Relation Between Quality of Life of Mothers of Children With Cerebral Palsy and the Children's Motor Functioning, After Ten Months of Rehabilitation

Prudente, Cejane Oliveira Martins; Barbosa, María Alves; Porto, Celmo Celeno

doi:10.1590/s0104-11692010000200002

Cited by 46 publications

(53 citation statements)

References 13 publications

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“…In the field of physical, psychologic, and environmental health, the effect of intervention was significant and in accordance with the results of current research (11). In another study, Prudent et al examined the effect of using various types of rehabilitation interventions on the mothers' QOL (12).…”

Section: Discussionsupporting

confidence: 81%

Effect of Training the Correct Methods of Child's Carrying and Positioning on Quality of Life of Mothers of Children with Cerebral Palsy

Babaei

Hosseini

Rigi-Khas

et al. 2014

Jentashapir J Health Res

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Background:Children with Cerebral palsy need to be cared like other children, the same as other children do. Usually the primary caregivers of children are their mothers who experience several problems due to this prolonged care. Objectives: This research aimed to investigate the effect of education of the correct ways of carrying and positioning to mothers of children with cerebral palsy on mothers' quality of life (QOL). Patients and Methods:This randomized clinical trial was conducted on 20 mothers of children with cerebral palsy who were referred to rehabilitation centers of Ahvaz school of rehabilitation sciences. They were randomly assigned to two groups of ten. The correct ways of carrying and positioning were instructed in two sessions to experimental group and then QOL in both groups was assessed at baseline, after second session, and after four weeks. The data were analyzed by the SPSS version 16. Results: The mean differences in three domains of QOL including the physical health, psychological health, and environmental health, were significant between groups (P < 0.05). The difference in scores of social relationships domain was not significant between groups (P > 0.05). Conclusions: Since the difference between groups was significant in three domains of QOL, it can be concluded that the training could influence the QOL of mothers of children with cerebral palsy. Training the parents by experts is recommended.

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Section: Discussionsupporting

confidence: 81%

Effect of Training the Correct Methods of Child's Carrying and Positioning on Quality of Life of Mothers of Children with Cerebral Palsy

Babaei

Hosseini

Rigi-Khas

et al. 2014

Jentashapir J Health Res

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“…Basaran et al [24] evaluated children's factors that could affect caregivers' QoL and emotional distress by researching the five-level GMFCS. Each participant's QoL and emotional distress were scored by the Turkish Form of World Health Organization Quality of Life Assessment (WHOQOL-BREF TR), beck depression index (BDI), and beck anxiety inventory [11,24,25]. In this study, the physical, psychological, and total scores of WHOQOL-BREF TR and BDI of the caregivers of children with CP were statistically significantly correlated with their wards' GMFCS scores.…”

Section: Discussionmentioning

confidence: 71%

“…It comprises 36 items and is classified into 8 domains-(1) functional activity (10 items); (2) physical conditions (4 items); (3) pain (2 items); (4) general health status (5 items); (5) vitality (4 items); (6) social conditions (2 items); (7) emotional conditions (3 items); and (8) mental health (5 items). And using the SF-36, the previous studies could assess both negative (disease or illness) and positive (well-being) health aspects and this questionnaire also reflects both physical stress and emotional distress [11,12]. The SF-36 scores range from 0 to 100, meaning score 0 to the worst and 100 to the best health status.…”

Section: Instrumentmentioning

confidence: 99%

“…Caregiver's QoL has been commonly measured using the Medical Outcomes Study 36-item short form health survey (SF-36), which reflects both physical stress and emotional state [8,[10][11][12]. However, those previous studies only analyzed the caregivers' demographic data such as family income or children's disease severity such as Gross Motor Function Classification Scale (GMFCS) results, which classify the findings into five motor commitment levels [11,12].…”

Section: Introductionmentioning

confidence: 99%

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Relationship between the quality of life of the caregiver and motor function of children with cerebral palsy

Yun

2017

PTRS

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Objective: The purpose of this study was to evaluate the relationship between quality of life (QoL) of the caregiver and disease severity with motor function in children with cerebral palsy (CP). Design: Cross-sectional study. Methods: Research data were collected in the Rehabilitation Clinic of Daegu University. The Gross Motor Function Measure (GMFM-88) and the functional independence measure (FIM) were used for assessment by three occupational therapists, and the 36-item short form health survey (SF-36) were applied to the caregivers. One hundred six caregivers of under 18 years who were diagnosed with CP completed a survey and interview. The caregivers' QoL was evaluated using Medical Outcomes Study SF-36. The children's motor function was scored using GMFM-88 in five dimensions: lying and rolling; sitting; crawling and kneeling; standing and walking, running and jumping and CP's FIM scores. Results: Out of the 8 domains of the Medical Outcomes Study SF-36, the "physical functioning", "physical role functioning", "mental health", and "bodily pain" domains were significantly correlated to "total" percentage scores of the GMFM-88 (p<0.05). In addition, the "mental health" domain was correlated to each subdomain of the GMFM-88, which includes, "lying and rolling", and "crawling and kneeling". Similarly, of Medical Outcomes Study SF-36, "physical functioning", "bodily pain", and "mental health" domains were significantly correlated with "transfer" and "locomotion" of FIM scores (p<0.05). Conclusions: This study showed that the QoL of the caregivers were well correlated with the motor function of children with CP. It is also important to support not only physical health but also psychological health of caregivers of children with CP, especially those with severe motor function.

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“…Symptoms of anxiety and depression are reported by caregivers of individuals with intellectual disabilities 12 . The primary caregiver is the main person with total or greater responsibility in the care provided to the person being cared for, and no monetary compensation is given for the care provided 13 . Within the family nucleus, mothers are particularly vulnerable because they take on the role of primary caregiver in most families.…”

Section: Introductionmentioning

confidence: 99%

Sobrecarga dos cuidadores de crianças e adolescentes com Síndrome de Down

Barros

et al. 2017

Ciênc. saúde coletiva

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Relation Between Quality of Life of Mothers of Children With Cerebral Palsy and the Children's Motor Functioning, After Ten Months of Rehabilitation

Cited by 46 publications

References 13 publications

Effect of Training the Correct Methods of Child's Carrying and Positioning on Quality of Life of Mothers of Children with Cerebral Palsy

Effect of Training the Correct Methods of Child's Carrying and Positioning on Quality of Life of Mothers of Children with Cerebral Palsy

Relationship between the quality of life of the caregiver and motor function of children with cerebral palsy

Sobrecarga dos cuidadores de crianças e adolescentes com Síndrome de Down

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