Quality of written information used in Down syndrome screening

Murray, Jenni; Cuckle, Howard; Sehmi, I. K.; Wilson, Carol; Ellis, Andy

doi:10.1002/1097-0223(200102)21:2<138::aid-pd997>3.0.co;2-c

Cited by 26 publications

(28 citation statements)

References 8 publications

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“…3,4 Bryant et al 3 described written information women were given about Down's syndrome. About a fifth of the 80 leaflets analysed gave no information about the condition at all.…”

Section: Introductionmentioning

confidence: 99%

“…2,3,4,7 The extent to which written information for people offered screening is likely to facilitate informed choice in other countries is not known. The aim of this study is to describe the presentation of choice and information about Down's syndrome in written information given to pregnant women about prenatal screening in Europe and Asia.…”

Section: Introductionmentioning

confidence: 99%

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Undergoing prenatal screening for Down's syndrome: presentation of choice and information in Europe and Asia

Hall

Chitty²,

Dormandy

et al. 2007

Eur J Hum Genet

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To date, studies assessing whether the information given to people about screening tests facilitates informed choices have focussed mainly on the UK, US and Australia. The extent to which written information given in other countries facilitates informed choices is not known. The aim of this study is to describe the presentation of choice and information about Down's syndrome in written information about prenatal screening given to pregnant women in five European and two Asian countries. Leaflets were obtained from clinicians in UK, Netherlands, Spain, Italy, Czech Republic, China and India. Two analyses were conducted. First, all relevant text relating to the choice about undergoing screening was extracted and described. Second, each separate piece of information or statement about the condition being screened for was extracted and then coded as either positive, negative or neutral. Only Down's syndrome was included in the analysis since there was relatively little information about other conditions. There was a strong emphasis on choice and the need for discussion about prenatal screening tests in the leaflets from the UK and Netherlands. The leaflet from the UK gave most information about Down's syndrome and the smallest proportion of negative information. By contrast, the Chinese leaflet did not mention choice and gave the most negative information about Down's syndrome. Leaflets from the other countries were more variable. This variation may reflect cultural differences in attitudes to informed choice or a failure to facilitate informed choice in practice. More detailed studies are needed to explore this further.

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“…3,4 Bryant et al 3 described written information women were given about Down's syndrome. About a fifth of the 80 leaflets analysed gave no information about the condition at all.…”

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Undergoing prenatal screening for Down's syndrome: presentation of choice and information in Europe and Asia

Hall

Chitty²,

Dormandy

et al. 2007

Eur J Hum Genet

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“…26 Information of this kind is often written by medical professionals who may be accustomed to technical language and description. Whilst we placed importance on the writing of the information brochure, and peer reviewed the content, legibility and readability of the brochure were not specifically examined in this study.…”

Section: Limitationsmentioning

confidence: 99%

Improving women's knowledge of prostaglandin induction of labour through the use of information brochures: A quasi-experimental study

Cooper

Warland

2011

Women and Birth

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“…Concluem que os profissionais da saúde deveriam estar mais atentos e crí-ticos à produção e avaliação deste tipo de recurso, para que a "boa informação" não se perca quando veiculada em formatos inadequados. Murray et al (2001) consideraram o material impresso distribuído às gestantes para screening da síndrome de Down, na Inglaterra, de baixa qualidade em média, em relação a seus atributos de legibilidade e a conteúdos relevantes omitidos. Dickson et al (2001) ampliaram seu campo de amostragem estudando o modelo prescrito pela European Comission, para folhetos educativos em saúde distribuídos na União Européia.…”

Section: Informação Impressa E Modificação De Comportamentosunclassified

Próteses de comunicação e alinhamento comportamental sobre impressos hospitalares

2003

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Realizou-se revisão da literatura sobre publicações que descrevem experiências com material impresso distribuído ao público leigo em instituições hospitalares. Excluindo impressos para profissionais ou portadores de incapacidades, dentre 146 trabalhos, foram obtidos 75 artigos que ilustram o padrão atual de racionalidade da produção, uso e avaliação deste tipo de recurso. Esses artigos investem no poder da "informação impressa ideal" para alinhar comportamentos à agenda biomédica hospitalar. A racionalidade instrumental que os permeia percebe o "pacote informativo perfeito" como aquele que explicita eficientemente seus conteúdos técnicos, para fins de convencimento unilateral, atualizado segundo escalas de legibilidade, adornado por projeto gráfico e enfatizando prioridades definidas pelos profissionais. Tais "próteses de comunicação" seriam passíveis de validação eletrônica, por intermédio de softwares competentes em adequar "doses" e conteúdos. Discute-se a informação como fármaco, o cognitivismo, a ausência de pesquisas de recepção e a necessidade da ação comunicativa, para desconstrução de tais sistemas de pensamento fechados no ambiente hospitalar.

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Quality of written information used in Down syndrome screening

Cited by 26 publications

References 8 publications

Undergoing prenatal screening for Down's syndrome: presentation of choice and information in Europe and Asia

Undergoing prenatal screening for Down's syndrome: presentation of choice and information in Europe and Asia

Improving women's knowledge of prostaglandin induction of labour through the use of information brochures: A quasi-experimental study

Próteses de comunicação e alinhamento comportamental sobre impressos hospitalares

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