Posttraumatic Stress Symptoms During Treatment in Parents of Children With Cancer

Kazak, Anne E.; Boeving, Charmayne Alexandra; Alderfer, Melissa A.; Hwang, Wei–Ting; Reilly, Anne

doi:10.1200/jco.2005.09.110

Cited by 247 publications

(271 citation statements)

References 28 publications

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“…As to the sociodemographic variables and morbidities that affect timely and significant statistics, different domains of caregiver burden were: poor or very poor support from the partner, having health problems, greater numbers of children, unemployment, low education level, black skin color, and not receiving help to care for the child / adolescent patient. Numerous studies conducted with caregivers of patients with various chronic diseases (6,7,9,12,16) in different countries, and with a variety of instruments that measure the burden, demonstrated similar findings, that is, caregivers often experience similar situations that cause burden.…”

Section: Resultsmentioning

confidence: 75%

“…These characteristics are similar to those reported in studies involving caregivers of children with cancer conducted in Uberlândia (MG) and recently also in other countries, such as the study of a Children's Hospital -Division of Oncology in Philadelphia (USA), that evaluated the symptoms of parental stress during treatment of children with cancer, and another study involving five oncology centers in Canada (Vancouver, Winnipeg, Ottawa, Toronto and Hamilton), in which the parental impact of caring for a child with cancer was evaluated. (12,13) To receive additional help from other people, for the caregiving, was uncommon in our study (25.6%), possibly because it reflects that 23.7% of primary caregivers were employed or were self-employed and therefore it was not possible for them to assume full care. For those providing all of the care, they did it both day night and still assumed the tasks related to home and the other children, so possibly, there was no spare time to meet personal needs.…”

Section: Resultsmentioning

confidence: 81%

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Sobrecarga e qualidade de vida de cuidadores de criança e adolescentes com câncer em tratamento quimioterápico

et al. 2012

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Objective: To evaluate the burden of care and quality of life (QOL) of caregivers of children/adolescents with cancer during chemotherapy treatment, and to relate them to each other and sociodemographic data. Methods: A transversal study, with 160 caregivers. We collected sociodemographic data, burden of care using the Caregiver Burden Scale and QOL using the SF-36. Results: 88.7% of caregivers were mothers, with the mean age of 34.9 years, overall burden score 2.09 ± 0.04 and the SF-36 scores most compromised were: emotional aspects, vitality, mental health and physical aspects. The regression model accounted for 36.0% of the burden. Conclusion: The QOL of caregivers and burden of care experienced showed compromise in various domains, and these alterations may affect the quality of care provided to children and adolescents, and lead to imbalances in their own health. Keywords: Caregivers; Quality of life; Neoplasms/drug therapy; Child care; Adolescent RESUMOObjetivo: Avaliar a sobrecarga de cuidado e a qualidade de vida (QV) de cuidadores de crianças/adolescentes com câncer durante tratamento quimioterápico e relacioná-las entre si e aos dados sociodemográficos. Métodos: Estudo transversal, com 160 cuidadores. Foram coletados dados sociodemográficos, sobrecarga de cuidado, conforme "Caregiver Burden Scale" e de QV pelo SF-36. Resultados: 88,7% dos cuidadores eram mães, idade média 34,9 anos, escore geral de sobrecarga 2,09±0,04 e escores do SF-36 mais comprometidos: aspectos emocionais, vitalidade, saúde mental e aspectos físicos. O modelo de regressão respondeu 36,0% da sobrecarga. Conclusão: A QV dos cuidadores e sobrecarga de cuidados vivenciada mostram-se comprometidas em diversos domínios, e essas alterações podem afetar a qualidade da assistência prestada às crianças e adolescentes e propiciar desajustes na própria saúde. Descritores: Cuidadores; Qualidade de vida; Neoplasias/quimioterapia; Cuidado da criança; Adolescente RESUMEN Objetivo: Evaluar la sobrecarga del cuidado y la calidad de vida (CV) de cuidadores de niños/adolescentes con cáncer durante el tratamiento quimioterápico y relacionarlas entre sí y a los datos sociodemográficos. Métodos: Estudio transversal, realizado con 160 cuidadores. Fueron recolectados datos sociodemográficos, sobrecarga de cuidado, conforme "Caregiver Burden Scale" y de CV por el SF-36. Resultados: 88,7% de los cuidadores eran madres, edad promedio 34,9 años, scores general de sobrecarga 2,09±0,04 y scores del SF-36 más comprometidos: aspectos emocionales, vitalidad, salud mental y aspectos físicos. El modelo de regresión respondió a 36,0% de la sobrecarga. Conclusión: La CV de los cuidadores y sobrecarga de cuidados vivenciada se muestran comprometidas en diversos dominios, y esas alteraciones pueden afectar a la calidad de la asistencia prestada a los niños y adolescentes, propiciando desajustes en la propia salud. Descriptores: Cuidadores; Calidad de vida; Neoplasias/quimioterapia; Cuidado del niño; Adolescente

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Section: Resultsmentioning

confidence: 75%

Section: Resultsmentioning

confidence: 81%

Sobrecarga e qualidade de vida de cuidadores de criança e adolescentes com câncer em tratamento quimioterápico

et al. 2012

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“…About half of parents report moderate to intense levels of posttraumatic stress, including intrusive thoughts, treatment avoidance, physiological responses, flashbacks and psychological agitation (Kazak, Boeving, Alderfer, Hwang, & Reilly, 2005;Santacroce, 2002;Vrijmoet-Wiersma et al, 2008). On the other hand, the work of Jurbergs, Long, Ticona e Phipps (2009) does not report significant differences in posttraumatic stress symptoms between parents of children undergoing treatment and symptoms in parents of healthy children.…”

Section: Psychosocial Distressmentioning

confidence: 99%

“…Up to the end of the first year after diagnosis, the family routine tends to return to normal as the family resumes activities and reorganizes domestic life (Boman et al, 2003;Earle et al, 2006;Kazak et al, 2005). It may be difficult to resume activities that have changed, especially if psychological disturbances such as anxiety, depression, and posttraumatic stress were experienced (Clarke & Fletcher, 2004.…”

Section: Final Considerationsmentioning

confidence: 99%

Impacto psicossocial do câncer pediátrico para pais: revisão da literatura

Kohlsdorf

Costa

2012

Paidéia (Ribeirão Preto)

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A diagnosis of childhood cancer represents challenges for patients, family members, and health workers. The parents of a child or adolescent have to play an expanded role because they need to reconcile parental tasks and treatment demands. This study presents an integrative literature review concerning difficulties experienced by pediatric caregivers during onco-hematological treatment. The CAPES periodicals portal and the Scientific Library Online (SciELO) were searched for papers published between 1999 and 2009. Relevant themes are highlighted in Brazilian and international studies published in the field, such as psychological disorders experienced by caregivers, the professional and financial impact associated with treatment, changes in educative practices and family dynamics, and the influence of cultural practices on the experience of treatment. Suggestions for further research are presented to support efficient psychosocial interventions and minimize the psychosocial costs experienced by pediatric caregivers over the course of onco-hematological treatments.Keywords: Childhood Cancer, Caregivers, Children, Psycho-oncology. Impacto Psicossocial do Câncer Pediátrico para Pais: Revisão da LiteraturaResumo: O diagnóstico de câncer infantil representa desafios para pacientes, familiares e profissionais de saúde. Os pais de uma criança ou adolescente em tratamento têm seu papel estendido, pois precisam administrar práticas parentais e exigências do tratamento. Este artigo objetiva realizar revisão integrativa da literatura relacionada a dificuldades vivenciadas pelos cuidadores pediátricos durante tratamento onco-hematológico. Foi realizada revisão da literatura publicada entre 1999 e 2009, a partir da busca em bases de dados Portal de Periódicos CAPES e Scientific Library Online (SciELO). Com base na literatura nacional e internacional recentemente publicada na área destacam-se temas importantes, como perturbações psicológicas vivenciadas pelos cuidadores, impacto profissional e financeiro associado ao tratamento, mudanças em práticas educativas, alterações na dinâmica familiar e influência de práticas culturais na vivência do tratamento. São apresentadas sugestões para pesquisas que possam subsidiar intervenções psicossociais eficientes para diminuir custos psicossociais vivenciados por cuidadores pediátricos ao longo do tratamento onco-hematológico. Palavras-chave:Câncer em Crianças, Cuidadores, Crianças, Psico-oncologia. Impacto Psicosocial del Cáncer en la Infancia para Padres: Revisión de la LiteraturaResumen: El diagnóstico del cáncer en la infancia es desafío para enfermos, familia y profesionales Hoekstra de salud. Los padres del niño o adolescente en tratamiento tienen su papel extendido y necesitan asociar prácticas de paternidad a exigencias del tratamiento. Constituí objetivo de este artículo realizar revisión integrativa de literatura, con atención para dificultades vivenciadas por cuidadores pediátricos en tratamiento onco-hematológico. Fue realizada busca en la literatura publicada entre...

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“…The prospect of another demanding but potentially life saving treatment such as SCT may increase their distress. 2 This investigation focused on maternal and paternal psychological distress before, and 1 and 2 years after a child undergoes SCT.…”

Section: Introductionmentioning

confidence: 99%

Differences in mothers’ and fathers’ psychological distress after pediatric SCT: a longitudinal study

Barrera

Atenafu

Doyle

et al. 2011

Bone Marrow Transplant

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The purpose of this study was to examine longitudinally psychological distress and its correlates in mothers and fathers of children who undergo SCT, up to 2 years post SCT. A total of 111 parents of patients diagnosed mainly with leukemia completed standardized measures of depression and anxiety symptoms as indicators of psychological distress, 85 at 1 year pre-SCT and 81 at 2 years post SCT. Parents' age and gender, child's age, diagnosis, radiation history, behavior and physical health were examined as potential related factors. Linear mixed models for repeated measures with appropriate covariance structure were used in the analysis. Depression and anxiety scores significantly decreased by 2 years for mothers and fathers. Mothers reported significantly more depression symptoms than did fathers, but reported comparable symptoms of anxiety. Pre-SCT depression and anxiety scores, mother's age (younger), child's behavior problems, radiation history and diagnosis of neuroblastoma predicted maternal distress 2 years post SCT; pre-SCT depression and anxiety scores, father's age (older) and child's diagnosis predicted father's distress. This study highlights differences and similarities in mothers' and fathers' psychological distress and identifies related risk factors. The results can guide interventions for mothers and fathers whose children undergo SCT based on their pre-SCT psychosocial risk.

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Posttraumatic Stress Symptoms During Treatment in Parents of Children With Cancer

Cited by 247 publications

References 28 publications

Sobrecarga e qualidade de vida de cuidadores de criança e adolescentes com câncer em tratamento quimioterápico

Sobrecarga e qualidade de vida de cuidadores de criança e adolescentes com câncer em tratamento quimioterápico

Impacto psicossocial do câncer pediátrico para pais: revisão da literatura

Differences in mothers’ and fathers’ psychological distress after pediatric SCT: a longitudinal study

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