Physical Well-Being of Oncology Caregivers: An Important Quality-of-Life Domain

Glajchen, Myra

doi:10.1016/j.soncn.2012.09.005

Cited by 59 publications

(53 citation statements)

References 37 publications

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“…Despite their tremendous burden, caregivers’ emotional, spiritual, and physical needs are often not supported (Braun et al, 2007; Ringdal et al, 2004). Given the significant reciprocal emotional relationship between caregivers and patients, it is imperative to offer caregivers psychosocial and educational support to improve their own QoL and physical and mental health (Glajchen, 2012). Our preliminary data suggest that patients who participated jointly with their informal caregivers demonstrated greater improvement in QoL and reductions in anxiety and depression.…”

Section: Discussionmentioning

confidence: 99%

A Pilot Mobile-Based Mindfulness Intervention for Cancer Patients and Their Informal Caregivers

et al. 2018

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Section: Discussionmentioning

confidence: 99%

A Pilot Mobile-Based Mindfulness Intervention for Cancer Patients and Their Informal Caregivers

et al. 2018

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“…Finally, it is important to note that while our findings and other studies [37] demonstrate the benefits of partner or spousal caregiving, such relationships cannot be relied on for adequate caregiving. Moreover, because patient and caregiver healthcare needs and resources can change, repeated assessment is warranted to plan for appropriate and safe survivorship care [38, 39]. Having a social worker assist in this assessment and provision of support may be an efficient way to connect needs with available resources [36].…”

Section: Discussionmentioning

confidence: 99%

Caregivers as healthcare managers: health management activities, needs, and caregiving relationships for colorectal cancer survivors with ostomies

McMullen

Schneider

Altschuler

et al. 2014

Support Care Cancer

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Purpose While the burdens and rewards of cancer caregiving are well-documented, few studies describe the activities involved in cancer caregiving. We employed a social-ecological perspective to explore the work of cancer caregiving for long-term colorectal cancer (CRC) survivors with ostomies. We focused on healthcare management, defined here as the ways in which informal caregivers participate in healthcare-related activities such as managing medical appointments and information, obtaining prescriptions and supplies, and providing transportation to obtain healthcare services. Methods This ethnographic study included 31 dyads consisting of long-term CRC survivors (>5 years post-surgery) and their primary informal caregivers. Survivors were members of integrated healthcare delivery systems. We interviewed participants using in-depth interviews and followed a subset using ethnographic methods. Medical record data ascertained survivors’ cancer and medical history. Results We classified families into a matrix of healthcare management resources (high vs. low) and survivors’ healthcare needs (high vs. low). We found that patients’ healthcare needs did not always correspond to their caregivers’ management activities. CRC survivors with high needs had more unmet needs when caregivers and survivors differed in the level of caregiver involvement they desired or regarded as optimal. This discrepancy was particularly evident in non-marital relationships. Conclusions As cancer survivors age and grow in number, it becomes increasingly important to understand how informal caregivers support survivors’ well-being. Framing healthcare management as a component of caregiving provides a useful perspective that could facilitate future research and interventions to support survivors, particularly those with significant sequelae from their cancer treatment.

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“…Well-being thus encompasses what it means to be functioning as a healthy person across multiple domains including physical, social, psychological, and emotional domains (Pressman, Kraft, & Bowlin, 2013). Physical well-being reflects an individual's physical functioning such as fatigue, sleep quality, health problems, and self-care behavior such as exercise, nutrition, recreational activities and rest (Glajchen, 2012). Social well-being comprises social support such as feeling cared for and valued as a person as well as social function/adjustment which considers the role of satisfaction with relationships, and performance in social roles (Hahn, Cella, Bode, & Hanrahan, 2010;McDowell & Newell, 1996).…”

Section: Well-beingmentioning

confidence: 99%

How do you feel today? Managing patient emotions during health care experiences to enhance well-being

McColl‐Kennedy

Danaher

Gallan

et al. 2017

Journal of Business Research

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a b s t r a c t a r t i c l e i n f oHealth care customers (patients) experience heightened emotions due to high stakes from risks to life, health, and well-being. Understanding and managing emotions during service experiences is an important area of inquiry because emotions influence customer perceptions, future intentions and behaviors. Yet despite its significance, research focusing on the impact of emotions on customer experiences remains fragmented, lacking a theoretically based conceptual framework. The authors attempt to fill this gap by addressing two important research questions contextualized in health care: (1) How can health care organizations better understand patient and family emotions during health care experiences? and (2) How should health care organizations use this understanding to design and better manage patient experiences to enhance patient well-being? The authors propose a new theoretically based framework on emotional responses following triggering events to enhance outcomes. Recommendations designed to enhance health care customer well-being are provided, as are directions to guide future work.

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Physical Well-Being of Oncology Caregivers: An Important Quality-of-Life Domain

Cited by 59 publications

References 37 publications

A Pilot Mobile-Based Mindfulness Intervention for Cancer Patients and Their Informal Caregivers

A Pilot Mobile-Based Mindfulness Intervention for Cancer Patients and Their Informal Caregivers

Caregivers as healthcare managers: health management activities, needs, and caregiving relationships for colorectal cancer survivors with ostomies

How do you feel today? Managing patient emotions during health care experiences to enhance well-being

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