PROTOCOL: Personal Budgeting Interventions to Improve Health and Social Care Outcomes for People with a Disability: A Systematic Review

Fleming, Pádraic; Furlong, Mairéad; McGilloway, Sinéad; Keogh, Fiona; Hernon, Marian; Stainton, Tim

doi:10.1002/cl2.167

Cited by 6 publications

(4 citation statements)

References 30 publications

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“…In line with the study protocol (Fleming, Furlong, et al, 2016), ten academic databases and nine other grey literature databases/search engines were utilized. The terms used to customize the search string for specific databases were based on the 'population' and 'intervention' of interest.…”

Section: Search Methodsmentioning

confidence: 99%

Individualized funding interventions to improve health and social care outcomes for people with a disability: A mixed‐methods systematic review

Fleming

McGilloway

Hernon

et al. 2019

Campbell Systematic Reviews

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1 | PLAIN LANGUAGE SUMMARY 1.1 | Individualized funding has positive effects on health and social care outcomes Individualized funding provides personal budgets for people with disabilities, to increase independence and quality of life. The approach has consistently positive effects on overall satisfaction, with some evidence also of improvements in quality of life and sense of security. There may also be fewer adverse effects. Despite implementation challenges, recipients generally prefer this intervention to traditional supports. | What is this review about?Individualized funding is an umbrella term for disability supports funded on an individual basis. It aims to facilitate self-direction, empowerment, independence and self-determination. This review examines the effects and experiences of individualized funding. What is the aim of this review?This Campbell systematic review examines the effects of individualized funding on a range of health and social care outcomes. It also presents evidence on the experiences of people with a disability, their paid and unpaid supports and implementation successes and challenges from the perspective of both funding and support organizations.

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Section: Search Methodsmentioning

confidence: 99%

Individualized funding interventions to improve health and social care outcomes for people with a disability: A mixed‐methods systematic review

Fleming

McGilloway

Hernon

et al. 2019

Campbell Systematic Reviews

Self Cite

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“…After removing duplicate records, both lead authors simultaneously screened the results by reading every title and abstract/executive summary to identify eligible studies. As existing studies have reviewed the literature on the provision of budgets to specific populations including people with disabilities or mental health issues (Carter Anand et al., ; Fleming, Furlong, McGilloway, Keogh, & Hernon, ; Webber et al., ), we focussed the review to capture studies concentrating on substance use. Thus, studies were included for full review if they: (a) reported empirical data regarding staff experiences of implementing and delivering PB initiatives with drug and alcohol users and/or drug and alcohol users’ experiences of receiving PB initiatives; (b) were published in the English language and; (c) were published since 1990.…”

Section: Methodsmentioning

confidence: 99%

Implementing and delivering personalised budgets for drug and alcohol users: A narrative systematic review

Tompkins

Parkman

Pothecary

2018

Health Soc Care Community

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Personalised budgets have historically been provided to groups of people with varying long-term health and social care needs. Since 2010, there has been increasing interest in providing personal budgets (PBs) to individuals with a history of drug and alcohol use in the UK, reflecting the policy and practice shift towards whole person recovery from substance use. However, information on implementing, delivering, and receiving such initiatives with this group is limited. This systematic review was conducted to identify and collate the existing experiences of providing personalised budgets to drug and alcohol users. Between March and April 2017, we searched six electronic and 11 grey literature databases for English language studies published between 1990 and April 2017 which described the implementation and delivery of personalised budget initiatives with drug and alcohol users. Search results (n = 6,749) were screened against inclusion and exclusion criteria; six records met the inclusion criteria. Across the studies, staff reported specific moral, ethical, and practical issues which affected the implementation and delivery of personalised budgets to drug and alcohol users. Staff working with drug and alcohol users with PBs reported greater job satisfaction due to having greater flexibility and autonomy but they had increased workloads and additional responsibilities beyond their remit and training. Drug and alcohol users' experiences of receiving personalised budgets included varying levels of awareness, knowledge, and control of their budgets, and difficulties in understanding what the budgets could be used for. Nevertheless, personalised budgets had been used to purchase various services and items beyond traditional drug and alcohol treatment. Outcomes for drug and alcohol users included reduced drug use, improved relationships, improved mental and physical well-being, and better daily structure. Although the review suggests that providing personalised budgets to drug and alcohol users presents unique implementation and delivery challenges, these were not insurmountable.

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“…The review sought to focus on 'initial implementation' as described by Fixsen, Naoom, Blase, Friedman, and Wallace, as it is often the most challenging stage of implementation, requiring ongoing and multi-level change (e.g., individual, environmental, and organisational), before the next stage (full operation) can be successfully initiated [11]. This work was conducted in accordance with Campbell Collaboration guidelines [12].…”

Section: Introductionmentioning

confidence: 99%

Individualised Funding: A Realist Analysis to Identify the Causal Factors That Facilitate Positive Outcomes

2021

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There is growing interest, internationally, in empowering people with disabilities, and the United Nations have identified individualised funding as one way in which empowerment might be achieved. ‘Individualised funding’ is an umbrella term for various publicly funded support structures that provide personalised and individualised support services for people with a disability. These aim to facilitate self-direction, empowerment, independence, and self-determination. The findings of a recent mixed-methods systematic review of studies undertaken during an approximate 25-year period suggest positive effects with respect to quality of life, client satisfaction, and safety, as well as very few adverse effects, although the evidence on cost-effectiveness was inconclusive. This paper involved a re-examination of the qualitative findings of that review by employing a realist framework to explore the interplay between key contexts and mechanisms, and how these facilitate or inhibit positive outcomes associated with individualised funding and its underlying programme theory.

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PROTOCOL: Personal Budgeting Interventions to Improve Health and Social Care Outcomes for People with a Disability: A Systematic Review

Cited by 6 publications

References 30 publications

Individualized funding interventions to improve health and social care outcomes for people with a disability: A mixed‐methods systematic review

Individualized funding interventions to improve health and social care outcomes for people with a disability: A mixed‐methods systematic review

Implementing and delivering personalised budgets for drug and alcohol users: A narrative systematic review

Individualised Funding: A Realist Analysis to Identify the Causal Factors That Facilitate Positive Outcomes

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