Self-Reported Anxiety, Depression and Coping in Parents of Children with Phenylketonuria

Abdelaziz, Rim Ben; Chehida, Amel Ben; Chakchouk, Henda Kachouri; Messaoud, Sana Ben; Hajji, H.; Boudabous, Hela; Ferchichi, M.; Azzouz, Hatem; Tebib, Néji

doi:10.1007/s10882-019-09674-4

Cited by 2 publications

(3 citation statements)

References 57 publications

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“…Avoidance and dysfunctional coping also appeared among the coping strategies used. In order to deal with the stressful situation of a child's illness, parents also used stimulants [15,19,40,43,49].…”

Section: Discussionmentioning

confidence: 99%

Coping with child’s disease by children and their parents (guardians) – a systematic review of the literature

Bąk,

Zarzycka

2022

Pielegniarstwo XXI Wieku / Nursing in the 21st Century

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Introduction. Illness is a stressful experience for a sick child and its parents (guardians). Coping and studying specific coping behaviors of parents and children with the disease are an essential part of care. Aim. Presentation of available research results in English and/or Polish, carried out by researchers in the field of coping strategies of children and their parents (guardians) with the child’s disease. Material and methods. The systematic review was conducted in accordance with the Preferred Reporting Items for Systematic Review and Meta Analyzes (PRISMA 2020) statement. Electronic databases searched in May 2021 included PubMed, Scopus and Web of Science. Methodological limitations demonstrated using the Critical Skills Appraisal Program (CASP) check-lists package. In total 42 articles were qualified for the analysis. Results. The analysis of the publications showed that children and their parents most often cope with the disease through social support, active coping, emotional-focused coping, referring to religion and avoidance. Conclusions. Conscious use of coping strategies may contribute to better results in the treatment undertaken and allow the child and its parents to feel in control of the stressful situation in which they find themselves. Knowing about parents’ and child’s coping strategies can be helpful in developing childcare plans.

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Section: Discussionmentioning

confidence: 99%

Coping with child’s disease by children and their parents (guardians) – a systematic review of the literature

Bąk,

Zarzycka

2022

Pielegniarstwo XXI Wieku / Nursing in the 21st Century

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“…Maternal anxiety tends to increase over time because of child rejection of protein substitutes (9) . Also, agitation and behavioral problems were associated with a higher parental score of anxiety and depression (10) . The primary goal of providing nursing care for the child with phenylketonuria and his family is making sure that the caregiver will be able to provide the appropriate nutritional needs of the infant.…”

Section: Phenylketonuriamentioning

confidence: 94%

“…The rating Likert scale ranges from 0 to 3 as follows: 0 "Did not apply to me at all", 1 "Applied to me to some degree, or some of the time", 2 "Applied to me to a considerable degree or a good part of the time", 3 "Applied to me very much, or most of the time" (14( . Total scores for depression, anxiety, and stress are calculated by summing the scores for the relevant items: -Depression scale (3,5,10,13,16,17,21) assesses depressive symptoms including dissatisfaction, despair, loss of interest in life, loss of passion, unwillingness to change, and selfcriticism.…”

Section: Operational Definitionmentioning

confidence: 99%

Caring for A Child with Phenylketonuria: Struggles and Psychological Well- being of Parents and Children

Aboelela

Hanfy²,

Moustafa³

2023

Tanta Scientific Nursing Journal

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Background: Phenylketonuria is a genetic disorder resulting from lack or inadequacy of phenylalanine hydroxylase enzyme activity. Caring for and making nutritional decisions for a child with phenylketonuria puts a great deal of stress on the parents. Moreover, the financial and psychological burden of the disease as well as its chronic nature could affect the psychological well-being of both parents and their children with phenylketonuria. Aim: to assess the struggles and psychological well-being of parents and their children with phenylketonuria. Subjects & Method: a correlational descriptive study design was conducted on of 145 parents and their children with phenylketonuria. Tools: three tools were used to collect the necessary data for the current study, tool (I): Self-administered questionnaire to collect bio-sociodemographic data, tool (II): Depression, Anxiety, and Stress Scale, tool (III) The Strengths and Difficulties Questionnaire. Results: it was found that 17.9%, 29%, and 15.9% of the participant parents have extremely severe levels of depression, anxiety, and stress respectively. The results also reveal that 64.8%, 59.3%, 53.1%, and 58.6% of the studied children have emotional, conduct, hyperactivity, and peer problems respectively. Moreover, 62.8% of the studied children have a negative impact on different areas of their everyday life related to the difficulties they have. Conclusion: the studied parents struggle to provide care and special foods for their children with phenylketonuria. Behavioral and psychological difficulties facing children with phenylketonuria affect the psychological well-being of their parents. Recommendations: further qualitative studies are needed to provide deep insights into challenges perceived by parents of Phenylketonuria children. Designing and implementing training programs for parents to improve their coping strategies and psychological well-being is mandatory.

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Self-Reported Anxiety, Depression and Coping in Parents of Children with Phenylketonuria

Cited by 2 publications

References 57 publications

Coping with child’s disease by children and their parents (guardians) – a systematic review of the literature

Coping with child’s disease by children and their parents (guardians) – a systematic review of the literature

Caring for A Child with Phenylketonuria: Struggles and Psychological Well- being of Parents and Children

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