Qualitative Examination of Voting Empowerment and Participation Among People Living With Traumatic Brain Injury

Davis, Christine S.; Hirsch, Mark A.; Snow, Julia M.; Kropf, Martha; Schur, Lisa; Kruse, Douglas; Ball, Andrew M.

doi:10.1016/j.apmr.2020.12.016

Cited by 3 publications

(13 citation statements)

References 31 publications

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“…As noted in the results section, these categories are not part of the ICF Comprehensive Stroke and TBI Core Sets ( 40 , 41 ), and therefore are not considered by the ICF to be “essential” to people's function in these populations ( 42 ). Our paper identifies the potential importance of these categories to this population, a finding which aligns with recent research done in the field of TBI ( 59 ) and expert perspectives in a research symposium related to participation measurement ( 16 ). Many of the components of participation identified in this synthesis represent themes that are both challenging to orient within measurement and standardized models, and critical to how pwABI identify the construct of participation.…”

Section: Discussionsupporting

confidence: 79%

Conceptualization of Participation: A Qualitative Synthesis of Brain Injury Stakeholder Perspectives

Rajala¹,

Waterhouse²,

Evans³

et al. 2022

Front. Rehabilit. Sci.

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BackgroundThe return to participation in meaningful life roles for persons with acquired brain injury (pwABI) is a goal shared by pwABI, their families, clinicians, and researchers. Synthesizing how pwABI define participation will help to identify the aspects of participation important to pwABI and can inform a person-centered approach to participation outcome assessment. To-date, the qualitative synthesis approach has been used to explore facilitators and barriers of participation post-stroke, and views about participation among individuals with stroke in the UK.ObjectivesThis paper's objectives are to (1) conduct a scoping review of qualitative literature that defines and characterizes participation from the perspective of pwABI of any type, (2) synthesize how pwABI define and categorize participation, and (3) link the themes identified in the qualitative synthesis to the International Classification of Functioning, Disability, and Health (ICF) using standardized linking rules to enhance the comparability of our findings to other types of health information, including standardized outcome measures.MethodsWe completed a scoping review of qualitative literature. Our search included PubMed, APA PsychInfo, CINAHL, and Embase databases and included articles that (1) had qualitative methodology, (2) had a sample ≥50% pwABI, (3) had aims or research questions related to the meaning, definition, perception, or broader experience of participation, and (4) were in English. Qualitative findings were synthesized using Thomas and Harden's methodology and resultant themes were linked to ICF codes.ResultsThe search identified 2,670 articles with 2,580 articles excluded during initial screening. The remaining 90 article abstracts were screened, and 6 articles met the full inclusion criteria for the qualitative synthesis. Four analytical themes emerged: (1) Essential Elements of Participation (2) How pwABI Approach Participation, (3) Where pwABI Participate, and (4) Outcomes of Participation. Each overarching theme included multiple descriptive themes.ConclusionIn this paper, we identified themes that illustrate key components of participation to pwABI. Our results provide insight into the complex perspectives about participation among pwABI and illustrate aspects of participation that should hold elevated importance for clinicians and researchers supporting participation of pwABI.

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Section: Discussionsupporting

confidence: 79%

Conceptualization of Participation: A Qualitative Synthesis of Brain Injury Stakeholder Perspectives

Rajala¹,

Waterhouse²,

Evans³

et al. 2022

Front. Rehabilit. Sci.

View full text Add to dashboard Cite

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“…Participants experienced ‘unpredictable’ 35 and often ‘invisible’ 30,57 after‐effects following their ABI 25,26,28,29,31,32,34,35,39‐42,47,52,53,57‐59,61,63,65,69,72,73 . Those with communication issues felt particularly constrained in their choices due to difficulty expressing their needs 53,55,58,77 .…”

Section: Resultsmentioning

confidence: 99%

“…The experience of reordering life after an ABI often prompted a reassessment of what gives meaning and purpose in life, personal values and what supports recovery 25,29,32,34,40,47–52,57,59,63,65,72,73,78 . There was an associated adjustment in identity and self‐concept about what to do next 29,40,48,52 .…”

Section: Resultsmentioning

confidence: 99%

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Perspectives of choice and control in daily life for people following brain injury: A qualitative systematic review and meta‐synthesis

Murray

Weeks

Kessel

et al. 2022

Health Expectations

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Background and Objective Acquired brain injury (ABI) can result in considerable life changes. Having choice and control over daily life is valued by people following ABI. This meta‐synthesis will analyse and integrate international research exploring perspectives of choice and control in daily life following ABI. Methods Databases were searched from 1980 to 13 January 2022 for eligible qualitative studies. After duplicates were removed, 22,768 studies were screened by title and abstract, and 241 studies received full‐text assessment with 56 studies included after pearling. Study characteristics and findings were extracted that related to personal perspectives on choice and control by people with an ABI (including author interpretation and quotes). Data from each study were coded and then segments of coded data across the studies were compared to create multiple broad categories. Findings Findings were then reduced from categories into 3 overarching themes with 12 subthemes. These themes were: (1) feeling like a second‐class citizen; (2) reordering life and (3) choosing a path. Participants with an ABI tussled between their feelings of loss following brain injury and their thinking about how they start to regain control and become agents of their own choices. The themes describe their sense of self, their changed self and their empowered self in relation to ‘choice and control’. Conclusions Re‐engaging with choice and control after ABI is dynamic and can be challenging. Health professionals and supporters need to facilitate a gradual and negotiated return to agency for people following ABI. A sensitive and person‐centred approach is needed that considers the readiness of the person with ABI to reclaim choice and control at each stage of their recovery. Clear service or process indicators that are built on lived experience research are needed to facilitate changes in service delivery that are collaborative and inclusive. Patient or Public Contribution This review included the voices of 765 people living with ABI and was conducted by a diverse team of allied health professionals with practice knowledge and research experience with people following ABI. Twenty‐nine of the 56 included studies had participants contributing to their design or analysis.

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“…Much of the research on political participation and health focuses on voting at the federal level. At these various levels and within the different domains of health, qualitative inquiry may be able to provide more nuanced insight to explain the relationship between health and political participation (Hammond et al, 2021). This study highlights some of the complicated relationships left to explore in studying the intersection of health and political participation.…”

Section: Discussionmentioning

confidence: 99%

Chronic health conditions and voter turnout: Results from the 2012 United States presidential election

McGuire

Rahn

Gollust

2021

World Med & Health Policy

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This study examined associations between diagnoses with five chronic health conditions (diabetes, cancer, heart disease, asthma, and arthritis) and turnout in the 2012 US presidential election. We used cross‐sectional survey data from 16 states from the 2013 and 2014 Behavioral Risk Factor Surveillance System. We estimated a logistic regression model with the main dependent variable as a survey item asking respondents if they voted. We also estimated logistic regression models stratified by race/ethnicity to assess whether the chronic health condition–turnout relationships varied within each racial/ethnic group. Results show that individuals diagnosed with diabetes were 7 percentage‐points more likely to vote that those who were not. Stratified models revealed these diabetes–turnout relationships are particularly strong among those who identified as Hispanic and multiracial. Other health characteristics demonstrated consistency with previous literature, including lower self‐rated health being associated with lower odds of turnout. Our research suggests an intriguing new relationship between the experience of diabetes and a higher propensity to vote and that different chronic health conditions have varying associations with the likelihood to vote, implying that some groups are more vulnerable to being underrepresented in politics.

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Qualitative Examination of Voting Empowerment and Participation Among People Living With Traumatic Brain Injury

Cited by 3 publications

References 31 publications

Conceptualization of Participation: A Qualitative Synthesis of Brain Injury Stakeholder Perspectives

Conceptualization of Participation: A Qualitative Synthesis of Brain Injury Stakeholder Perspectives

Perspectives of choice and control in daily life for people following brain injury: A qualitative systematic review and meta‐synthesis

Chronic health conditions and voter turnout: Results from the 2012 United States presidential election

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