“Sempre ajudando em uma coisa ou outra”: rede social da família da pessoa com estomia

Abstract

intitulada "Tecituras da rede social da família no cuidado à pessoa com estomia", apresentada ao

Rede social no cuidado à pessoa estomizada por câncer colorretal

“…The opposite was observed among people living in social isolation who had low levels of life satisfaction and emotional support, indicating the negative effect of theotomy on their lives. 11 It is highlighted, in this study, that the presence of friends also meant companionship to confront fears and anxieties, as well as financial support and help to experience spirituality.…”

“…2019;13:e239569 https://doi.org/ 10.5205/1981-8963.2019.239569 function or category, offered to the participants: attention, welcome, affection, respect, orientations and materials for the care with the stommy, which can contribute to ease the fear, anxiety and clarify the doubts related to selfcare. 5,11,13,17 Nevertheless, it was emphasized that the same was not identified in the contact with the professionals of the primary health care network, because in the perception of the participants, the professionals of this level of attention, especially the nurses, were not present in the life of these people who live with the problem of cancer and in this way did not perceive the support or support with regard to the necessary care.…”

“…24,26 It was verified in an investigation carried out in the United Kingdom that the articulation between the nurses of the diverse levels of attention to the health guarantees the continuity of the care and integrality of the health care of the person with ostomy. 11 It is considered fundamental that the nurse of the primary health care level be articulated to the other professionals of the cancer care network and in their care practice consider the psychosocial, emotional and spiritual needs of the individuals, in addition, from the knowledge of the social context of the person with colorectal cancer, this professional may influence the person's selfesteem, confidence and safety during their rehabilitation, 4,6,10,12,17,20,24 as well as in the adjustment of everyday life to issues arising from chronic disease. 22,[25][26] The restricted number of participants is limited to this study, which may not guarantee the generalization of the results for all people with colorectal cancer who live with an estomy.…”

“…9 It is observed that in the area of oncology the biomedical and epidemiological aspects related to the different types of neoplasias reflect in the advance of the knowledge on the subject. 1,[10][11] It is observed, however, in the national and international scientific literature that there is still a gap in the production of research aimed at understanding the social network of people with colorectal cancer. [4][5][6][7][12][13] It is believed that this investigation amplifies the understanding of the determinants and social determinants involved in the daily life of the person with the ostomy 2,13 and attends one of the priority areas of health research in Brazil, regarding the evaluation of social support networks and life dynamics of people with chronic diseases.…”

Cuidado sociocultural na cronicidade: em busca de um cuidado que faça sentido

“…Trabalhou-se com pessoas em diversas situações crônicas de saúde-doença, buscando conhecê-las na tentativa de entender e interpretar os seus saberes e como se cuidavam nas situações de fragilidade. No geral, as pessoas cuidam-se associando o cuidado familiar ou cultural (aquele aprendido na família, no interior de sua cultura, ou ainda com o auxílio das redes sociais de apoio) ao cuidado profissional (Budó, 1994;Silva et al 2013;Simon et al 2015). Percebeu-se, nos estudos, que embora impregnada da história de vida das pessoas, a forma do viver e cuidar não é fechada para o conhecimento científico: ela se modifica à medida que novos conteúdos são absorvidos no contato com o conhecimento científico.…”