case Study 1). This trend has also been found in a number of previous studies of migrants in a variety of host countries (Bolzman et al, 2004;Giebel et al, 2016;Ip et al, 2007;Willis et al, 2016).…”

Section: Themes From the Work Of Pukar With Older Migrants Changing Fsupporting

confidence: 81%

“…Karl et al (2016) found that older migrants consider returning to their host country at the point of retirement and then again when needing round-the-clock care (Liversage & Mizrahi Mirdal, 2016). Some research has indicated that migrants underuse public care services (Bolzman, Poncioni-Derigo, Vial, & Fibbi, 2004;Giebel et al, 2016) due to a lack of knowledge about what is available (Ip et al, 2007;Willis et al, 2016) as well as stigma around certain conditions, such as dementia and Alzheimer's (Giebel et al, 2016;Li, Hatzidimitriadou, & Psoinos, 2014). However, in a study of older migrants in Switzerland, Bolzman and Vagni (2016) found that migrants were as likely as the host population to use public care services.…”

Section: Older Migrants and Circulations Of Carementioning

confidence: 99%

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The Missing Link in the Chain

Khan¹,

Caldwell

Halsall

2017

Illness, Crisis & Loss

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As the migrant workers of the 1960s and 1970s age in place, many countries are facing caring for increasing numbers of older migrants, many of whom have complex health and social care needs. By applying a qualitative case study approach, of a grassroots disability resource centre that works with older migrants, this paper critically explores the social policy debates that are focused on older migrants in the Black and Minority Ethnic (BME)community. A number of themes have emerged, including the impact of changing family structure, difficulties with accessing services and increased isolation. In addition, there are also examples of older migrants activtly engaged in building communities and supporting others, defying the stereotypes of vulnerable older migrants being a burden on the state. This paper argues for politicians and social policy makers to refocus on the new challenges that are emerging in the older migrants of the BME community.

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Section: Themes From the Work Of Pukar With Older Migrants Changing Fsupporting

confidence: 81%

Section: Older Migrants and Circulations Of Carementioning

confidence: 99%

The Missing Link in the Chain

Khan¹,

Caldwell

Halsall

2017

Illness, Crisis & Loss

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“…29 Giebel et al looked at the differences in the perceptions of South Asians who do and do not consult a general practitioner (GP) about dementia. 20 They found those who did not consult a GP were significantly more likely to consider memory problems as given by God, with the view that medical intervention was therefore inappropriate. In a case study of a Muslim, Pakistani patient accessing healthcare for dementia in the UK, Regan further highlighted the importance of understanding a person’s religious community and its role in providing both support and reducing stigma and isolation.…”

Section: Resultsmentioning

confidence: 99%

Dementia in UK South Asians: a scoping review of the literature

et al. 2018

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ObjectiveOver 850 000 people live with dementia in the UK. A proportion of these people are South Asians, who make up over 5% of the total UK population. Little is known about the prevalence, experience and treatment of dementia in the UK South Asian population. The aim of this scoping review is to identify dementia studies conducted in the UK South Asian population to highlight gaps in the literature which need to be addressed in future research.MethodDatabases were systematically searched using a comprehensive search strategy to identify studies. A methodological framework for conducting scoping reviews was followed. An extraction form was developed to chart data and collate study characteristics and findings. Studies were then grouped into six categories: prevalence and characteristics; diagnosis validation and screening; knowledge, understanding and attitudes; help-seeking; experience of dementia; service organisation and delivery.ResultsA total of 6483 studies were identified, 27 studies were eligible for inclusion in the scoping review. We found that studies of prevalence, diagnosis and service organisation and delivery in UK South Asians are limited. We did not find any clinical trials of culturally appropriate interventions for South Asians with dementia in the UK. The existing evidence comes from small-scale service evaluations and case studies.ConclusionsThis is the first scoping review of the literature to identify priority areas for research to improve care for UK South Asians with dementia. Future research should first focus on developing and validating culturally appropriate diagnostic tools for the UK South Asians and then conducting high-quality epidemiological studies in order to accurately identify the prevalence of dementia in this group. The cultural adaptation of interventions for dementia and testing in randomised controlled trials is also vital to ensure that there are appropriate treatments available for the UK South Asians to access.

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“…Belonging to an ethnic minority group can also be leading to inequalities in diagnosis and care access in dementia [9]. People from black and minority ethnic (BAME) groups are often found to experience delays in receiving a diagnosis, with symptoms also being attributed to faith by some resulting in delays or general noncontact with GPs about their symptoms [10]. In line with other research on various BAME groups, Sagbaken et al [11] reported language barriers and faith-related help-seeking attitudes as major barriers to receiving a dementia diagnosis in ethnic minority migrants in Norway.…”

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confidence: 99%

“Current dementia care: what are the difficulties and how can we advance care globally?”

Giebel

2020

BMC Health Serv Res

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Background: Dementia is a growing global public health concern, with post-diagnostic care often very limited. Depending on where people live, both within a country and depending on high-, middle-, and low-income countries, they might also face barriers in accessing the right care at the right time. Therefore, it is important to highlight recent evidence on the facilitators and barriers to dementia care, but also evidence on how to move dementia care forward. Main text: Current dementia care is subject to several inequalities, including living in rural regions and being from a minority ethnic background. Evidence in this collection highlights the issues that both people living with dementia and unpaid carers are facing in accessing the right care, with evidence from Australia, Canada, Uganda, to the Netherlands, and further afield. Providing improved dementia-specific training to health care professionals and supporting medication and reablement interventions have been identified as possible ways to improve dementia care for all. Conclusions: This special issue focuses on recent evidence on inequalities in dementia care across the globe and how dementia care can be advanced in various areas.

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Perceptions of self-defined memory problems vary in south Asian minority older people who consult a GP and those who do not: a mixed-method pilot study

Cited by 14 publications

References 35 publications

The Missing Link in the Chain

The Missing Link in the Chain

Dementia in UK South Asians: a scoping review of the literature

“Current dementia care: what are the difficulties and how can we advance care globally?”

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