Recruitment of US Adolescents and Young Adults (AYA) into Human Immunodeficiency Virus (HIV)–Related Behavioral Research Studies: A Scoping Review

Navarra, Ann Margaret Dunn; Handschuh, Caroline; Hroncich, Theresa; Jacobs, Susan Kaplan; Goldsamt, Lloyd A.

doi:10.1007/s11904-020-00530-1

Cited by 8 publications

(4 citation statements)

References 42 publications

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“…Sexual and gender minority youth are increasingly important to recruit into prevention research to accurately develop prevention strategies that represent and are tailored toward diverse communities. Strategies are needed to recruit youth that represent local demographics and geography (ie, in states such as Michigan with large rural populations) and risk groups in localized epidemics [ 11 ].…”

Section: Introductionmentioning

confidence: 99%

Comparing Social Media and In-Person Recruitment: Lessons Learned From Recruiting Substance-Using, Sexual and Gender Minority Adolescents and Young Adults for a Randomized Control Trial

Parker¹,

Hunter²,

Bauermeister³

et al. 2021

JMIR Public Health Surveill

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Background Recruiting large samples of diverse sexual and gender minority adolescent and young adults (AYAs) into HIV intervention research is critical to the development and later dissemination of interventions that address the risk factors for HIV transmission among substance-using, sexual and gender minority AYAs. Objective This paper aimed to describe the characteristics of the samples recruited via social media and in-person methods and makes recommendations for strategies to recruit substance-using, sexual and gender minority AYAs, a hardly reached population that is a priority for HIV prevention research. Methods Using data from a randomized control trial of an HIV and substance use intervention with sexual and gender minority AYAs, aged 15 to 29 years in southeastern Michigan (n=414), we examined demographic and behavioral characteristics associated with successful recruitment from a range of virtual and physical venues. Results We found that paid advertisements on Facebook, Instagram, and Grindr offered the largest quantity of eligible participants willing to enroll in the trial. Instagram offered the largest proportion of transgender masculine participants, and Grindr offered the largest proportion of Black/African American individuals. Although we attempted venue-based recruitment at clubs, bars, community centers, and AIDS service organizations, we found it to be unsuccessful for this specific hardly reached population. Social media and geobased dating applications offered the largest pool of eligible participants. Conclusions Understanding factors associated with successful recruitment has the potential to inform effective and efficient strategies for HIV prevention research with substance-using, sexual and gender AYAs. Trial Registration ClinicalTrials.gov NCT02945436; https://clinicaltrials.gov/ct2/show/NCT02945436 International Registered Report Identifier (IRRID) RR2-10.2196/resprot.9414

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Section: Introductionmentioning

confidence: 99%

Comparing Social Media and In-Person Recruitment: Lessons Learned From Recruiting Substance-Using, Sexual and Gender Minority Adolescents and Young Adults for a Randomized Control Trial

Parker¹,

Hunter²,

Bauermeister³

et al. 2021

JMIR Public Health Surveill

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“…To curb the growing HIV epidemic among youth, it is essential to maintain contact with eligible study participants and engage in regular HIV care or adhere to HIV treatment regimens [ 4 ]. However, recruiting youth living with HIV in the treatment cascade is challenging [ 2 , 5 ] because of several factors, including transportation barriers in rural areas [ 6 , 7 ] and the lack of access to health services and technology [ 8 ]. Although traditional recruitment methods such as field-based strategies and venue-based sampling have been adapted for adults living with HIV [ 9 , 10 ], such strategies may not be efficient or acceptable methods of recruitment for rural and clinic-based populations and web-based samples.…”

Section: Introductionmentioning

confidence: 99%

Examining Recruitment Strategies in the Enrollment Cascade of Youth Living With HIV: Descriptive Findings From a Nationwide Web-Based Adherence Protocol

Gurung¹,

Jones²,

Mehta³

et al. 2023

JMIR Form Res

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Background Digital strategies and broadened eligibility criteria may optimize the enrollment of youth living with HIV in mobile health adaptive interventions. Prior research suggests that digital recruitment strategies are more efficient than traditional methods for overcoming enrollment challenges of youth living with HIV in the United States. Objective This study highlights the challenges and strategies that explain screening and enrollment milestones in a national web-based adherence protocol for youth living with HIV. Methods Baseline data from a national web-based HIV adherence protocol for youth living with HIV, collected from July 2018 to February 2021, were analyzed. A centralized recruitment procedure was developed, which used web-based recruitment via Online Master Screener; paid targeted advertisements on social media platforms (eg, Facebook and Reddit) and geosocial networking dating apps (eg, Grindr and Jack’d); and site and provider referrals from Subject Recruitment Venues and other AIDS service organizations, website referrals, and text-in recruitment. Results A total of 3 distinct cohorts of youth living with HIV were identified, marked by changes in recruitment strategies. Overall, 3270 individuals consented to screening, 2721 completed screening, 581 were eligible, and 83 completed enrollment. We examined sociodemographic and behavioral differences in completing milestones from eligibility to full enrollment (ie, submitting antiretroviral therapy and viral load data and completing the baseline web-based survey). Those with the most recent viral load tests >6 months ago were half as likely to enroll (odds ratio 0.45, 95% CI 0.21-0.94). Moreover, eligible participants with self-reported antiretroviral therapy adherence (SRA) between 50% and 80% were statistically significant (P<.001 to P=.03) and more likely to enroll than those with SRA >80%. Conclusions The findings add to our knowledge on the use of digital technologies for youth living with HIV before and during the COVID-19 pandemic and provide insight into the impact of expanding eligibility criteria on enrollment. As the COVID-19 pandemic continues and the use of and engagement with social media and dating apps among youth living with HIV changes, these platforms should continue to be investigated as potential recruitment tools. Using a wide variety of recruitment strategies such as using social media and dating apps as well as provider referral mechanisms, increasing compensation amounts, and including SRA in enrollment criteria should continue to be studied with respect to their ability to successfully recruit and enroll eligible participants. International Registered Report Identifier (IRRID) RR2-10.2196/11183

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“…Social media has been widely used for HIV research for promoting HIV prevention [3], [7], recruiting participants for research studies [8], surveillance [9], [10], and secondary data analysis [11]. For example, Heerden et al [9] used the prevalence and patterns of social media use related to HIV risk in South Africa using Twitter, Instagram, and YouTube.…”

Section: Introductionmentioning

confidence: 99%

Using Twitter Data Analysis to Understand the Perceptions, Awareness, and Barriers to the Wide Use of Pre-Exposure Prophylaxis in the United States

Erdengasileng

Tian

Green

et al. 2022

Preprint

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User-generated social media posts such as tweets can provide insights about the public's perception, cognitive, and behavioral responses to health-related issues. Pre-Exposure Prophylaxis (PrEP) is one of the most effective ways to reduce the risk of HIV infection. However, its utilization is low in the US, especially among populations disproportionately affected by HIV such as the age group of under 24 years old. It is therefore important to understand the barriers to the wider use of PrEP in the US using social media posts. In this study, we collected tweets from Twitter about PrEP in the past 4 years to identify such barriers by first identifying tweets about personal discussions, and then performing textual analysis using word analysis, UMLS semantic type analysis, and topic modeling. We found that the public often discussed advocacy, risks/benefits, access, pricing, insurance coverage, legislation, stigma, health education, and prevention of HIV. This result is consistent with the literature and can help identify strategies for promoting the use of PrEP, especially among young adults.

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Recruitment of US Adolescents and Young Adults (AYA) into Human Immunodeficiency Virus (HIV)–Related Behavioral Research Studies: A Scoping Review

Cited by 8 publications

References 42 publications

Comparing Social Media and In-Person Recruitment: Lessons Learned From Recruiting Substance-Using, Sexual and Gender Minority Adolescents and Young Adults for a Randomized Control Trial

Comparing Social Media and In-Person Recruitment: Lessons Learned From Recruiting Substance-Using, Sexual and Gender Minority Adolescents and Young Adults for a Randomized Control Trial

Examining Recruitment Strategies in the Enrollment Cascade of Youth Living With HIV: Descriptive Findings From a Nationwide Web-Based Adherence Protocol

Using Twitter Data Analysis to Understand the Perceptions, Awareness, and Barriers to the Wide Use of Pre-Exposure Prophylaxis in the United States

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