Reframing the focus from a family-centred to a child-centred care approach for children’s healthcare

Coyne, Imelda; Hallström, Inger; Söderbäck, Maja

doi:10.1177/1367493516642744

Cited by 201 publications

(238 citation statements)

References 40 publications

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“…The two perspectives are qualitatively and theoretically different and are better seen as different ends on a continuum, solely from an adult's view of the adolescents to solely the perspective of the adolescents themselves (Nilsson et al, 2015). The move to adolescent-centered care is consistent with governmental policies and national reports in Sweden (Coyne, Hallström, & Söderbäck, 2016). This study is based on an adolescent-centered perspective, which emerges from these two dimensions, that is, having an adolescent perspective and taking the adolescent's perspective.…”

Section: Introductionsupporting

confidence: 53%

Adolescent-Centered Pain Management in School When Adolescents Have Chronic Pain-A Qualitative Study

Nilsson

Rosvall

Jönsson

2016

GJHS

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Chronic pain is common among Swedish adolescents, and stress is an independent factor in the onset and persistence of chronic pain. When Swedish school nurses conduct their health dialogs they have a unique opportunity to find adolescents with chronic pain. The aim of this study was to explore school nurses' and adolescents' experiences of factors that influence adolescent-centered pain management in school health care, when adolescents have chronic pain. The study context is schools in Sweden where primary health care is available through school nurses. A total of 15 school nurses and 15 adolescents participated in individual interviews, which were transcribed and analyzed by qualitative conventional content analysis. Bronfenbrenner's bioecological model was used to explain how these factors are directed at the individual or society. The results demonstrated eight different categories of factors that influenced the pain management. The categories focused mainly on the adolescents' micro-and mesosystems; few strategies were conducted on an exo-and macrosystem level. On the micro-and mesosystem levels, it was necessary to build trust to be able to influence the adolescents' behavior in the pain management. Pharmacological strategies were paracetamol and non-steroidal anti-inflammatory drugs; non-pharmacological strategies were physical activities and stress-reducing activities. Research and practice involving a more holistic perspective, studying the possibilities of both change at the organizational level and individual support for adolescents, are essential.

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Section: Introductionsupporting

confidence: 53%

Adolescent-Centered Pain Management in School When Adolescents Have Chronic Pain-A Qualitative Study

Nilsson

Rosvall

Jönsson

2016

GJHS

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“…A range of benefits from FCC have been reported in the literature, such as improved child and family outcomes, and increased satisfaction among child, family and health care professionals (Shields, 2015, Coyne et al, 2016. However, some recent studies have expressed criticism of FCC, as it does not always provide care from the child's perspective (Shields, 2015, Coyne et al, 2016.…”

Section: Family-centered Care and Child-centered Carementioning

confidence: 99%

“…However, some recent studies have expressed criticism of FCC, as it does not always provide care from the child's perspective (Shields, 2015, Coyne et al, 2016. Coyne et al (2016) suggest that FCC should be provided with a child-centered care approach, where the care is planned around the child's perspective and preferences, and does not set the parents in the center.…”

Section: Family-centered Care and Child-centered Carementioning

confidence: 99%

“…Children must be protected from harm, neglect and abuse, but also from fear, pain and loneliness (Coyne et al, 2016). In previous studies, children and adolescents in hospital have expressed satisfaction and happiness about parents staying the night, and about being able to receive visits from family members and friends (Schalkers et al, 2015, Pelander and LeinoKilpi, 2010, Coyne, 2015.…”

Section: Being Together As a Family Improves Sleep And Decreases Stressmentioning

confidence: 99%

“…Regardless of age, children admitted to hospital have the right to have their parents with them 24 hours/day (European Association for Children in Hospital, 2001). Both parents and nurses have stated that family-centered care (FCC) is essential for the child's welfare as it reduces the stressful aspects of being admitted to hospital (Coyne et al, 2016, Shields et al, 2006, Shields et al, 2012, Feeg et al, 2016.…”

Section: Introductionmentioning

confidence: 99%

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What about the parents? : Sleep quality, mood, saliva cortisol response and sense of coherence in parents with a child admitted to pediatric care

Angelhoff¹

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Parents experience many stressful situations when their child is ill and needs medical care, irrespective of the child’s age, diagnosis or the severity of the illness. Poor sleep quality and negative mood decrease the parents’ ability to sustain attention and focus, to care for their ill child, and to cope with the challenges they face. The overall aim of this thesis was to evaluate sleep, mood, cortisol response, and sense of coherence (SOC) in parents caring for children in need of medical care, and to identify factors that may influence parents’ sleep. This thesis includes four original studies; two of these are quantitative, prospective, descriptive and comparative studies including parents (n=82) accommodated in six pediatric wards with their ill child, using questionnaires and sleep logs to measure sleep, mood and SOC, and saliva cortisol to measure cortisol response. A follow-up was performed four weeks later at home, after hospital discharge. The other two studies are qualitative, inductive and explorative interview studies, including parents (n=12) staying overnight with their preterm and/or ill infant in three neonatal intensive care units, and parents (n=15) with a child receiving hospital-based home care in two pediatric outpatient clinics. The interviews were analyzed with a phenomenographic method. Being together with one’s family seems beneficial for sleep and may decrease stress. The ability to stay with the child, in the hospital or at home, was highly appreciated by the parents. When caring for a child with illness, parents’ sleep quality was sufficient in the hospital; however, sleep quality improved further (p<0.05) at home after discharge. The parents reported frequent nocturnal awakenings in the hospital caused by the child, medical treatment and hospital staff. Concern and anxiety about the child’s health, and uncertainty about the future were stressors affecting the parents’ sleep and mood negatively. The parents had lower (p=0.01) morning awakening cortisol levels in the pediatric ward compared to at home, and parents accommodated for more than one night had lower (p<0.05) post-awakening cortisol levels compared to parents staying their first night. The findings of this thesis conclude that being together as a family is important for the parents’ sleep. The ability to be accommodated in the hospital and gather the family around the child may have given the parents time for relaxation and recovery, that in turn may lead to a less stressful hospital stay. When it is beneficial for the child, the whole family should be included in the pediatric care. Moreover, pediatric nurses must acknowledge parents’ sleep, in hospital and at home. Medical treatment and care at night should be scheduled and sleep promoted for the parents in order to maintain health and well-being in the family.

The electronic version of the thesis is a corrected version of the printed thesis.

This thesis has also been funded by Barnklinikens 60-årsfond, Filip SchelinsStiftelse, Riksföreningen för barnsjuk...

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Principles of Care Planning
Corkin,
Cardwell
2023
Care Planning in Children and Young People's Nursing 2e
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Reframing the focus from a family-centred to a child-centred care approach for children’s healthcare

Cited by 201 publications

References 40 publications

Adolescent-Centered Pain Management in School When Adolescents Have Chronic Pain-A Qualitative Study

Adolescent-Centered Pain Management in School When Adolescents Have Chronic Pain-A Qualitative Study

What about the parents? : Sleep quality, mood, saliva cortisol response and sense of coherence in parents with a child admitted to pediatric care

Principles of Care Planning

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