Self-management interventions for young people with chronic conditions: A systematic overview

Sattoe, Jane N. T.; Bal, Marjolijn I.; Roelofs, Pepijn D D M; Bal, Roland; Miedema, Harald S.; Staa, AnneLoes van

doi:10.1016/j.pec.2015.03.004

Cited by 105 publications

(136 citation statements)

References 116 publications

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“…Then, the two reviewers independently decided on the inclusion of articles based on the full text, resulting in 85 publications. For this paper we were interested in effects and effective intervention components, in contrast to the parallel paper [29], and therefore selected studies with RCT design (n = 42) from the included publications. The selection process and reasons for exclusion are presented in Fig.…”

Section: Selection Quality Assessment and Data Extractionmentioning

confidence: 99%

“…A detailed overview of the focus and content of the interventions presented in the parallel paper, showed a variety in the operationalization of self-management support [29]. Most SMI were aimed at medical management, neglecting psychosocial challenges.…”

Section: Paralell Papermentioning

confidence: 99%

“…In a parallel paper including SMI evaluation studies using all kinds of study designs, a systematic overview of self-management support for youth with chronic conditions in general with respect to content, formats, theories, and evaluated outcomes is provided [29]. This systematic overview showed that most interventions were aimed at medical management, and that no theoretical base was provided for most of the included interventions.…”

Section: Introductionmentioning

confidence: 99%

“…This systematic overview showed that most interventions were aimed at medical management, and that no theoretical base was provided for most of the included interventions. Although a variety of outcomes was evaluated, outcomes were conceptually related to specific content [29]. No results about effectiveness of SMI were included in this overview.…”

Section: Introductionmentioning

confidence: 99%

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Exploring effectiveness and effective components of self-management interventions for young people with chronic physical conditions: A systematic review

Bal

Sattoe

Roelofs

et al. 2016

Patient Education and Counseling

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Adherence could be improved through interventions focused on medical management, provided individually in a clinical or home setting by a mono-disciplinary team. Interventions focused on dealing with a chronic condition might be provided individually, through telemedicine programs facilitating peer-support. These intervention elements seemed effective irrespective of diagnosis, and may therefore act as good starting points for further research into and for improvement of self-management support for youth with chronic conditions in pediatric care. Results underlined the need to systematically develop and evaluate self-management interventions, since this may provide more evidence for effectiveness and effective intervention components.

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Section: Selection Quality Assessment and Data Extractionmentioning

confidence: 99%

Section: Paralell Papermentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 2 more Smart Citations

Exploring effectiveness and effective components of self-management interventions for young people with chronic physical conditions: A systematic review

Bal

Sattoe

Roelofs

et al. 2016

Patient Education and Counseling

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“…In the last 40 years, advances in pediatric medicine have reduced the mortality rates of many fatal chronic diseases, increasing the survival of youths into adolescence and adulthood (Sattoe et al, 2015). However, living with chronic disease in adolescence still have a significant high risk for poor Quality of Life (QoL) and health-related quality of life (HRQoL) (Alba et al, 2013;Elsenbruch, Schmid, Lutz, Geers, & Schara, 2013;Mellion et al, 2014), particularly in psychological functioning (Moreira et al, 2013;Santos, Matos, Simões, & Machado, 2015;Williams, Sharpe, & Mullan, 2013) and social dimensions (Carona, Moreira, Silva, Crespo, & Canavarro, 2014;Compas, Jaser, Dunn, & Rodriguez, 2012).…”

Section: Introductionmentioning

confidence: 99%

Do Clinical And Psychosocial Factors Affect Health-Related Quality of Life in Adolescents with Chronic Diseases?

Santos¹,

Matos²,

Marques³

et al. 2017

GJHS

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Living with a chronic disease in adolescence can have an impact on the perception of Health-related Quality of Life (HRQoL). Facing the increasing relevance of psychosocial dimensions and also considering the interaction with clinical variables, this study aimed to measure the impact of clinical and psychosocial factors (separated and combined) on adolescent's reported HRQoL.A cross-sectional study was conducted in a clinical population of 135 adolescents with chronic diseases (n=70 boys), average age: 14±1.5 years old. Through a self-reported questionnaire, HRQoL (KIDSCREEN-10), socio-demographic, clinical variables (diagnostic; time of diagnosis; self-perceived pain; disease severity proxy; disease-related medication intake/use of special equipment), and psychosocial variables (psychosomatic health; resilience; self-regulation; social support) were assessed.Separately, clinical and psychosocial variables showed a significant impact in HRQoL, 27.9% and 62.4%, respectively. Once combined, the previously identified variables had a significant impact (64.2%), but a different contribution from clinical and psychosocial variables was revealed: when first entering the clinical variables (model 1) the variance only reaches 30%, and much more from psychosocial variables seems to explain the total (64.2%); inversely, when first integrating psychosocial variables (model 2), the clinical ones added a small significance to the model (0.6%).The present study underlined the association of clinical ("disease-related") and psychosocial ("non-disease-related") factors on HRQoL. Furthermore, it reinforced the need to focus more on psychosocial dimensions, highlighted the potential role of psychosomatic health, resilience, self-regulation and social support. It can be suggested that the identification of impaired psychosocial domains may help professionals to better plan, and achieve effective interventions of psychosocial care.

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Informing Digital Programs for Lupus Self‐Management Education: A Systematic Scoping Review

Carpenter,

Gilman,

French

et al. 2024

Arthritis Care & Research

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ObjectiveWe describe the characteristics, content, and effectiveness of digital self‐management (SM) education programs for lupus and other chronic conditions to identify gaps and inform the improvement of future programs in lupus.MethodsThree bibliographic databases were searched for articles published between May 2012 and April 2022. The search was cast to capture the breadth of digital SM education programs in the following conditions: lupus, epilepsy, fibromyalgia, multiple sclerosis, sickle cell anemia, Sjogren's syndrome, psoriatic arthritis, and rheumatoid arthritis. Title and abstract screening, as well as full‐text review, was conducted by two independent reviewers. Data extraction was first completed by one author charting all studies and then, a second time, by four members of the research team charting collaboratively.ResultsOf the 1,969 articles identified through the search, 14 met inclusion criteria. Two additional articles were included following bibliography review. The 16 articles represented 12 unique digital SM education programs. Programs covered five conditions: epilepsy (n=3), fibromyalgia (n=2), multiple sclerosis (n=4), lupus (n=1), and rheumatoid arthritis (n=2). Most programs were asynchronous and internet‐based (n=9) with a prescribed sequence of content (n=8). Peer, technical, or specialist support was offered in seven programs. Most programs demonstrated statistically significant improvement of symptoms in the intervention group (n=8).ConclusionThis scoping review summarizes the current landscape for digital SM education programs in lupus and similar conditions. In lupus, further investigation will fill in the gaps around digital SM education needs, user experience and evaluation of outcomes.

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Self-management interventions for young people with chronic conditions: A systematic overview

Cited by 105 publications

References 116 publications

Exploring effectiveness and effective components of self-management interventions for young people with chronic physical conditions: A systematic review

Exploring effectiveness and effective components of self-management interventions for young people with chronic physical conditions: A systematic review

Do Clinical And Psychosocial Factors Affect Health-Related Quality of Life in Adolescents with Chronic Diseases?

Informing Digital Programs for Lupus Self‐Management Education: A Systematic Scoping Review

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