Self‐Efficacy and Social Support as Mediators in the Relation Between Disease Severity and Quality of Life in Patients with Epilepsy

Amir, Marianne; Roziner, Ilan; Knoll, Alon; Neufeld, Miriam Y.

doi:10.1111/j.1528-1157.1999.tb02078.x

Cited by 180 publications

(123 citation statements)

References 30 publications

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“…These trends may result from a differential impact of left versus right hemispheric lesions that may contribute to a bias in patients' self-report of QOL in predictable ways. Suggestions for future research include the use of a QOL questionnaire as well as other self-awareness measures (35) by the patients with typical and atypical cerebral language representation and performing the study postsurgically as well as on a larger sample of patients with a variety of neurologic diseases. …”

Section: Discussionmentioning

confidence: 99%

Quality of Life Self‐Assessment as a Function of Lateralization of Lesion in Candidates for Epilepsy Surgery

2001

Self Cite

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Summary:Purpose: This prospective study aimed to investigate the relationship(s) of the laterality of the epileptogenic lesion to personality factors, emotional processing, and the subjective experience of quality-of-life (QOL) self-assessment in candidates for epilepsy surgery.Methods: Patients who were candidates for epilepsy surgery were studied. Eighteen of them (aged 19-61 years) had localization-related epilepsy in the right temporal lobe (RTLE), 18 (aged 21-50 years) had localization-related epilepsy in the left temporal lobe (LTLE), and 20 were demographically matched normal subjects. The Spielberger Trait/State Anxiety questionnaire and the QOLIE-31 questionnaire for selfassessment of quality of life were used. One-way analysis of variance, Pearson correlations, and linear regression analyses were performed on group and anxiety levels and QOLIE variables.Results: LTLE patients systematically showed higher levels of anxiety and lower self-estimates of the quality of their lives when compared with RTLE patients. All anxiety measures were highly correlated with Total QOL in LTLE (p < 0.05) but not in RTLE patients; however, different parameters of QOL showed different relationships with measures of anxiety. Results of multiple regression analyses suggested that the level of anxiety was relatively stable and less affected by QOL factors in LTLE as compared with RTLE patients (p ‫ס‬ 0.03).Conclusions: A high level of anxiety shown by LTLE patients may represent a personality trait and cause a response bias in overreporting of negative symptoms and a decreased self-assessment of QOL. It may also present a presurgical risk factor, particularly for patients with LTLE lesions. Appropriate patient counseling is advised.

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Section: Discussionmentioning

confidence: 99%

Quality of Life Self‐Assessment as a Function of Lateralization of Lesion in Candidates for Epilepsy Surgery

2001

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“…A QV sofre influência de vários fatores relacionados a: estratégias de adaptação psicossocial 10 , traços de personalidade do indivíduo 11 , sua história e expectativas em relação a vida 12 , seu auto-conceito 10 e auto-eficiência 13 , suporte social que recebe das pessoas que lhe são significativas 13 , seu locus de controle 10-13-14-15 e percepção de controle de crises. Dentre estes fatores, esta última foi a variável subjetiva pesquisada neste estudo.…”

Section: Discussionunclassified

“…A experiência de falta de controle e incerteza é central para estes pacientes. Isto se aplica às crises, falta de controle do próprio corpo, dependência da medicação e de ajuda dos outros significativos 13 . Pessoas com epilepsia generalizam seus sentimentos de falta de controle durante a crise para outros aspectos de suas vidas e desenvolvem uma expectativa de que certas experiências estão além de seu controle.…”

Section: Discussionunclassified

Qualidade de vida em epilepsia e percepção de controle de crises

Salgado

Souza

2001

Arq. Neuro-Psiquiatr.

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RESUMO -As avaliações afetivo-cognitivas do sujeito são importantes fatores que controlam a maneira como o indivíduo sente o impacto da doença no cotidiano de sua vida. Neste sentido, a percepção de controle de crises é mais importante na avaliação da Qualidade de Vida (QV) do que as variáveis que caracterizam a doença, como sua severidade, tipo, duração e frequência de crises. Este estudo considerou a relação das variáveis subjetivas (percepção de controle de crises) e das características da doença, para avaliar a QV. .oram avaliados 60 sujeitos com diagnóstico de epilepsia, aleatoriamente selecionados no ambulatório de epilepsia do HC/UNICAMP, com idade entre 18 e 70 anos (M=37,05; DP=11,25), através do Questionário de Qualidade de Vida 65. As variáveis da doença não apresentaram relação significativa com a QV, com exceção da frequência de crises que apareceu associada à piora na QV, entre crises controladas e crises com frequência acima de 10 por mês (p=0,021). A percepção do controle de crises apareceu significantemente associada à QV (p= 0,005).PALAVRAS-CHAVE: qualidade de vida, percepção de controle de crises, epilepsia. Quality of life in epilepsy and perception of seizures controlABSTRACT -The individual affective-cognitive evaluations are important factors that control the way he feels the disease impact in his life. Then, the perception of seizure control is a more important factor to evaluate Quality of Life (QoL) than the illness characteristics, such as the severity, type, sickening period and seizure frequency. This study searched for the relationship among the subjective variables (perception of seizure control) and the illness characteristics to evaluate QoL. The sample consisted of 60 individuals with chronic epilepsy, aging 18 to 70 (M=37.05; SD=11.25), chosen at randon from the ambulatory of epilepsy -HC/ UNICAMP, by the Questionnaire 65. The illness characteristics were not significant, except the seizures frequency, when associated to the impairment in QoL among controlled seizures and seizures with frequency higher than 10 per month (p=0.021). The perception of control was significantly associated to QoL (p=0.005).KEY WORDS: quality of life, perception of seizures control, epilepsy. A epilepsia não pode ser considerada um estado, ela é um distúrbio episódico; no entanto, é um distúrbio estigmatizado 1 . Devinsky e Penry 2 apontam para a diferenciação existente entre crise e epilepsia. Segundo os autores, a crise tem um limite de duração, ela termina, enquanto que a epilepsia, para muitas pessoas, é uma condição crônica, que limita os pacientes em suas atividades diárias. A epilepsia afeta cada pessoa de forma diferente. Apenas os portadores de epilepsia percebem as limitações e restrições de cada dia. Todas as crises tem um significado dependente da história de vida de cada sujeito, determinando assim padrões de resposta em relação à doença. A epilepsia tem um impacto maior na saúde mental e social do que na saúde física, comparando-a com outras doenças crônicas 3 . Uma doença crônica afeta...

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“…Both are described as mastery variables influencing the patient's quality of life [55] and as predictors for psychological distress [56]. Accordingly, happiness with life and self-confidence are particularly low in patients with high seizure frequency [57].…”

Section: Loss Of Controlmentioning

confidence: 99%