Shared decision-making in rheumatology : what matters to patients?

Nota, Ingrid

doi:10.3990/1.9789036543897

Cited by 1 publication

(2 citation statements)

References 155 publications

(458 reference statements)

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“…Our analysis identified a variety of values that patients do take into consideration when facing a health treatment decision within rheumatoid arthritis care. Consistently with the literature, [10][11][12]18,19,21 effectiveness of treatment (on inflammation, functioning, pain and fatigue) and avoiding negative side effects were stated as being very important when choosing a treatment option. Important situational values turned out to be staying independent; being able to meet friends and having a normal life.…”

Section: Discussionmentioning

confidence: 59%

“…9 Recent studies of shared decision-making and value clarification in rheumatoid arthritis care have underlined their added value for health outcomes -ie disease activity, pain and joint damage. [10][11][12] Nevertheless, it is suggested that more attention should be paid to patient values regarding health treatment decisions during consultations. 13 To assist patients and HCPs with value clarification in daily practice of rheumatoid arthritis care, a generic decision aid on value clarification for a diversity of health treatment decisions might be beneficial.…”

Section: Introductionmentioning

confidence: 99%

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What Matters to Patients with Rheumatoid Arthritis When Facing Medical or Non-Medical Treatment Decisions?

Cornelissen¹,

Mark²,

Pennings³

et al. 2021

PPA

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Background: In rheumatoid arthritis care, patients and healthcare professionals regularly face health treatment decisions. Sorting out what matters to a patient as being relevant to a specific decision is therefore essential. Methods: An explorative mixed-methods study was performed to investigate patients' values for health treatment decisions and their importance in order to develop a future decision aid on value clarification. Ten semi-structured interviews with patient partners were conducted followed by an online survey among the broader population of patients. Qualitative content analysis was performed. Data from the online survey were analysed descriptively and quantitatively. Results: According to patients, 17 important health treatment decisions in rheumatoid arthritis care can occur. The most commonly reported decisions concerned the use of medication. A variety of values may guide patients' health treatment decisions. We found 66 values among four domains of values -decisional, situational, external and global. Among decisional values, reported main values were a) effectiveness of treatment on inflammation, functioning, pain and fatigue; b) avoiding negative side-effects; and c) keeping in good physical condition. In addition, situational values turned out to be a) staying independent; b) being able to meet people; and c) leading as normal a life as possible. Furthermore, patients prefer healthcare professionals who a) take comorbidity into account, b) have enough time, and c) take the patient seriously in their choicesthe external values. Finally, as global values were expressed a) autonomy; b) self-image, and c) intimacy. All values are specified by underlying quotes, for example, the value effectiveness on inflammation; "That inflammation has got to go, because you've then got the risk that you'll develop all kinds of things in the course of time". Conclusion:A variety of values may guide patients' health treatment decisions within rheumatoid arthritis care. Patients and professionals should discuss patients' values continuously.

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