Psychosocial adjustment to multiple sclerosis: exploration of identity redefinition

Irvine, Holly; Davidson, Charles W.; Hoy, Kathleen E.; Lowe-Strong, Andrea

doi:10.1080/09638280802243286

Cited by 103 publications

(146 citation statements)

References 43 publications

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“…Maintaining a high social-emotional QoL should be a goal for those with MS and their social environment, as also shown by various other studies (Boeije et al, 2002;Charmaz, 1983;Grech et al, 2016;Irvine et al, 2009;Kralik et al, 2003;Madan & Pakenham, 2014;Reynolds & Prior, 2003;Rintell, Frankel, Minden, & Glanz, 2012;Strober, 2016). It appears beneficial to offer personalized interventions oriented toward unique needs of women and men to improve their QoL.…”

Section: Quality Of Life and Personalized Psychological Interventionsmentioning

confidence: 98%

“…Most studies of MS have been conducted with women only, or have lacked the power to make gender comparisons (Irvine et al, 2009;Kralik et al, 2003;Reynolds & Prior, 2003). Themes that have arisen among studies of only women have revealed topics such as missing being able to wear high heels, potentially indicating a sense of lost femininity (Irvine et al, 2009).…”

Section: Introductionmentioning

confidence: 99%

“…There are several themes that have arisen in studies evaluating QoL among individuals with MS, including leaving or reducing paid employment (Irvine, Davidson, Hoy, & Lowe-Strong, 2009), changes in social relationships (Charmaz, 1983), and altered perceptions of self (Boeije, Duijnstee, Grypdonck, & Pool, 2002;Kralik, Koch, & Eastwood, 2003).…”

Section: Introductionmentioning

confidence: 99%

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Social-emotional aspects of quality of life in multiple sclerosis

Lex

Weisenbach

Syed

et al. 2017

Psychology, Health & Medicine

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Multiple sclerosis (MS) is an inflammatory auto-immune disease of the central nervous system. It leads to many impairments including physical, cognitive, psychological, and social challenges. Our study examined gender and cultural associations with quality of life (QoL), personal characteristics, and benefits from having MS among those with MS. The study was conducted in Austria and the United States. The sample included 128 participants, 64 in each country, of whom 78 were women and 50 were men aged between 20 and 57 years. We used standard statistical tests, including analyses of covariance (ANCOVA) and partial correlations for the analysis of quantitative data. For the qualitative part of the survey we used semi-structured interviews, which we transcribed and coded to identify categories in the answers for qualitative analyses. Austrian participants with MS perceived a higher social-emotional QoL in comparison to American participants. American participants expressed a higher self-esteem in comparison to Austrian participants. Men reported a lower ability to express love than women. Independent of sex/gender and nationality, participants reported benefits through the disease, especially with regard to improved compassion, mindfulness, improved family relations and lifestyle gains. The qualitative interviews revealed additional gender differences for coping with the illness; and in experiences, expectations, and challenges related to MS. These insights can be used to develop targeted psychological and social support interventions aimed toward improving social-emotional QoL for persons with MS.

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Section: Quality Of Life and Personalized Psychological Interventionsmentioning

confidence: 98%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Social-emotional aspects of quality of life in multiple sclerosis

Lex

Weisenbach

Syed

et al. 2017

Psychology, Health & Medicine

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“…Qualitative studies using mixed MS type samples showed that whereas the MS diagnosis is met with a negative reaction, after the first few years, many people reported finding a way to preserve usual activities (Dennison, Yardley, Devereux, & Moss-Morris, 2011;Irvine, Davidson, Hoy, & Lowe-Strong, 2009). Qualitative studies also showed that as functional limitations increase in MS, people find it difficutl or impossible to identify new, fulfilling activities and they may give up efforts to adjust altogether (Lexell, Lund, & Iwarsson, 2009;Wilkinson & das Nair, 2013).…”

Section: Running Head: Adjustment In Progressive Msmentioning

confidence: 99%

Adjustment modes in the trajectory of progressive multiple sclerosis: a qualitative study and conceptual model

Bogosian

Morgan

Bishop

et al. 2016

Psychology & Health

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“…Meervoudige Sklerose (MS) is ŉ verlammende, degeneratiewe, inflammatoriese siekte van die sentrale senuweestelsel (SSS) en een van die mees algemene neurologiese siektes onder volwassenes (Bhattacharya, Mishra & Tiwari 2012;Irvine, Davidson & LoweStrong 2009 (Reipert 2004). Verder kom fisieke en kognitiewe gestremdheid, asook die verlies van blaas of dermbeheer en seksuele disfunksies, algemeen voor (Bagert, Camplair & Bourdette 2002;Bhattacharya e.a.…”

Section: Inleidingunclassified

Die ervaring van aktiewe betrokkenheid by ŉ aanlyn Facebook-ondersteuningsgroep as ŉ vorm van ondersteuning vir individue wat met Meervoudige Sklerose gediagnoseer is

Pretorius

2016

Tydskr. geesteswet.

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Chrisma Pretorius behaal haar voor-en nagraadse kwalifikasies, insluitend 'n PhD (Siel kunde) aan die Universiteit van die Vrystaat. Sy is ook 'n geregistreerde Voorligtingsielkundige wat spesialiseer in psigometriese en neurosielkunde assesserings. Haar loopbaan as dosent begin in die Departement Sielkunde aan die Universiteit van Stellenbosch in Maart 2010.Sy is ŉ jong opkomende navorser wat reeds verskeie innoverende studies van stapel gestuur en suksesvol voltooi het. Haar navorsingsfokus is op ŉ kombinasie van kliniese neurosielkunde en gesondheidsielkunde. Sy is veral geïnteresseerd in toestande soos Psigogeniese nieepileptiese aan valle (PNEA), Meervoudige Sklerose (MS), en Traumatiese Hoofbeserings. Sy is ook deel van ŉ internasionale navorsing taakspan wat tans besig is met ŉ studie oor PNEA. Die oorkoepelende fokus van haar navorsing is op die impak van kroniese siektetoestande vanuit verskillende perspektiewe (o.a. die pasiënt, die versorger en die diensverskaffers soos gesondheidsorgwerkers). Haar doelwit is om ŉ bydrae te maak tot die verbetering van dienste wat voorsien word aan pasiënte met kroniese siektetoestande om sodoende die ervarings van hierdie individue en hulle versorgers op ŉ positiewe manier te fasiliteer.

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Psychosocial adjustment to multiple sclerosis: exploration of identity redefinition

Abstract: The findings provide insight into the psychological process of identity redefinition associated with adjusting to MS. Given this, interventions should target role/identity re-examination to assist individuals with MS in better managing the disease and enjoying life.

Cited by 103 publications

References 43 publications

Social-emotional aspects of quality of life in multiple sclerosis

Social-emotional aspects of quality of life in multiple sclerosis

Adjustment modes in the trajectory of progressive multiple sclerosis: a qualitative study and conceptual model

Die ervaring van aktiewe betrokkenheid by ŉ aanlyn Facebook-ondersteuningsgroep as ŉ vorm van ondersteuning vir individue wat met Meervoudige Sklerose gediagnoseer is

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