Project PLACE: Enhancing community and academic partnerships to describe and address health disparities

Barrett, Nadine; Ingraham, Kearston L.; Bethea, Kenisha; Hwa-Lin, Pao; Chirinos, Maritza; Fish, Laura J.; Randolph, Schenita D.; Zhang, Ping; Harvey, Demetrius; Godbee, Ronald; Patierno, Steven R.

doi:10.1016/bs.acr.2020.01.009

Cited by 16 publications

(14 citation statements)

References 38 publications

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“…Community partners received stipends (US $10 per survey, up to US $2000) for their collaboration. Survey participants were offered items valued at US $5 or less (eg, water bottle and tote bag) for their participation [ 43 ].…”

Section: Methodsmentioning

confidence: 99%

Association of Smartphone Ownership and Internet Use With Markers of Health Literacy and Access: Cross-sectional Survey Study of Perspectives From Project PLACE (Population Level Approaches to Cancer Elimination)

Oshima¹,

Tait²,

Thomas³

et al. 2021

J Med Internet Res

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Background Telehealth is an increasingly important component of health care delivery in response to the COVID-19 pandemic. However, well-documented disparities persist in the use of digital technologies. Objective This study aims to describe smartphone and internet use within a diverse sample, to assess the association of smartphone and internet use with markers of health literacy and health access, and to identify the mediating factors in these relationships. Methods Surveys were distributed to a targeted sample designed to oversample historically underserved communities from April 2017 to December 2017. Multivariate logistic regression was used to estimate the association of internet and smartphone use with outcomes describing health care access and markers of health literacy for the total cohort and after stratifying by personal history of cancer. Health care access was captured using multiple variables, including the ability to obtain medical care when needed. Markers of health literacy included self-reported confidence in obtaining health information. Results Of the 2149 participants, 1319 (61.38%) were women, 655 (30.48%) were non-Hispanic White, and 666 (30.99%) were non-Hispanic Black. The median age was 51 years (IQR 38-65). Most respondents reported using the internet (1921/2149, 89.39%) and owning a smartphone (1800/2149, 83.76%). Compared with the respondents with smartphone or internet access, those without smartphone or internet access were more likely to report that a doctor was their most recent source of health information (344/1800, 19.11% vs 116/349, 33.2% for smartphone and 380/1921, 19.78% vs 80/228, 35.1% for internet, respectively; both P<.001). Internet use was associated with having looked for information on health topics from any source (odds ratio [OR] 3.81, 95% CI 2.53-5.75) and confidence in obtaining health information when needed (OR 1.83, 95% CI 1.00-3.34) compared with noninternet users. Smartphone owners had lower odds of being unable to obtain needed medical care (OR 0.62, 95% CI 0.40-0.95) than nonsmartphone owners. Among participants with a prior history of cancer, smartphone ownership was significantly associated with higher odds of confidence in ability to obtain needed health information (OR 5.63, 95% CI 1.05-30.23) and lower odds of inability to obtain needed medical care (OR 0.17, 95% CI 0.06-0.47), although these associations were not significant among participants without a prior history of cancer. Conclusions We describe widespread use of digital technologies in a community-based cohort, although disparities persist. In this cohort, smartphone ownership was significantly associated with ability to obtain needed medical care, suggesting that the use of smartphone technology may play a role in increasing health care access. Similarly, major illnesses such as cancer have the potential to amplify health engagement. Finally, special emphasis must be placed on reaching patient populations with limited digital access, so these patients are not further disadvantaged in the new age of telehealth.

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Section: Methodsmentioning

confidence: 99%

Association of Smartphone Ownership and Internet Use With Markers of Health Literacy and Access: Cross-sectional Survey Study of Perspectives From Project PLACE (Population Level Approaches to Cancer Elimination)

Oshima¹,

Tait²,

Thomas³

et al. 2021

J Med Internet Res

View full text Add to dashboard Cite

show abstract

“…To provide access to racial/ethnic minority groups living in rural areas, partnerships and community outreach are key in this regard 24,25 . Better management and assignment of catchment areas for designated cancer centers could help tailor such outreach activities 26 .…”

Section: What Can We Do About It?mentioning

confidence: 99%

“…Participation in clinical trials itself may ameliorate observed disparities in cancer outcomes, because clinical trials can provide access to evidence‐based medicines 58,59 . Achieving cancer health equity through optimizing diversity in clinical trials is a national and global imperative, and everyone has a role to play 24,36,60 …”

Section: What Can We Do About It?mentioning

confidence: 99%

“…To provide access to racial/ethnic minority groups living in rural areas, partnerships and community outreach are key in this regard. 24,25 Better management and assignment of catchment areas for designated cancer centers could help tailor such outreach activities. 26 Operational frameworks and allocated resources have already been set in place at many cancer centers of excellence in the United States who report racial/ethnic minority research inclusion rates of up to 50%, and these serve as a great example for the right path forward.…”

Section: Optimizing Patients' Access To Clinical Trials In the Communitymentioning

confidence: 99%

“…58,59 Achieving cancer health equity through optimizing diversity in clinical trials is a national and global imperative, and everyone has a role to play. 24,36,60…”

Section: Uniform Reporting Of Study Outcomesmentioning

confidence: 99%

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Addressing racial/ethnic disparities in cancer clinical trials: Everyone has a role to play

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Reimagining diversity in multiple myeloma clinical trials

Habr

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2022

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Multiple myeloma is primarily a disease of the elderly with a median age at diagnosis of around 66-70 years. It is now also established that it disproportionately impacts ethnic/racial (hereafter referred to as ethnic) minority groups in both incidence and outcome. [1][2][3][4] For instance, monoclonal gammopathy of unknown significance and multiple myeloma tend to occur twice as frequently in African Americans compared to European Americans. 5 Improvements in multiple myeloma survival with the advent of novel therapies are also less apparent in ethnic minority groups, especially in the older patient population. 3,5,6 Such ethnic differences in the burden of multiple myeloma cannot be solely attributed to socioeconomic factors and variations in access to care, but may likely also be associated with underlying genetic and biologic differences. 14 To further complicate the picture, elderly patients and ethnic minority groups continue to be underrepresented in cancer clinical trials in general, and multiple myeloma studies in specific. [7][8][9][10][11][12][13][14] In a recent review of 112,293 patients recruited in 230 oncology trials that led to FDA approvals in the last decade, only 3.1% of patients were blacks and 6.1% were Hispanics (compared to 76.3% whites). This represented no more than 22% and 44% of their expected representation if compared to their proportion of US cancer incidence, respectively. 11 The enrollment-incidence disparity for multiple myeloma was second highest among all cancers in blacks and Hispanics, with an enrollment to incidence ratio (i.e., number of those enrolled over those "expected" to be enrolled based on disease incidence across ethnic groups) of 21% for blacks and 4% for Hispanics. 11 The enrollment-mortality disparity was equally high. 11 Another pooled analysis of 2896 patients from nineThis is an open access article under the terms of the Creative Commons Attribution-NonCommercial-NoDerivs License, which permits use and distribution in any medium, provided the original work is properly cited, the use is non-commercial and no modifications or adaptations are made.

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Project PLACE: Enhancing community and academic partnerships to describe and address health disparities

Cited by 16 publications

References 38 publications

Association of Smartphone Ownership and Internet Use With Markers of Health Literacy and Access: Cross-sectional Survey Study of Perspectives From Project PLACE (Population Level Approaches to Cancer Elimination)

Association of Smartphone Ownership and Internet Use With Markers of Health Literacy and Access: Cross-sectional Survey Study of Perspectives From Project PLACE (Population Level Approaches to Cancer Elimination)

Addressing racial/ethnic disparities in cancer clinical trials: Everyone has a role to play

Reimagining diversity in multiple myeloma clinical trials

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