School behaviour and health status after central nervous system tumours in childhood

Abstract

Summary This study was designed to assess the overall morbidity burden of survival from central nervous system (CNS) tumours and its impact on return to a normal lifestyle. School behaviour and health status of 27 children after treatment for CNS tumours, of 25 of their schoolaged siblings, plus age-and sex-matched controls is reported. Spinetta school behaviour, Lansky play-performance and Health Utilities Index (mark 11 and ll) assessments have been made. Patients had reduced mobility and increased pain levels. They demonstrated a reluctance to participate in organized physical activities. Impaired cognition, emotion and self-esteem were reported. They worried more than controls but attended school willingly, interacted normally with their peers and viewed the future confidently. Their siblings were reluctant to express openly concern for others or feelings of joy. Teachers were reliable proxies for most attributes, notable exceptions being speech and emotion. This is the first study to have assessed the school behaviour of a cohort solely composed of survivors of childhood CNS tumours. The good social reintegration is reassuring and likely to reflect a high level of psychosocial support. However, the results presented identify these young people as a 'special educational needs' group as defined by the 1981 and 1993 Education Acts.

The desire to hasten death: Using Grounded Theory for a better understanding “When perception of time tends to be a slippery slope”

“…10,11 The main modification was the omission of theoretical sampling, as the number of patients with a wish for hastened death was small, and no larger pool of study candidates was available. The methodology and the modification have been described in detail elsewhere.…”

Long‐term outcomes of childhood cancer survivors in Sweden: A population‐based study of education, employment, and income

“…Childhood cancer has previously been reported to be associated with learning difficulties [8][9][10] and an adverse impact on academic achievement. 3,[11][12][13][14] Conversely, many long-term survivors appear to catch up with normative standards over time.…”

Qualidade de vida e autismo de alto funcionamento: percepção da criança, família e educador

“…No caso da criança, devido à complexidade dos itens envolvidos nessa avaliação e, por falta de instrumentos adequados, ainda é preciso recorrer a outros respondentes (GLASER et al, 1997b RIBEIRO et al, 2004).…”

“…A escolha de se incluir os educadores nesta pesquisa, no intuito de se analisar os índices de concordância, deu-se em função de sugestões de estudiosos da área (GLASER et al, 1997b;EISER;MOHAY;MORSE, 2000;PUIG et al, 2008).…”

“…Resultados obtidos em estudo delineado por Glaser et al (1997b) PARSONS et al, 1999;ANDERS;LIMA, 2004) concordam, assim, que as crianças estão aptas para fornecerem dados de QV de forma válida e confiável.…”