Recovery from fibromyalgia – previous patients' own experiences

Mengshoel, Anne Marit; Heggen, Kristin

doi:10.1080/09638280410001645085

Cited by 38 publications

(52 citation statements)

References 30 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…The different professional backgrounds of the researchers enriched the process of analysis and interpretation (as noted by previous researchers e.g. 23 ) and supported its confirmability.…”

Section: Discussionmentioning

confidence: 89%

See 1 more Smart Citation

Women's experiences of increasing subjective well-being in CFS/ME through leisure-based arts and crafts activities: A qualitative study

Reynolds

Vivat

Prior

2008

Disability and Rehabilitation

View full text Add to dashboard Cite

Purpose: To understand the meanings of art-making among a group of women living with the occupational constraints and stigma of CFS/ME. The study explored their initial motives for art-making, and then examined how art-making had subsequently influenced their subjective well-being.Method: Ten women with CFS/ME were interviewed; three provided lengthy written accounts to the interview questions.Findings: Illness had resulted in devastating occupational and role loss. Participants took many years to make positive lifestyle changes. Art-making was typically discovered once participants had accepted the long-term nature of CFS/ME, accommodated to illness, and reprioritised occupations. Several factors then attracted participants specifically to art-making. It was perceived as manageable within the constraints of ill-health. Participants also tended to be familiar with craft skills; had family members interested in arts and crafts, and some desired a means to express grief and loss. Once established as a leisure activity, art-making increased subjective well-being mainly through providing increased satisfaction in daily life, positive selfimage, hope, and contact with the outside world. Participants recommended provision of occupational/ recreational counselling earlier in the illness trajectory.Conclusions: Creative art-making occurred as part of a broader acceptance and adjustment process to CFS/ME, and allowed some psychological escape from a circumscribed lifeworld.

show abstract

“…The different professional backgrounds of the researchers enriched the process of analysis and interpretation (as noted by previous researchers e.g. 23 ) and supported its confirmability.…”

Section: Discussionmentioning

confidence: 89%

“…The study was based on a small sample, although similar in size to other qualitative studies e.g. 18,23 . Some of the data were in the form of written answers to the main interview questions.…”

Section: Discussionmentioning

confidence: 99%

Women's experiences of increasing subjective well-being in CFS/ME through leisure-based arts and crafts activities: A qualitative study

Reynolds

Vivat

Prior

2008

Disability and Rehabilitation

View full text Add to dashboard Cite

show abstract

“…The ranges of agreement for CASP and JBIQ rank were 52-75% and 29-82% respectively. The team members agreed that five studies were key, [28][29][30][31][32] one team member graded a further five as key, [33][34][35][36][37] and the other graded a further seven as key. [38][39][40][41][42][43][44] Full details of the appraisal scoring are also available from the authors.…”

Section: Resultsmentioning

confidence: 99%

“…[29][30][31][32][33][34][35][36][37]39,40,43,48, Twentyeight papers (23 studies) focused primarily on fibromyalgia (FM). 28,38,41,42, Studies were included from a range of countries: Iceland (1); Northern Ireland (1); Switzerland (1); Finland (2); the Netherlands (2); New Zealand (2); Australia (3); Canada (4); Norway (8); the US (8); Sweden (19); and the UK (26). Appendix 1 describes the study characteristics.…”

Section: Resultsmentioning

confidence: 99%

Patients’ experiences of chronic non-malignant musculoskeletal pain: a qualitative systematic review

Toye¹,

Seers²,

Allcock³

et al. 2013

Br J Gen Pract

124

128

View full text Add to dashboard Cite

show abstract

“…66,312,323,325,326,330-334,336,338,342-345,350,353-358, 362-365,367,372,374,376,379,385-387 Twenty-eight papers (23 individual studies) explored the experience of people with fibromyalgia. 324,[327][328][329]335,337,[339][340][341]346,349,351,352,[359][360][361]366,373,375,377,378,[380][381][382][383][384] A description of these studies is provided in Tables 6 and 7, showing for each study the age range and source of participants, the country where the study was carried out, the method of data collection and the methodology used. …”

Section: Included Studiesmentioning

confidence: 99%

A meta-ethnography of patients’ experience of chronic non-malignant musculoskeletal pain

Toye

Seers

Allcock

et al. 2013

Health Services and Delivery Research

View full text Add to dashboard Cite

Health Services and Delivery ResearchISSN 2050-4349 (Print) ISSN 2050-4357 (Online) This journal is a member of and subscribes to the principles of the Committee on Publication Ethics (COPE) (www.publicationethics.org/).Editorial contact: nihredit@southampton.ac.ukThe full HS&DR archive is freely available to view online at www.journalslibrary.nihr.ac.uk/hsdr. Print-on-demand copies can be purchased from the report pages of the NIHR Journals Library website: www.journalslibrary.nihr.ac.uk Criteria for inclusion in the Health Services and Delivery Research journalReports are published in Health Services and Delivery Research (HS&DR) if (1) they have resulted from work for the HS&DR programme or programmes which preceded the HS&DR programme, and (2) they are of a sufficiently high scientific quality as assessed by the reviewers and editors. HS&DR programmeThe Health Services and Delivery Research (HS&DR) programme, part of the National Institute for Health Research (NIHR), was established to fund a broad range of research. It combines the strengths and contributions of two previous NIHR research programmes: the Health Services Research (HSR) programme and the Service Delivery and Organisation (SDO) programme, which were merged in January 2012.The HS&DR programme aims to produce rigorous and relevant evidence on the quality, access and organisation of health services including costs and outcomes, as well as research on implementation. The programme will enhance the strategic focus on research that matters to the NHS and is keen to support ambitious evaluative research to improve health services.For more information about the HS&DR programme please visit the website: www.netscc.ac.uk/hsdr/ This reportThe research reported in this issue of the journal was funded by the HS&DR programme or one of its proceeding programmes as project number 09/2001/09. The contractual start date was in October 2010. The final report began editorial review in November 2012 and was accepted for publication in February 2013. The authors have been wholly responsible for all data collection, analysis and interpretation, and for writing up their work. The HS&DR editors and production house have tried to ensure the accuracy of the authors' report and would like to thank the reviewers for their constructive comments on the final report document. However, they do not accept liability for damages or losses arising from material published in this report.This report presents independent research funded by the National Institute for Health Research (NIHR). The views and opinions expressed by authors in this publication are those of the authors and do not necessarily reflect those of the NHS, the NIHR, NETSCC, the HS&DR programme or the Department of Health. If there are verbatim quotations included in this publication the views and opinions expressed by the interviewees are those of the interviewees and do not necessarily reflect those of the authors, those of the NHS, the NIHR, NETSCC, the HS&DR programme or the Department of Health. Published b...

show abstract

Recovery from fibromyalgia – previous patients' own experiences

Abstract: Patients can recover from FM. The information from these informants suggests that to struggle against a role of chronic patient and keep up with their social obligations and goals were of great importance.

Cited by 38 publications

References 30 publications

Women's experiences of increasing subjective well-being in CFS/ME through leisure-based arts and crafts activities: A qualitative study

Women's experiences of increasing subjective well-being in CFS/ME through leisure-based arts and crafts activities: A qualitative study

Patients’ experiences of chronic non-malignant musculoskeletal pain: a qualitative systematic review

A meta-ethnography of patients’ experience of chronic non-malignant musculoskeletal pain

Contact Info

Product

Resources

About