Provider perspectives on the management of hidradenitis suppurativa in pregnancy – A survey study

Collier, Erin K.; Price, Kyla N.; Grogan, Tristan; Fernandez, Jennifer M.; Seivright, Justine; Alhusayen, Raed; Alavi, Afsáneh; Hamzavi, Iltefat; Lowes, Michelle A.; Porter, Martina L.; Shi, Vivian Y.; Hsiao, Jennifer L.

doi:10.1016/j.ijwd.2020.12.002

Cited by 5 publications

(4 citation statements)

References 5 publications

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“…33 On other hand, research has shown that healthcare providers with greater experience (HS specialty directors) feel more comfortable handling pregnant patients with HS, including prescribing medications and performing surgical interventions. 34 Support groups can help HS patients form relationships with people sharing similar experiences and exchange thoughts and sentiments in a safe environment. 2 Taking gender differences into account when treating patients has been gaining ground over recent years.…”

Section: Discussionmentioning

confidence: 99%

Quality-of-life endpoints in women of childbearing age with hidradenitis suppurativa: a tertiary-care-centre-based study

Tsentemeidou

Sotiriou

Bakirtzi

et al. 2022

Preprint

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Hidradenitis suppurativa (HS) principally affects women of childbearing age, who face gender-specific challenges, with lower life-quality than men. To investigate various quality-of-life endpoints in women of childbearing age with HS. A cross-sectional questionnaire-based study was performed at a university dermatology department. Eighteen yes/no and one open-ended questions explored impact of HS on social life, sexual life, family planning, working life and healthcare-backed support. Ninety-six women were included. Most women (80.8%) carry a stigma because of HS, which also affects their choice of clothes and social relationships. Sexual impairment affects 73.1% of women. One third of women wants less or no children because of HS, 67.7% worry about its impact on pregnancy, birth and the postpartum, and 84.6% worry about the impact of HS treatment on fertility and their babies’ health. Almost 43% fear losing their job because of HS, 34.4% are discriminated against at work and 33.3% state HS has hindered their career. Most women are not adequately informed about their disease or available support groups/material and 41.7% have not received good enough care through pregnancy/postpartum. Life-quality endpoints should be meticulously screened in women. Multidisciplinary-led treatment should be offered during pregnancy and the postpartum.

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Section: Discussionmentioning

confidence: 99%

Quality-of-life endpoints in women of childbearing age with hidradenitis suppurativa: a tertiary-care-centre-based study

Tsentemeidou

Sotiriou

Bakirtzi

et al. 2022

Preprint

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“…Several studies have suggested perimenstrual flaring in HS. It has been reported that between 43% and 63% of women experience worsening of their HS around the time of menstruation ( Collier et al, 2020a ; Riis et al, 2016 ). Within this group of women who experience perimenstrual flaring, 78.9% reported that a flare in their HS would occur within the week preceding their menses, 18.9% experienced a flare during menses, and 2.3% experienced a flare after menses ( Collier et al, 2020a ).…”

Section: Perimenstrual Hidradenitis Suppurativa Flaresmentioning

confidence: 99%

“…It has been reported that between 43% and 63% of women experience worsening of their HS around the time of menstruation ( Collier et al, 2020a ; Riis et al, 2016 ). Within this group of women who experience perimenstrual flaring, 78.9% reported that a flare in their HS would occur within the week preceding their menses, 18.9% experienced a flare during menses, and 2.3% experienced a flare after menses ( Collier et al, 2020a ). This study also found a significantly higher rate of menstrual acne flares in women with menstrual HS flares compared with those without menstrual HS flares, with 71.7% reporting a flare of their acne during the perimenstrual period ( Collier et al, 2020a ).…”

Section: Perimenstrual Hidradenitis Suppurativa Flaresmentioning

confidence: 99%

Clinical considerations in the management of hidradenitis suppurativa in women

Kozera

Lowes

Hsiao

et al. 2021

International Journal of Women's Dermatology

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Hidradenitis suppurativa (HS) is a chronic, inflammatory disease of the skin with a predilection for women. The role of sex hormones, including estrogen and progesterone, is incompletely understood, but alterations in hormone levels may play a role in disease activity for many patients. Specific clinical considerations should be made for women with HS, particularly in the setting of pregnancy, childbirth, breastfeeding, and menopause. Current knowledge gaps regarding HS include the cumulative impact of disease across an individual's lifespan, as well as the mechanistic role of sex hormones in the disease. An improved understanding of the pathophysiologic role of hormones in HS would optimize our ability to use targeted therapies for hormonally driven disease. Psychological and psychosexual support for women with HS is an important facet of any holistic management strategy for the disease. This article integrates up-to-date pathogenic and mechanistic insights with evidence-based clinical management to optimize care for women with HS.

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“…al, 2020 ). However, more than half of patients who had Cesarean sections reported new HS lesions in the incision scar Collier et al, 2021 . Thus, women of childbearing age with HS will be better served by anticipatory counseling and further investigation to explore the consequences of delivery methods.…”

mentioning

confidence: 99%

Shedding light on the impact of hidradenitis suppurativa on women and their families: A focus of the International Journal of Women's Dermatology

Revankar

Murrell

Murase

2021

International Journal of Women's Dermatology

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Provider perspectives on the management of hidradenitis suppurativa in pregnancy – A survey study

Cited by 5 publications

References 5 publications

Quality-of-life endpoints in women of childbearing age with hidradenitis suppurativa: a tertiary-care-centre-based study

Quality-of-life endpoints in women of childbearing age with hidradenitis suppurativa: a tertiary-care-centre-based study

Clinical considerations in the management of hidradenitis suppurativa in women

Shedding light on the impact of hidradenitis suppurativa on women and their families: A focus of the International Journal of Women's Dermatology

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