Programa de atención social domiciliaria sobre la atención a los cuidados paliativos en el País Vasco. Experiencia Saiatu

Ros, Jesús Millas; Hasson, Naomi; Pérez, Matxalen Aguiló; Orobengoa, Izaskun Lasagabaster; Gorostegui, Eider Muro; Iturralde, Olatz Romero

doi:10.1016/j.medipa.2013.02.007

Cited by 7 publications

(2 citation statements)

References 12 publications

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“…Regarding the activities that the palliative care team performed, symptom control was perceived as the most useful and effective, consistent with the published literature [20][21][22] . Interventions focusing on psychological, social and family problems were very rare, as was the use of assessment tools that facilitate care in complex situations.…”

Section: Discussionsupporting

confidence: 84%

Las visitas de equipos de cuidados paleativos. Estudio cualitativo mediante observación participante

et al. 2016

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Objectives: To describe the clinical encounters that occur when a palliative care team provides patient care and the features that influence these encounters and indicate whether they are favorable or unfavorable depending on the expectations and feelings of the various participants. Methods: A qualitative case study conducted via participant observation. A total of 12 observations of the meetings of palliative care teams with patients and families in different settings (home, hospital and consultation room) were performed. The visits were follow-up or first visits, either scheduled or on demand. Content analysis of the observation was performed. Results: The analysis showed the normal follow-up activity of the palliative care unit that was focused on controlling symptoms, sharing information and providing advice on therapeutic regimens and care. The environment appeared to condition the patients' expressions and the type of patient relationship. Favorable clinical encounter conditions included kindness and gratitude. Unfavorable conditions were deterioration caused by approaching death, unrealistic family objectives and limited resources. Conclusion: Home visits from basic palliative care teams play an important role in patient and family well-being. The visits seem to focus on controlling symptoms and are conditioned by available resources.

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Section: Discussionsupporting

confidence: 84%

Las visitas de equipos de cuidados paleativos. Estudio cualitativo mediante observación participante

et al. 2016

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“…The social needs and problems present at the end of life and the speed with which they arise explain the extraordinary vulnerability of ill people and their carers (Millas Ros et al, 2013). Both have to cope, in one way or another, with economic (meeting the cost of technical aids or home adaptations), emotional (receiving information about the diagnosis and prognosis of the illness, making decisions regarding last wishes), practical (learning to provide particular care), and other highly demanding requirements which have a significant effect in terms of psychosocial discomfort and emotional repercussions (Carolan et al, 2015).…”

Section: Introductionmentioning

confidence: 99%

Social work at the end of life: Humanization of the process

Prieto-Lobato,

De la Rosa-Gimeno,

Rodríguez-Sumaza

et al. 2023

Journal of Social Work

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This article examines the role of social workers involved in a pilot home care project undertaken to attend to the social needs of people at the end of their lives and their carers. Mixed methods approach and evidence-based, constructivist, and comprehensive evaluation were chosen to achieve this aim. Analyses are based on 235 responses from a survey addressed to professionals working in the project, 22 in-depth interviews with a selected group of these professionals, and 114 semi-structured interviews with the sick people and their caregivers. The analysis of the data has considered the theoretical development and professional experience systematized in the Spanish and international literature on social work in end-of-life care. The results highlight the relevance that professionals, patients, and carers attribute to social care at the end of life and to the role, skills, and qualities of social workers. Their contribution has been valued in terms of the management of services and supports (speed, availability, kindness, sensitivity), the establishment of teamwork (coordination, facilitation), and the recognition of the basic principles of the care process (individualization, respect for privacy, confidentiality). Findings demonstrate that social work is a profession well placed to help in the recognition of people's dignity at the end of life, in the exercise of their self-determination, and in the humanization of the care process. Some challenges facing consolidation of this professional practice are also indicated within a framework constrained by a predominantly biomedical culture.

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