Psychometric properties of the initial Brazilian version of the CHQ-PF50 applied to the caregivers of children and adolescents with cerebral palsy

Morales, Nívea de Macedo Oliveira; Silva, Carlos H. M.; Frontarolli, Ana Cláudia; Araújo, Renata R H; Rangel, Viviane O; Pinto, Rogério Melo Costa; Morales, Rogerio Rizo; Gomes, Débora Cristiane

doi:10.1007/s11136-006-9136-6

Cited by 25 publications

(33 citation statements)

References 24 publications

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“…27,30,31 This result may suggest issues with the cultural adaptation of this instrument or difficulty in understanding items of the scale.…”

Section: Discussionmentioning

confidence: 99%

Quality of life in children and adolescents with allergic rhinitis

Silva¹,

Silva²,

Morales³

et al. 2009

Braz. j. otorhinolaryngol. (Impr.)

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Al lergic rhinitis (AR) remains a significant pediatric health problem because of the burden of uncontrolled symptoms on daily activities and on general well being. Aim: to assess the impact of AR on health-related quality of life (HRQL) of children and adolescents using a generic instrument, the Child Health Questionnaire (CHQ -PF50). Methods: Between January and November 2004, parents or caregivers of 23 children and adolescents with AR without comorbidities and with positive prick tests for at least one air allergen were invited to participate of a cross-sectional study and asked to answer the self-administered CHQ-PF50. The scores were compared to those of healthy children and adolescents. Results: Patient scores were lower (p<0.05) than healthy subsets in both the physical and psychosocial summaries and in most of the CHQ-PF50 scales (p<0,05), except for the "change in health" scale. The size effect was higher in the physical score compared to the psychosocial summary score. Conclusions: allergic rhinitis has a global negative impact on the HRQL of children and adolescents, with major repercussions in physical function; AR also negatively affects family relations.

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“…27,30,31 This result may suggest issues with the cultural adaptation of this instrument or difficulty in understanding items of the scale.…”

Section: Discussionmentioning

confidence: 99%

Quality of life in children and adolescents with allergic rhinitis

Silva¹,

Silva²,

Morales³

et al. 2009

Braz. j. otorhinolaryngol. (Impr.)

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“…Our study evaluated the QL of the mothers of children with microcephaly due to the increasing number of cases in Brazil and in other countries, and the impact that the disease causes on the life of these mothers. Previous studies have evaluated the QL of parents or caretakers of children with developmental disabilities or disorders such as autism, Down's syndrome and cerebral palsy [6,10,11], but no studies on the QL of the mothers of children with microcephaly were found.…”

Section: Resultsmentioning

confidence: 99%

Quality of Life in Mothers of Children with Microcephaly in the Northeast of Brazil

Fernandes

Ribeiro

Cândido

et al. 2019

Preprint

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Objective:To evaluate the quality of life of mothers of children with microcephaly compared to the quality of life of mothers with children of the same age but with normal neuropsychomotor development (NPM). Method: This study was a cross-sectional, comparative, analytical study held in a public reference service. Seventy-eight (78) mothers with children between birth and two years old, with and without changes in their NMP, were interviewed. The abbreviated Questionnaire for the Evaluation of Quality of Life (WHOQOLbref) and a sociodemographic evaluation questionnaire, developed by the author, were used.The data were analyzed descriptively, evaluating the association between variables and correlation tests. Results: Mothers of children with microcephaly showed lower scores for various quality of life domains, however there was only a statistically significant difference for the environmental domain (48.40 for the group of mothers of children with microcephaly vs. 57.13 for the group of mothers with children with normal NPM, P<0.02). It should be noted that there were also significant negative correlations between the majority obstetric variables, maternal age and quality of life scores. There was no significant association between the child's age and such scores. Conclusion: Children with neuropsychomotor variations have not influenced their mother's quality of life, rather, the mother's quality of life is affected predominantly by housing conditions and financial resources.

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“…At the time of the study implementation, no other generic HRQoL questionnaire validated in Brazilian fulfilled all these requirements. The CHQ-PF50 (parent form) [18,20] could have been added as a concurrent measure to explore the convergent validity of the instruments. However, this would have well complicated the study design since parents' reports should have been collected in addition to adolescents' ones and was likely to jeopardize the study carrying-out.…”

Section: Discussionmentioning

confidence: 99%

“…The Child Health Questionnaire (CHQ) [18,20] was modeled after the SF-36 to survey health status in the Medical Outcomes Study. The child self-report version of the CHQ consists of 87 items, and was developed for children from 10 years of age; a version that can be completed by the parent is available in 2 lengths - 50 or 28 items [21,22].…”

Section: Introductionmentioning

confidence: 99%

Cross-cultural adaptation and psychometric properties of the Brazilian-Portuguese version of the VSP-A (Vécu et Santé Perçue de l'Adolescent), a health-related quality of life (HRQoL) instrument for adolescents, in a healthy Brazilian population

et al. 2011

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BackgroundHealth-related quality of life (HRQoL) assessment, encompassing the adolescents' perceptions of their mental, physical, and social health and well-being is increasingly considered an important outcome to be used to identify population health needs and to provide targeted medical care. Although validated instruments are essential for accurately assessing HRQoL outcomes, there are few cross-culturally adapted tools for use in Brazil, and none designed exclusively for use among adolescents. The Vécu et Santé Perçue de l'Adolescent (VSP-A) is a generic, multidimensional self-reported instrument originally developed and validated in France that evaluates HRQoL of ill and healthy adolescents.PurposeTo cross-culturally adapt and validate the Brazilian-Portuguese version of the VSP-A, a generic HRQoL measure for adolescents originally developed in France.MethodsThe VSP-A was translated following a well-validated forward-backward process leading to the Brazilian version. The psychometric evaluation was conducted in a sample of 446 adolescents (14-18 years) attending 2 public high schools of São Gonçalo City. The adolescents self-reported the Brazilian VSP-A, the validated Psychosomatic Symptom Checklist and socio-demographic information. A retest evaluation was carried out on a sub-sample (n = 195) at a two-week interval.The internal construct validity was assessed through confirmatory factor analysis (CFA), multi-trait scaling analyses, Rasch analysis evaluating unidimensionality of each scale and Cronbach's alpha coefficients. The reproducibility was evaluated by intra-class correlation coefficients (ICC). Zumbo's ordinal logistic regression analysis was used to detect differential item functioning (DIF) between the Brazilian and the French items. External construct validity was investigated testing expected differences between groups using one-way analysis of variance (ANOVA), Mann-Whitney tests and the univariate general regression linear model.ResultsCFA showed an acceptable fit (RMSEA=0.05; CFI=0.93); 94% of scaling success was found for item-internal consistency and 98% for item discriminant validity. The items showed good fit to the Rasch model except 3 items with an INFIT at the upper threshold. Cronbach's Alpha ranged from 0.60 to 0.85. Test-retest reliability was moderate to good (ICC=0.55-0.82). DIF was evidenced in 4 out of 36 items. Expected patterns of differences were confirmed with significantly lower physical, psychological well being and vitality reported by symptomatic adolescents.ConclusionsAlthough DIF in few items and responsiveness must be further explored, the Brazilian version of VSP-A demonstrated an acceptable validity and reliability in adolescents attending school and might serve as a starting point for more specific clinical investigations.

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Psychometric properties of the initial Brazilian version of the CHQ-PF50 applied to the caregivers of children and adolescents with cerebral palsy

Cited by 25 publications

References 24 publications

Quality of life in children and adolescents with allergic rhinitis

Quality of life in children and adolescents with allergic rhinitis

Quality of Life in Mothers of Children with Microcephaly in the Northeast of Brazil

Cross-cultural adaptation and psychometric properties of the Brazilian-Portuguese version of the VSP-A (Vécu et Santé Perçue de l'Adolescent), a health-related quality of life (HRQoL) instrument for adolescents, in a healthy Brazilian population

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