Service user involvement in global mental health

Ryan, Grace; Semrau, Maya; Nkurunungi, Eddie; Mpango, Richard

doi:10.1097/yco.0000000000000506

Cited by 19 publications

(7 citation statements)

References 16 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Recent articles centered on global mental health have emphasized the need for these efforts to be collaborative and include local and regional professionals as coleaders. (Bass et al, 2022; Bemme & D’souza, 2014; Bemme & Kirmayer, 2020; Kirmayer & Pedersen, 2014; Moitra et al, 2023; Ryan et al, 2019). These authors state clearly that global mental health programs must be immersed in the local culture and oriented toward sustainability with cultural modifications of Western approaches, including an assessment of current services and the perspectives of those needing mental health care.…”

Section: Discussionmentioning

confidence: 99%

Experiences in global mental health.

Sargent

2024

American Journal of Orthopsychiatry

View full text Add to dashboard Cite

Participating in Global Mental Health program development and education and training efforts is rewarding and exciting work. The author describes several global experiences he has engaged in over the past 30 years, which has focused on teaching and encouraging family therapy and mental health care that support human rights and promote human development as innovated and promoted by the Global Alliance for Behavioral Health, formerly the American Orthopsychiatric Association. The author learned through participation that merely presenting mental health information and treatment approaches through lecture presentation was not adequate to help professionals and advocates in low-and middle-income countries to build sustainable mental health care systems in their home regions. The author engaged in several collaborative program development efforts with local professionals at their invitation. These programs, consisting of multiyear partnerships based on the needs and culture of the home region, will be described in the article. The programs, based on relationships between local professionals and a U.S. team of experts in child mental health care, had long-term positive effects and were highly rewarding. The basis for these programs was an invitation by local professionals, followed by collaboration in setting the agenda for the U.S. professionals' visits, an on-going relationship in which local professionals trusted that the visitors want and need to understand the local cultural environment, and improvements that will be most helpful and sustainable. In this process, the author learned about the cultures he worked in and was a part of extremely meaningful and enlightening relationships and experiences. Lessons Learned From Lectures and CoursesMy international experience began with an invitation to present three lectures on family therapy treatment of child abuse, conduct This document is copyrighted by the American Psychological Association or one of its allied publishers.This article is intended solely for the personal use of the individual user and is not to be disseminated broadly.

show abstract

Section: Discussionmentioning

confidence: 99%

Experiences in global mental health.

Sargent

2024

American Journal of Orthopsychiatry

View full text Add to dashboard Cite

show abstract

“…However, the lowest medication adherence was associated with a higher risk of suicide attempt and NSSI. Schizophrenia patients’ suicidal intent and involvement of psychological support, especially those with good medication adherence who might have been previously disregarded, need to be highlighted in community practices within middle- and low-income countries [ 38 , 39 ].…”

Section: Discussionmentioning

confidence: 99%

Medication non-adherence and self-inflicted violence behaviors among 185,800 patients with schizophrenia in the community: a 12-year cohort study

Zuo,

Yang,

et al. 2024

BMC Med

View full text Add to dashboard Cite

Background Despite the importance of medication adherence in treatment effectiveness, little is known about the association between medication non-adherence and self-inflicted violence behaviors. We aimed to assess whether medication non-adherence increased the risk of self-inflicted violence behaviors among schizophrenics in communities (hypothesis 1) and whether the dose–response relationship existed (hypothesis 2). Methods This 12-year cohort study in western China recruited 292,667 community-dwelling schizophrenics. The proportion of regular medication (PRM) was calculated by dividing the time of “regular adherence” by the total time of antipsychotic treatment during follow-up period as an indicator of medication adherence. For hypothesis 1, medication adherence was designated as a binary variable with a threshold of 0.8 (PRM); for hypothesis 2, medication adherence was specified as five-category and continuous variables, respectively. Inverse probability weighting and mixed effects Cox proportional hazards models were conducted for confounders control and survival analyses. Results One hundred eighty-five thousand eight hundred participants were eligible for the final analyses, with a mean age of 47.49 years (SD 14.55 years), of whom 53.6% were female. For hypothesis 1, the medication non-adherence group (PRM < 0.8) had a lower risk of suicide (HR, 0.527, 95% CI, 0.447–0.620), an increased risk of NSSI (HR, 1.229, 95% CI, 1.088–1.388), and non-significant risk of attempted suicide compared with adherence group (PRM ≥ 0.8). For hypothesis 2, the lowest medication adherence (PRM < 0.2) was associated with increased risks of suicide attempt (HR, 1.614, 95% CI, 1.412–1.845), NSSI (HR, 1.873, 95% CI, 1.649–2.126), and a decreased risk of suicide (HR, 0.593, 95% CI, 0.490–0.719). The other non-adherence groups had lower risks for all three self-inflicted violence behaviors. The associations between medication adherence in continuous-variable and three outcomes were consistent with the categorical medication adherence results. Conclusions Almost no medication taken as prescribed was associated with an increased risk of suicide attempt and NSSI. However, medication adherence did not appear to prevent completed suicide. Besides, patients with moderate adherence had a lower incidence of suicide attempt and NSSI. These findings highlight the need for a more detailed portrayal of medication adherence and the need to be vigilant for suicide intent in schizophrenics with good medication adherence who may be overlooked previously.

show abstract

“…A 2016 review of user and caregiver involvement in strengthening mental health systems in LMICs identified just one example of user involvement in research (in Brazil), and this was limited to data interpretation [ 52 ]. An update published in 2019 identified another possible example in India, in which some data collectors with disabilities may have also had psychosocial disabilities, but this could not be confirmed from the text [ 53 ].…”

Section: Discussionmentioning

confidence: 99%

Co-producing research on psychosis: a scoping review on barriers, facilitators and outcomes

Jakobsson,

Genovesi,

Afolayan

et al. 2023

Int J Ment Health Syst

View full text Add to dashboard Cite

Introduction Co-production is a collaborative approach to service user involvement in which users and researchers share power and responsibility in the research process. Although previous reviews have investigated co-production in mental health research, these do not typically focus on psychosis or severe mental health conditions. Meanwhile, people with psychosis may be under-represented in co-production efforts. This scoping review aims to explore the peer-reviewed literature to better understand the processes and terminology employed, as well as the barriers, facilitators, and outcomes of co-production in psychosis research. Methods Three databases were searched (MEDLINE, EMBASE, PsycINFO) using terms and headings related to psychosis and co-production. All titles, abstracts and full texts were independently double-screened. Disagreements were resolved by consensus. Original research articles reporting on processes and methods of co-production involving adults with psychosis as well as barriers, facilitators, and/or outcomes of co-production were included. Data was extracted using a standardised template and synthesised narratively. Joanna Briggs Institute and the AGREE Reporting Checklist were used for quality assessment. Results The search returned 1243 references. Fifteen studies were included: five qualitative, two cross-sectional, and eight descriptive studies. Most studies took place in the UK, and all reported user involvement in the research process; however, the amount and methods of involvement varied greatly. Although all studies were required to satisfy INVOLVE (2018) principles of co-production to be included, seven were missing several of the key features of co-production and often used different terms to describe their collaborative approaches. Commonly reported outcomes included improvements in mutual engagement as well as depth of understanding and exploration. Key barriers were power differentials between researchers and service users and stigma. Key facilitators were stakeholder buy-in and effective communication. Conclusions The methodology, terminology and quality of the studies varied considerably; meanwhile, over-representation of UK studies suggests there may be even more heterogeneity in the global literature not captured by our review. This study makes recommendations for encouraging co-production and improving the reporting of co-produced research, while also identifying several limitations that could be improved upon for a more comprehensive review of the literature.

show abstract

Service user involvement in global mental health

Abstract: No funding was received for work on this review.

Cited by 19 publications

References 16 publications

Experiences in global mental health.

Experiences in global mental health.

Medication non-adherence and self-inflicted violence behaviors among 185,800 patients with schizophrenia in the community: a 12-year cohort study

Co-producing research on psychosis: a scoping review on barriers, facilitators and outcomes

Contact Info

Product

Resources

About