Privacy and Freedom

Laughlin,; Stanley, Karlyn D.

doi:10.2307/1287193

Cited by 33 publications

(35 citation statements)

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“…However, a dearth of studies concentrating on professional health care knowledge sharing between doctors and patients remains [25]. Moreover, although studies have explored the positive impact of privacy protection mechanisms on patients' OHC participation intentions and continuous use intentions [16,21], privacy protection is also a double-edged sword [26] for professional health care knowledge sharing. Doctors' privacy protection settings in OHCs regarding patients' personal health care information will increase patient trust and promote knowledge sharing.…”

Section: Objectives and Research Questionsmentioning

confidence: 99%

Privacy Protection in Online Health Communities: Natural Experimental Empirical Study

2020

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Background An online health community (OHC) is a novel sharing channel through which doctors share professional health care knowledge with patients. While doctors have the authority to protect their patients’ privacy in OHCs, we have limited information on how doctors’ privacy protection choices affect their professional health care knowledge sharing with patients. Objective We examined the relationship between privacy protection and professional health care knowledge sharing in OHCs. Specifically, we examined the effects of privacy protection settings in an OHC on doctors’ interactive professional health care knowledge sharing and searching professional health care knowledge sharing (two dimensions of professional health care knowledge sharing). Moreover, we explored how such effects differ across different levels of disease stigma. Methods We collected the monthly panel data of 19,456 doctors from Good Doctor, one of the largest OHCs in China, from January 2008 to April 2016. A natural experimental empirical study with difference-in-difference analysis was conducted to test our hypotheses. The time fixed effect and the individual fixed effect were both considered to better identify the effects of a privacy protection setting on professional health care knowledge sharing. Additionally, a cross-sectional analysis was performed for a robust check. Results The results indicate that the privacy protection setting has a significant positive effect on interactive professional health care knowledge sharing (β=.123, P<.001). However, the privacy protection setting has a significant negative effect on searching professional health care knowledge sharing (β=–.225, P=.05). Moreover, we found that high disease stigma positively impacts the effect of privacy protection on interactive professional health care knowledge sharing (coefficients are in the same valence) and negatively impacts the effects of privacy protection on searching professional health care knowledge sharing (coefficients are in the reverse valence). Conclusions Privacy protection has a bilateral effect on professional health care knowledge sharing (ie, a positive effect on interactive professional health care knowledge sharing and a negative effect on searching professional health care knowledge sharing). Such bilateral switches of professional health care knowledge sharing call for a balanced state in conjunction with practical implications. This research also identifies a moderate effect of disease stigma on privacy protection settings and professional health care knowledge sharing.

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Section: Objectives and Research Questionsmentioning

confidence: 99%

Privacy Protection in Online Health Communities: Natural Experimental Empirical Study

2020

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“…Their results give a hint that different user types have different ideas about their PPA. Following up on this, in research question RQ2, we investigate how different user groups imagine their PPA and identify two user groups (Pragmatists and Fundamentalists) which follow Westin's privacy classification [29,57].…”

Section: Personal Privacy Assistants (Ppas)mentioning

confidence: 99%

“…• Select Profile: The PPA presents profiles to the users to choose from [5]. These profiles can be based on Westin's personas (Fundamentalist, Pragmatist, and Unconcerned) [29,57]. • Notifications: The PPA provides the users with fictitious notifications with decision-making options to determine their preference [34].…”

Section: Preference Learning Of the Ppamentioning

confidence: 99%

Investigating how Users Imagine their Personal Privacy Assistant

Stöver

Hahn

Kretschmer

et al. 2023

PoPETs

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Personal Privacy Assistants (PPAs) can support users in managing their privacy. Conducting a user study, we provide qualitative and quantitative insights into how users imagine their PPA and how PPAs designs can appear for different user groups. We highlight five aspects derived from the literature that are essential when designing a PPA: What features should the PPA have? How should the PPA learn the users’ preferences? What level of user involvement in its decisions should the PPAs have? Which vendor should offer the PPA? What data are users willing to disclose to their PPA? Our results provide a holistic view of user perceptions of PPAs. We identify two user groups that differ in their characteristics, such as technology affinity and privacy concerns, and have different ideas of a PPA in terms of automation level and provider, for example. We discuss our results in relation to the literature and derive recommendations for designing PPAs to fulfill user needs.

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“…Usable privacy research already includes privacy persona approaches [5,14,24,48]. However, these differ from our approach in two respects.…”

Section: Comparison To Related Workmentioning

confidence: 99%

“…However, these differ from our approach in two respects. On the one hand, existing concepts are not concerned with the abstract representation of users but rather with the classification of users, e. g., according to their privacy concerns, as by Westin [24,48]. Furthermore, existing approaches focus on end users and their privacy motivation, knowledge, or concerns [5,14,24,48].…”

Section: Comparison To Related Workmentioning

confidence: 99%

How Website Owners Face Privacy Issues: Thematic Analysis of Responses from a Covert Notification Study Reveals Diverse Circumstances and Challenges

Stöver

Gerber

Pridöhl

et al. 2023

PoPETs

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Many websites contain services from third parties. Misconfigurations of these services can lead to missing compliance with legal obligations and privacy risks for website users. Previous research indicates that one cause for such privacy issues is missing awareness. However, reasons for the missing awareness and other reasons for the prevalence of privacy issues are not widely researched; that includes website owners’ dealing with those issues. To shed light on the issue, we analyze 1043 responses from website owners to a notification about a privacy issue on their website using thematic analysis, following an exploratory and qualitative approach. Our analysis shows that, next to unawareness of the issue, incorrect technical implementation and ambiguous responsibilities are among the reasons for privacy issues. Also, website owners face different challenges, such as a lack of knowledge or slow organizational coordination and processes. In addition, our results show that the circumstances in which they operate their website influences how they act and what challenges they face. To illustrate these differences in website owners, we derive three personas from our thematic analysis: (1) the Ignorant Hobbyist, (2) the Busy Self-Employed, and (3) the Informed Multi-Stakeholder. These personas cover the majority of the aspects of the analyzed responses and represent the diversity of website owners and their backgrounds. Given the challenges and backgrounds of website owners, we discuss which prerequisites must be fulfilled to remediate privacy issues on websites. Finally, we present measures that support website owners in remediating privacy issues and show how to adapt these measures to the needs of different website owners. We hope that better support for website owners will also lead to better privacy for website visitors.

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Privacy and Freedom

Cited by 33 publications

References 0 publications

Privacy Protection in Online Health Communities: Natural Experimental Empirical Study

Privacy Protection in Online Health Communities: Natural Experimental Empirical Study

Investigating how Users Imagine their Personal Privacy Assistant

How Website Owners Face Privacy Issues: Thematic Analysis of Responses from a Covert Notification Study Reveals Diverse Circumstances and Challenges

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