Sexual function and health status in adult patients with Congenital Adrenal Hyperplasia

Dobrowolska-Glazar, Barbara; Honkisz, Ireneusz; Sulisławski, Janusz; Tyrawa, Katarzyna; Wolnicki, Michał; Chrzan, Rafał

doi:10.1016/j.jpurol.2020.05.162

Cited by 4 publications

(2 citation statements)

References 18 publications

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“…The psychosexual outcome is important, because the patient's well-being in the long term could be one of the factors determining the decisions regarding indications and timing for the surgical treatment. 24 Urologists and gynecologists are predisposed to offer help and therapy in this area.…”

Section: Disorders Of Sexual Developmentmentioning

confidence: 99%

Various aspects of transition of care for adolescents with urological conditions

2022

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Section: Disorders Of Sexual Developmentmentioning

confidence: 99%

Various aspects of transition of care for adolescents with urological conditions

2022

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“…Большинство авторов сообщают о высоком уровне хороших результатов -от 79 до 95% в отдаленном периоде в среднем от 19 мес до 21 года [18][19][20][21][22][23]. Barbara Dobrowolska-Glazar в 2020 г. представила исследование 9 пациенток с ВДКН со средним периодом наблюдения 11 лет [24]. При этом состояние здоровья и половая функция пациентов не отличались от контрольной группы.…”

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The choice of feminizing genitoplasty tactic in girls with congenital adrenal hyperplasya

Аникиев

2021

Endo Serg

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The choice of tactics for feminizing plastic surgery (one- or two-stage) remains an actually issue. To operate early, in the first months of a child’s life, when endocrinological stabilization is achieved, or to postpone the intervention until puberty? Despite the large number of approaches to surgical treatment, still not all results can be recognized as positive. There are complications that affect the quality of life of patients, not only of a surgical but also of a psychological nature. The advantages of one or another approach are currently impossible to prove, since this will require a prospective multicenter multidisciplinary study of long-term results with each of the approaches. Therefore, pediatric surgeons for a long time in the choice of tactics will be based on accumulated experience and logical reasoning. Given the extensive experience of multidisciplinary rehabilitation, the positive long-term results of two-stage feminization remains the preferred tactic for surgical treatment of girls with CAH. The increased risk of complications from the genitourinary system in the form of infections of the urinary tract, hematocolpos and hematometra in girls with a narrow common urogenital canal, which is inherent in virilization of 3, 4 and 5 degrees according to Prader, can be considered as a reason for an early one-stage feminizing plasty.

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Long-term outcomes of the surgical treatment of girls with a classical form of congenital adrenal hyperplasia

Shiryaev

Kagantsov

2021

Russian Journal of Pediatric Surgery

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Introduction. Currently, to study long-term outcomes of feminizing genitoplasty, which is performed to girls with congenital adrenal hyperplasia, is an important step due to the limited data in literature on this topic. The purpose was to assess long-term outcomes of feminizing genitoplasty in congenital adrenal hyperplasia in girls depending on their gender identity, sexual orientation and the anatomy of external genitalia and vagina.Material and methods. A retrospective analysis of 8 case–histories of girls who were operated on at the Arkhangelsk Regional Children’s Hospital in 2001-2004 was made. In 7 of them, who had low urogenital sinus, feminizing genitoplasty included vaginoplasty with a perineal flap; in one patient, who had a high urogenital sinus, the shortened vagina was advanced down to create a missing part with posterior skin (Fortunoff) and anterior mucous (Passerini) flaps. The Prader scores ranged from III to V. Mean age at the time of surgery was 5.6 y.o. (0.5-14). Mean follow-up period was 17.6 (16-18.5) years.Results. All patients had female gender identity. All four sexually active women reported heterosexual orientation. Cosmetic results were good as stated by physicians, parents and patients themselves. Vaginal stenosis was noted only in one patient.Conclusion. The results obtained have shown that the one-stage reconstruction (clitoroplasty and vaginoplasty) for congenital adrenal hyperplasia can be successfully performed in childhood; thus, there is no any reason to refuse of the accepted tactics in treating this group of patients.

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Sexual function and health status in adult patients with Congenital Adrenal Hyperplasia

Cited by 4 publications

References 18 publications

Various aspects of transition of care for adolescents with urological conditions

Various aspects of transition of care for adolescents with urological conditions

The choice of feminizing genitoplasty tactic in girls with congenital adrenal hyperplasya

Long-term outcomes of the surgical treatment of girls with a classical form of congenital adrenal hyperplasia

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