Postmastectomy Information Needs and Information-seeking Motives for Women with Breast Cancer

Latifi, Masoomeh; Salimi, Sohrab; Barahmand, Nilofar; Fahimnia, Fateme; Farsani, Leili Allahbakhshian

doi:10.4103/abr.abr_187_17

Cited by 11 publications

(29 citation statements)

References 22 publications

(30 reference statements)

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“…Three studies reported that patients were concerned about information on prevention, including effectiveness of breast self-examination [ 40 ] in phase 2. Patients reported that they also needed information about prevention for family members [ 30 , 42 , 43 ] during the survivorship stage.…”

Section: Resultsmentioning

confidence: 99%

“…For example, patients wanted to know about internal and external factors (risk factors) before diagnosis in phase 1 [ 36 ] and phase 2 [ 40 ]. Patients also needed information on internal (genetic) [ 42 , 44 ] and external factors (possible carcinogens and environmental triggers) [ 44 ] in the survivorship stage in phase 3.…”

Section: Resultsmentioning

confidence: 99%

“…Patients needing treatment information during the cancer continuum was commonly reported across studies (n=44): 23 studies found that patients needed treatment options while waiting for diagnosis results [ 45 ], shortly after receiving diagnosis results [ 36 , 40 , 51 ], and during the treatment decision process [ 8 , 9 , 26 , 28 , 31 , 32 , 34 , 39 , 40 , 42 , 46 - 48 , 52 - 59 ] such as popularity, advantages and disadvantages, risks, applicability, recovery time, comparison, cost, and optimal time of different treatment options in phase 2. Twelve articles also mentioned that patients wanted to be educated about the side effects of treatment [ 8 , 9 , 25 , 28 , 31 , 36 , 40 , 46 , 56 , 60 ] when considering the treatment decision.…”

Section: Resultsmentioning

confidence: 99%

“…Twelve articles also mentioned that patients wanted to be educated about the side effects of treatment [ 8 , 9 , 25 , 28 , 31 , 36 , 40 , 46 , 56 , 60 ] when considering the treatment decision. The information needs of patients during treatment preparation included details about treatment preparation [ 33 , 42 , 48 , 52 ] and treatment procedures [ 9 , 25 , 28 , 30 , 42 , 46 , 61 , 62 ].…”

Section: Resultsmentioning

confidence: 99%

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Information Needs of Breast Cancer Patients: Theory-Generating Meta-Synthesis

Xie

Gerido

et al. 2020

J Med Internet Res

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Background Breast cancer has become one of the most frequently diagnosed carcinomas and the leading cause of cancer deaths. The substantial growth in the number of breast cancer patients has put great pressure on health services. Meanwhile, the information patients need has increased and become more complicated. Therefore, a comprehensive and in-depth understanding of their information needs is urgently needed to improve the quality of health care. However, previous studies related to the information needs of breast cancer patients have focused on different perspectives and have only contributed to individual results. A systematic review and synthesis of breast cancer patients’ information needs is critical. Objective This paper aims to systematically identify, evaluate, and synthesize existing primary qualitative research on the information needs of breast cancer patients. Methods Web of Science, EBSCO, Scopus, ProQuest, PubMed, PsycINFO, The Cochrane Library, the Cumulative Index to Nursing and Allied Health Literature were searched on February 12 and July 9, 2019, to collect relevant studies. A Google Scholar search, interpersonal network recommendations, and reference chaining were also conducted. Eligible studies included qualitative or mixed-methods studies focusing on the information needs (across the cancer continuum) of breast cancer patients or their social networks. Subsequently, a Critical Appraisals Skills Programme checklist was used to assess the quality of included research. The results, findings, and discussions were extracted. Data analysis was guided by the theory-generating meta-synthesis and grounded theory approach. Results Three themes, 19 categories, and 55 concepts emerged: (1) incentives (physical abnormality, inquiry from others, subjective norm, and problems during appointments); (2) types of information needs (prevention, etiology, diagnosis, clinical manifestation, treatment, prognosis, impact and resumption of normal life, scientific research, and social assistance); (3) moderating variables (attitudes, health literacy, demographic characteristics, disease status, as well as political and cultural environment). The studies revealed that the information needs of breast cancer patients were triggered by different incentives. Subsequently, the patients sought a variety of information among different stages of the cancer journey. Five types of variables were also found to moderate the formation of information needs. Conclusions This study contributes to a thorough model of information needs among breast cancer patients and provides practical suggestions for health and information professionals.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

See 2 more Smart Citations

Information Needs of Breast Cancer Patients: Theory-Generating Meta-Synthesis

Xie

Gerido

et al. 2020

J Med Internet Res

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“…Una mayor malestar con la imagen corporal tras la mastectomía se asocia a una disposición motivacional más favorable hacia la reconstrucción, más motivos a favor de la reconstrucción y menor aceptación del estado actual tras la mastectomía, lo que confirma reportes previos (20,47) y da validez a las escalas. Asimismo, las mujeres con más conflictos con su imagen post-mastectomía son las que se quejan de más falta de información como refleja la correlación positiva entre el CIC y el tercer factor de la EMEC.…”

Section: Discussionunclassified

Propiedades Psicométricas del Cuestionario de Motivos a Favor y en Contra de la Reconstrucción Mamaria

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Ávila

Canónico

et al. 2019

PSIC

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Antecedentes: Aunque la reconstrucción mamaria (RM) tras la mastectomía es una opción estética con buenos resultados, se realiza poco en México. Para estudiar sus razones se creó el Cuestionario de Motivos a favor y en contra de la Reconstrucción Mamaria (CMRM). La de validez de contenido del CMRM ha sido comprobada, pero no otras propiedades psicométricas. Objetivos: determinar su estructura factorial y comprobar su fiabilidad y validez de constructo concurrente. Método: Este estudio instrumental con diseño no experimental de corte transversal usó un muestreo intencional. Se aplicó el CMRM integrado por dos escalas, un cuestionario de imagen corporal y preguntas sobre datos sociodemográficos, clínicos y conducta sexual a 110 mujeres mexicanas mastectomizadas. Resultados: La escala de motivos a favor de la RM del CMRM presentó una estructura unidimensional, consistencia interna excelente y validez convergente. La escala de motivos en contra de la RM presentó una estructura de tres factores: miedos/preocupaciones/costos, aceptación/satisfacción con el estado actual y falta de información. Sus tres factores presentaron consistencia interna y validez convergente y discriminante. La correlación entre ambas escalas fue pequeña, pero la consistencia interna del CMRM fue excelente. La fuerza de asociación del CMRM fue muy fuerte con deseo de RM, media con edad e imagen corporal y pequeña con deseo de conservar la mama, frecuencias de relaciones sexuales antes del diagnóstico, búsqueda de información sobre RM y percepción del estado económico. Fue independiente de escolaridad, etapa del cáncer, tipo de mastectomía y estado civil. Conclusión: el cuestionario es fiable y válido.

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