Performance of a brief survey to assess health literacy in patients receiving hemodialysis

Cavanaugh, Kerri L.; Osborn, Chandra Y.; Tentori, Francesca; Rothman, Russell L.; İkizler, T. Alp; Wallston, Kenneth A.

doi:10.1093/ckj/sfv037

Cited by 58 publications

(71 citation statements)

References 39 publications

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“…In this study, health literacy was evaluated with one of two measures, either the short form of the test of functional health literacy in adults (S-TOFHLA)(Baker et al, 1999) or the Brief Health Literacy Screen (BHLS) (Cavanaugh et al, 2015). The S-TOFHLA which had a Cronbach’s α of 0.95 in our study is a 7-minute timed test of 36 items with a possible score range from 0 to 36.…”

Section: Methodsmentioning

confidence: 99%

“…The availability of different types of phosphate binders with unique side effects and tolerability has been shown to affect adherence(Arenas et al, 2010) and thus promotes the need for patient-centered care and shared-decision making that is a priority in the effective management of patients with kidney disease (Cavanaugh, 2015). This approach aligns patients’ values to their choice of medications by taking into account medication side effects, diet-based therapy as well as guided meal-based dose adjustments.…”

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

Health care providers’ support of patients’ autonomy, phosphate medication adherence, race and gender in end stage renal disease

Umeukeje¹,

Merighi²,

Browne³

et al. 2016

J Behav Med

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This study was designed to assess dialysis subjects’ perceived autonomy support association with phosphate binder medication adherence, race and gender. A multi-site cross-sectional study was conducted among 377 dialysis subjects. The Health Care Climate (HCC) Questionnaire assessed subjects’ perception of their providers’ autonomy support for phosphate binder use, and adherence was assessed by the self-reported Morisky Medication Adherence Scale (MMAS). Serum phosphorus was obtained from the medical record. Regression models were used to examine independent factors of medication adherence, serum phosphorus, and differences by race and gender. Non-white HCC scores were consistently lower compared with white subjects’ scores. No differences were observed by gender. Reported phosphate binder adherence was associated with HCC score, and also with phosphorus control. No significant association was found between HCC score and serum phosphorus. Autonomy support, especially in non-white end stage renal disease subjects, may be an appropriate target for culturally informed strategies to optimize mineral bone health.

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Section: Methodsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Health care providers’ support of patients’ autonomy, phosphate medication adherence, race and gender in end stage renal disease

Umeukeje¹,

Merighi²,

Browne³

et al. 2016

J Behav Med

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“…The scale has been validated for use in both research settings and routine clinical practice, as well as in patients receiving dialysis. 47, 48 …”

Section: Methodsmentioning

confidence: 99%

The Perceived Medical Condition Self-Management Scale can be applied to patients with chronic kidney disease

Wild

Wallston

Green

et al. 2017

Kidney International

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Chronic Kidney Disease (CKD) is a major burden on patients and the healthcare system. Treatment of CKD requires dedicated involvement from both caretakers and patients. Self-efficacy, also known as perceived competence, contributes to successful maintenance of patient’s CKD self-management behaviors such as medication adherence and dietary regulations. Despite a clear association between self-efficacy and improved CKD outcomes, there remains a lack of validated self-report measures of CKD self-efficacy. To address this gap, the Perceived Kidney/Dialysis Self-Management Scale (PKDSMS) was adapted from the previously validated Perceived Medical Condition Self-Management Scale. We then sought to validate this using data from two separate cohorts: a cross-sectional investigation of 146 patients with end-stage renal disease receiving maintenance hemodialysis and a longitudinal study of 237 patients with CKD not receiving dialysis. The PKDSMS was found to be positively and significantly correlated with self-management behaviors and medication adherence in both patient cohorts. The PKDSMS had acceptable reliability, was internally consistent, and exhibited predictive validity between baseline PKDSMS scores and self-management behaviors across multiple time points. Thus, the PKDSMS is a valid and reliable measure of CKD patient self-efficacy and supports the development of interventions enhancing perceived competence to improve CKD self-management.

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“…All surveys were administered by trained study personnel. Health literacy was evaluated with the Brief Health Literacy Screen (range 0-12), and low health literacy was defined by a score of 6 or less [25,26]. An 11-item survey of objective kidney knowledge was performed adapted from the Kidney Knowledge Survey (KiKS) scored a percent correct [27].…”

Section: Study Population and Definitionsmentioning

confidence: 99%

Kidney Disease Awareness and Knowledge among Survivors ofAcute Kidney Injury

et al. 2019

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Background: Acute kidney injury (AKI) survivors are at risk for chronic kidney disease, recurrent AKI, and cardiovascular disease. The transition from hospital to ambulatory care is an opportunity to reduce these sequelae by launching self-care plans through effective patient education. How well AKI survivors are informationally prepared to apply kidney-specific self-care is unknown. The purpose of this study was to identify awareness and disease-specific knowledge among AKI survivors. Methods: We performed a cross-sectional survey of AKI-related awareness and knowledge in 137 patients with Kidney Disease Improving Global Outcomes Stage II or III AKI near the time of hospital discharge. Patients were asked (1) “Did you experience AKI while in the hospital?” and (2) “Do you have a problem with your kidney health?” Objective knowledge of AKI was evaluated with a 15-item adapted version of the validated Kidney Knowledge Survey that included topics such as common causes, risk factors, and how AKI is diagnosed. Results: Median age was 54 (interquartile range 43–63) and 81% were white. Eighty percent of patients were unaware that they had experienced AKI and 53% were both unaware they had experienced AKI or had a “problem with their kidneys.” Multivariable logistic regression identified being male and lack of nephrology consult as predictors of unawareness with ORs of 3.92 (95% CI 1.48–10.33) and 5.10 (95% CI 1.98–13.13), respectively. Less than 50% recognized nonsteroidal anti-inflammatory drugs, contrast, or phosphate-based cathartics as risk factors for AKI. Two-thirds of patients did not agree that they knew a lot about AKI and more than 80% desired more information. Conclusions: Most patients with moderate to severe AKI are unaware of their condition, lack understanding of risk factors for recurrent AKI, and desire more information. Patient-centered communication to optimize awareness, understanding, and care will require coordinated educational strategies throughout the continuum of AKI care.

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Performance of a brief survey to assess health literacy in patients receiving hemodialysis

Cited by 58 publications

References 39 publications

Health care providers’ support of patients’ autonomy, phosphate medication adherence, race and gender in end stage renal disease

Health care providers’ support of patients’ autonomy, phosphate medication adherence, race and gender in end stage renal disease

The Perceived Medical Condition Self-Management Scale can be applied to patients with chronic kidney disease

Kidney Disease Awareness and Knowledge among Survivors ofAcute Kidney Injury

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