Public trust: caught between hype and need

Gille, Felix; Brall, Caroline

doi:10.1007/s00038-020-01343-0

Cited by 5 publications

(5 citation statements)

References 7 publications

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“…These concerns align with previously reported concerns of scholars and citizens on digitalization in clinical trajectories, especially the concerns of bias in data and a lack of responsibility [6,[32][33][34]. In relation to building trust in a centralized large-scale data repository or artificial intelligence, this last factor is fundamental, especially in healthcare [9,35,36].…”

Section: Discussionsupporting

confidence: 69%

Personal Health Record for Personalizing Research and Care Trajectories: A Proof of Concept Pilot with Diet in Inflammatory Bowel Diseases

Broekstra

Campmans-Kuijpers

Dijkstra

et al. 2023

JPM

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Combinations of health-related research data and clinical data generated, e.g., from wearables, can increasingly provide new insights about a person’s health. Combining these data in a personal health record (PHR), which is managed by citizens themselves, can enhance research and enable both personalized care and prevention. We piloted a hybrid PHR using it for scientific research and the concomitant return of individual findings for clinical information and prevention purposes. The obtained information on the quality of daily dietary intake allowed researchers to further investigate the association between diet and inflammatory bowel diseases (IBDs). Additionally, the feedback enabled participants to adjust their food intake to improve the quality and prevent nutritional deficiency, thereby increasing their health. Our results showed that a PHR including a Research Connection can be successfully used for both purposes but requires a good embedding in both research and healthcare processes with the cooperation of healthcare professionals and researchers. Addressing these challenges is key in the pursuit of delivering personalized medicine and building learning health systems with PHRs.

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Section: Discussionsupporting

confidence: 69%

Personal Health Record for Personalizing Research and Care Trajectories: A Proof of Concept Pilot with Diet in Inflammatory Bowel Diseases

Broekstra

Campmans-Kuijpers

Dijkstra

et al. 2023

JPM

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“…This could explain the emerging problems of “disappointment” or “disenchantment” with politics, due to a lack of confidence that is resulting in a breakdown of trust (Boswell, 2018, p. 32). Some scholars describe a decreasing level of trust or a real “trust crisis” (Gille and Brall, 2020, p. 233), which could hinder the successful adoption and implementation of disaster risk regulations. The aim is to identify the role of institutions and regulatory governance in the development and maintenance of trust by overcoming this “expectations gap.”…”

Section: Institutional and Governance Dimension: Building Trust-respo...mentioning

confidence: 99%

Trust in disaster resilience

Fornalé

Armiero

Odasso

2023

DPM

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PurposeThe erosion of ‘trust’ (among citizens as well as within and between institutional levels) is a worrying aspect of these turbulent times in Europe and beyond. Trust (between citizens and institutions, citizens and experts, policymakers and experts, and among different levels of governance) is crucial in all dimensions of disaster resilience. Risk perceptions stem from a complex web of feedback between individuals, communities, institutions, and experts. Sometimes, institutions and experts are slow or even resistant to accepting signals and knowledge about risks coming from the grassroots. Or, it is the other way around, and citizens are skeptical about the information coming from institutions and experts. Thus, trust must work in all directions (from citizens to institutions, from experts to citizens, etc.) to build a cooperative framework for action.Design/methodology/approachOur article aims to explore the construction of trust and distrust in communities dealing with historical, actual, or potential disasters by putting forward a three-dimensional approach (societal, cooperative, and institutional). We convey the idea that less tangible aspects such as culture, contextual history, knowledge, and habits shape the perception of risk, the degree of preparedness and, ultimately, the impacts of environmental changes.FindingsThese elements affect cooperative behaviors, and it is expected that the institutional environment – which will vary across domestic, national, and regional contexts – will play a significant role in nurturing trust or distrust in relation to disaster risk.Originality/valueThis article will offer valuable insights by developing a new conceptual framework that can be translated and validated by future research.

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“…In the meantime, institutional quality plays an important role in promoting the quality of the healthcare system (see also Gille and Brall, 2020). Public health practices and strategies will not be effective and efficient without collaboration between public and private sectors, as well as individuals.…”

Section: Health Belief and Behaviour In Malaysiamentioning

confidence: 99%

Health belief and behaviour: an analysis of the predictors for receiving COVID-19 vaccines in Malaysia

Tan

Liew

2022

PAP

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PurposeThe paper examines the ‘Intention to Receive the COVID-19 Vaccines’ or IRV from three perspectives: the health belief model, behavioural economics, and institutional quality.Design/methodology/approachThis study provides quantitative analysis by applying Chi-squared test of contingencies, paired sample t-tests, exploratory factor analysis, and multiple linear regression (stepwise method) on the data collected from 591 respondents mainly from Malaysia.FindingsThe results show that Perceived Benefits, Perceived Barriers, Perceived Susceptibility, Herding, and Institutional Quality play roles as predictors of IRV. Perceived Benefits play the most crucial role among the predictors and Perceived Barriers is the least important predictor. People have the herding mentality after being exposed to information encouraging such behaviour.Originality/valueThis study reveals that the respondents changed their behaviour in different circumstances when exposed to information that incorporates the effect of herding. Herding mentality, the effectiveness of government authorities, and regulatory quality have become important factors in enriching public health policies and the effectiveness of interventions.

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Public trust: caught between hype and need

Cited by 5 publications

References 7 publications

Personal Health Record for Personalizing Research and Care Trajectories: A Proof of Concept Pilot with Diet in Inflammatory Bowel Diseases

Personal Health Record for Personalizing Research and Care Trajectories: A Proof of Concept Pilot with Diet in Inflammatory Bowel Diseases

Trust in disaster resilience

Health belief and behaviour: an analysis of the predictors for receiving COVID-19 vaccines in Malaysia

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