Qualitative analysis of the process of restoring social esteem by the women with multiple sclerosis

Maghsoodi, Soodeh; Mohammadi, Naima

doi:10.1007/s11135-017-0677-2

Cited by 3 publications

(16 citation statements)

References 55 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…17,33,35,37,[39][40][41] People described the provision of generic advice from health-care providers, rather than personally tailored and specific advice. 11,31,37,40,[42][43][44][45][46] In two studies, women described receiving inadequate and conflicting information related to having children -from supportive to discouraging. 11,12 People with MS often had to navigate their own preconceived ideas about MS and what their future living with MS might look like; for example, they may have inferred from the frequent image of someone in a wheelchair used in popular representations of MS that this would be the outcome for all with this diagnosis.…”

Section: A Quest For Knowledge Expertise and Understandingmentioning

confidence: 99%

“…This theme described the inherent uncertainty people with MS experienced across all aspects of their lives. It was expressed around the time of diagnosis, 9,10,12,17,31-34 regarding treatment, 6,15,41,44,58 and in terms of the potential future impacts of MS progression, especially on work, 35,43,56,59 family and relationships. 11,14,21,47 Several studies included experiences of physical and psychological symptoms presenting themselves acutely and without warning.…”

Section: Uncertain Trajectories and A Need To Planmentioning

confidence: 99%

“…These included bladder symptoms, 44 pain, 58 fatigue, 34,51,60,61 spasticity, 62 speech problems, 63 balance disturbances, 43 and cognitive and mood changes. 64 This unpredictability caused worry, 43,44,53 made it difficult to plan, 38,43,44,53,58,60 and disrupted valued roles and activities, 22,38,43,44,53,58,60,62 and everyday routines. 22,43,44,62 Lack of certainty about treatment effectiveness, including impact on clinical course, made it difficult to make decisions about which treatments to choose, especially considering potential significant side-effects and impact on quality of life.…”

Section: Uncertain Trajectories and A Need To Planmentioning

confidence: 99%

“…64 This unpredictability caused worry, 43,44,53 made it difficult to plan, 38,43,44,53,58,60 and disrupted valued roles and activities, 22,38,43,44,53,58,60,62 and everyday routines. 22,43,44,62 Lack of certainty about treatment effectiveness, including impact on clinical course, made it difficult to make decisions about which treatments to choose, especially considering potential significant side-effects and impact on quality of life. 15,41 In a study of the exclusive use of alternative medicine by people with MS, interviewees described the lack of certainty regarding the impact and longterm effects of conventional medicines as a deterrent to their use, leading to the adoption of alternative modes of therapy, which were represented as delivering more certainty of outcome.…”

Section: Uncertain Trajectories and A Need To Planmentioning

confidence: 99%

“…35,63,[66][67][68][69][70][71] Many studies highlighted the impact of MS on people's careers and employment. 9,43,50,53,59,63,[72][73][74][75] The presence of supportive structures and environments at work were factors influencing whether people living with MS chose to remain in employment or not. 59,75 Disclosing or concealing a diagnosis was an important consideration in maintaining a sense of identity and avoiding stigma.…”

Section: Loss Of Valued Roles and Activities And The Threat Of A Cmentioning

confidence: 99%

See 4 more Smart Citations

‘It struck at the heart of who I thought I was’: A meta‐synthesis of the qualitative literature examining the experiences of people with multiple sclerosis

Desborough

Brunoro

Parkinson

et al. 2020

Health Expectations

View full text Add to dashboard Cite

Background People with multiple sclerosis (MS) have varied experiences and approaches to self‐management. This review aimed to explore the experiences of people with MS, and consider the implications of these experiences for clinical practice and research. Methods A meta‐synthesis of the qualitative literature examining experiences of people with MS was conducted using systematic searches of ProQuest, PubMed, CINAHL and PsycINFO. We incorporated feedback from team members with MS as expert patient knowledge‐users to capture the complex subjectivities of persons with lived experience responding to research on lived experience of the same disease. Results Of 1680 unique articles, 77 met the inclusion criteria. We identified five experiential themes: (a) the quest for knowledge, expertise and understanding, (b) uncertain trajectories (c) loss of valued roles and activities, and the threat of a changing identity, (d) managing fatigue and its impacts on life and relationships, and (f) adapting to life with MS. These themes were distributed across three domains related to disease (symptoms; diagnosis; progression and relapse) and two contexts (the health‐care sector; and work, social and family life). Conclusion The majority of people in the studies included in this review expressed a determination to adapt to MS, indicating a strong motivation for people with MS and clinicians to collaborate in the quest for knowledge. Clinicians caring for people with MS need to consider the experiential and social outcomes of this disease such as fatigue and the preservation of valued social roles, and incorporate this into case management and clinical planning.

show abstract

Section: A Quest For Knowledge Expertise and Understandingmentioning

confidence: 99%

Section: Uncertain Trajectories and A Need To Planmentioning

confidence: 99%

Section: Uncertain Trajectories and A Need To Planmentioning

confidence: 99%

Section: Uncertain Trajectories and A Need To Planmentioning

confidence: 99%

Section: Loss Of Valued Roles and Activities And The Threat Of A Cmentioning

confidence: 99%

See 3 more Smart Citations

‘It struck at the heart of who I thought I was’: A meta‐synthesis of the qualitative literature examining the experiences of people with multiple sclerosis

Desborough

Brunoro

Parkinson

et al. 2020

Health Expectations

View full text Add to dashboard Cite

show abstract

A systematic review of self-concept change in multiple sclerosis

Emery

Padgett

Ownsworth

et al. 2022

Neuropsychological Rehabilitation

View full text Add to dashboard Cite

Explaining the burden of psychosocial factors on the worsening symptoms of MS: a qualitative study of patients' experiences

et al. 2023

View full text Add to dashboard Cite

Background This study was conducted with the aim of identifying the burden of psychosocial factors on the worsening symptoms of multiple sclerosis. Methods This as conducted with a qualitative approach and conventional content analysis among patients with Multiple sclerosis in Mashhad. Data were collected through semi-structured interviews with patients with Multiple sclerosis. Twenty-one patients with Multiple sclerosis were selected through purposive sampling and snowball sampling. The data were analyzed using Graneheim and Lundman method. Guba and Lincoln's criteria were used for evaluating research transferability. The data collection and management was performed by using the MAXQADA 10 software. Results In explanation of the psychosocial factors of patients with Multiple sclerosis, one category (psychosocial tensions) and three subcategories of stress (physical symptoms, emotional symptoms, and behavioral symptoms), agitation (family disorder, treatment-related concerns, and social relationship concerns), and stigmatization (social stigma and internalized stigma) were extracted. Conclusion The results of this study show that patients with Multiple sclerosis are faced with concerns such as stress, agitation, and fear of stigma, and need support and understanding from the family and community to overcome these concerns. Society must base its health policies on addressing the challenges faced by patients. Accordingly, the authors argue that health policies, and consequently, healthcare systems, need to address patients’ ongoing challenges as a priority in caring for patients with Multiple sclerosis.

show abstract

Qualitative analysis of the process of restoring social esteem by the women with multiple sclerosis

Cited by 3 publications

References 55 publications

‘It struck at the heart of who I thought I was’: A meta‐synthesis of the qualitative literature examining the experiences of people with multiple sclerosis

‘It struck at the heart of who I thought I was’: A meta‐synthesis of the qualitative literature examining the experiences of people with multiple sclerosis

A systematic review of self-concept change in multiple sclerosis

Explaining the burden of psychosocial factors on the worsening symptoms of MS: a qualitative study of patients' experiences

Contact Info

Product

Resources

About