Pih36 Development of a Specific Questionnaire Assessing the Impact on Parents of an Infant's Bronchiolitis Hospitalization

Lapillonne, Alexandre; Gournay, Véronique; Jb, Gouyon; Moriette, G; Benmedjahed, Khadra; Climens, Aude Roborel de; Arnould, B; Bendjenana, Hakim

doi:10.1016/s1098-3015(10)73903-6

Cited by 2 publications

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“…This disease usually affects infants of less than two years, particularly following preterm birth. The Impact of Bronchiolitis Hospitalization Questionnaire (IBHQ) contains 65 items, which were organized into 8 sections: parent emotional impact, infants' reactions, parent physical reactions, impact on daily organization, siblings' reactions, parent behavior with infant and siblings, impact on couple, and financial consequences [ 44 ]. Of course, not every premature infant is hospitalized for bronchiolitis, but these dimensions might also be adequate to measure the impact on families in case of prematurity in general.…”

Section: Discussionmentioning

confidence: 99%

Measuring economic consequences of preterm birth - Methodological recommendations for the evaluation of personal burden on children and their caregivers

Hodek¹,

2011

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This study aims to identify the impact of a preterm birth on financial and emotional burden from the families' perspective. Additionally, a comprehensive schedule of recommendations for a sufficient evaluation of all aspects of burden is developed. Based on the results of a literature search relevant categories and sub-domains for a questionnaire covering multiple aspects of associated financial and emotional burden are identified and converted into a recommendation scheme. Results of the literature search illustrate the large extend of burden of prematurity on parents. This results in substantial out-of-pocket expenditures (OOPE) and emotional distress to the parents besides the medical problems and further financial costs to the health insurance system. According to the results on infants' state of health, OOPE and emotional distress are significantly increased with decreasing gestational age. OOPE for transportation often amounts to the main parental cost dimension. Moreover there is some evidence for a high magnitude of reduced income and missed work days. The family perspective has to be taken into account when calculating the overall costs of preterm births from a societal point of view. However, in recent years economic evaluations were performed rather inhomogeneously in this field. For future studies a) direct medical costs, b) direct non-medical costs, c) indirect costs as well as d) intangible costs (in terms of emotional distress and reduced quality of life for caregivers and children) are the main categories that should be evaluated measuring personal burden of preterm birth on families adequately. A detailed list of specific sub-domains is given. Additionally, the recommendations are not restricted to application in infants born preterm and/or at low birth weight.

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Section: Discussionmentioning

confidence: 99%

Measuring economic consequences of preterm birth - Methodological recommendations for the evaluation of personal burden on children and their caregivers

Hodek¹,

2011

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“…The IBHQ is a self-administered questionnaire specifically developed to comprehensively assess the impact on parents of their infant hospitalization for bronchiolitis [14,15]. The development process followed a rigorous methodology including systematic literature review and several steps of interviews with both clinicians and parents whose infants have been recently hospitalized for bronchiolitis.…”

Section: Methodsmentioning

confidence: 99%

Impact on parents of bronchiolitis hospitalization of full-term, preterm and congenital heart disease infants

et al. 2012

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BackgroundThe objective of this work was to explore the impact on parents of the bronchiolitis hospitalization of their infant using the Impact of Bronchiolitis Hospitalization Questionnaire (IBHQ©).MethodsFour hundred sixty-three infants aged less than 1 year and hospitalized for bronchiolitis were included in a French observational study during the 2008–2009 season. Parents were asked to complete the IBHQ at hospital discharge and 3 months later. IBHQ scores, ranging from 0 (no impact) to 100 (highest impact), were compared according to gestational age (full-term, 33–36 wGA, ≤ 32 wGA) and the presence of congenital heart disease (CHD). The potential drivers of impact were explored using multivariate linear regressions.ResultsThe study included 332 full-terms, 71 infants born at 33–36 wGA, and 60 at ≤ 32 wGA; 28 infants had a CHD. At hospital discharge, 9 of the 12 IBHQ mean scores were above 40, indicating a marked impact on parents. Three months later, all mean scores were lower but 5 were still greater than 40. At discharge, the length of hospitalization had a significant effect on IBHQ worries and distress, fear for future, guilt and impact on daily organization scores (p<0.01); the parents’ educational level had a significant effect on IBHQ worries and distress, fear for future, impact on daily organization and financial impact scores (p<0.05). The only statistically significant difference found between the parents of preterm and full-term infants was for the physical impact score at discharge (p=0.004).ConclusionsBronchiolitis hospitalization has conspicuous emotional, physical and organizational consequences on parents and siblings, which persist 3 months after hospital discharge. The main drivers of the impact were length of hospital stay and parents’ educational level, while infants’ gestational age or the presence of a CHD had little influence.

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Pih36 Development of a Specific Questionnaire Assessing the Impact on Parents of an Infant's Bronchiolitis Hospitalization

Cited by 2 publications

References 0 publications

Measuring economic consequences of preterm birth - Methodological recommendations for the evaluation of personal burden on children and their caregivers

Measuring economic consequences of preterm birth - Methodological recommendations for the evaluation of personal burden on children and their caregivers

Impact on parents of bronchiolitis hospitalization of full-term, preterm and congenital heart disease infants

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