Pilot investigation into the need and feasibility of a psychoeducation and support group for male caregivers of those with Huntington’s disease

Velissaris, Sarah L; Hosken, Ruth; Gluyas, Cathy

doi:10.1007/s12687-021-00535-2

Cited by 1 publication

(2 citation statements)

References 26 publications

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“…However, there are no dyadic interventions for HD, and limited individual interventions 54 . One pilot group educational intervention conducted by a nurse and clinical psychologist was associated with improvements in emotional distress and caregiver burden 55 …”

Section: Resultsmentioning

confidence: 99%

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Together from the start: A transdiagnostic framework for early dyadic interventions for neurodegenerative diseases

Bannon

Grunberg

Manglani

et al. 2022

J American Geriatrics Society

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Background Neurodegenerative diseases (NDDs) are increasingly prevalent and radically alter the lives of individuals and their informal care partners (together called a dyad). As symptoms progress, dyads are at risk for elevated emotional distress and declines in relationship functioning and quality of life. Psychosocial interventions delivered to dyads early after diagnosis have successfully prevented chronic emotional distress across several chronic illnesses including cancer and acute brain injury. Dyads with NDD could benefit from such interventions, however, they are limited. Because NDDs have symptom profiles that are distinct from other chronic illnesses, they require a unique framework and interventions. Given the limited dyadic interventions and unified symptoms across NDDs, a transdiagnostic framework may help to enhance scalability and efficiency. To address this problem, we developed a transdiagnostic framework that cuts across NDD physical and emotional diagnoses to inform cost‐effective and sustainable NDD dyadic interventions. Methods To develop this framework, we conducted: (1) a narrative review on dyadic adjustment and existent dyadic interventions for those with NDDs, and (2) integrated findings to develop our NDD transdiagnostic framework for dyadic interventions early after diagnosis. Results Findings revealed no existent dyadic interventions for NDDs delivered shortly after diagnosis. Among available interventions, all were delivered later in disease progression, thereby focusing on dyadic challenges at more advanced stages. In addition, although research emphasized the influence of individual, dyadic, and contextual factors on dyads' early adjustment to NDDs, no conceptual model has been developed. Informed by theory and current research, we introduce an NDD transdiagnostic framework for couples' early biopsychosocial adjustment. This framework includes NDD specific: contextual factors, illness‐related factors, individual and dyadic stressors, adaptive coping strategies, and dyads' resources. Conclusions Our NDD transdiagnostic framework can be used to inform early dyadic psychosocial interventions that cut across all NDDs. This approach has important implications for implementation and scalability.

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Section: Resultsmentioning

confidence: 99%

“…54 One pilot group educational intervention conducted by a nurse and clinical psychologist was associated with improvements in emotional distress and caregiver burden. 55…”

Section: Conceptual Models Of Adjustment For Hdmentioning

confidence: 99%