Solution to support informal caregivers of patients with dementia

Lobão, Maria João; Guan, Yan; Curado, Jose; Goncalves, Mariana Bailao; Melo, Rita; Silva, Carla; Velosa, Teresa; Cardoso, Susana M.; Santos, Vítor; Santos, Carolina Carbonell dos

doi:10.1016/j.procs.2021.01.149

Cited by 5 publications

(3 citation statements)

References 15 publications

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“…Studies illustrate that when caregivers can access resources such as support groups, education, skill training, and assistance in accessing benefits, caregiver outcomes improve (Suntai et al, 2021). Tools and services can help prevent the declining physical health, psychological health, and the social well‐being of caregivers (Lobão et al, 2021; Vasileiou et al, 2017). What is more, TBI survivor functioning tends to increase as the caregiver's overall health and well‐being improves (Page et al, 2021).…”

Section: Literature Reviewmentioning

confidence: 99%

Addressing caregiver needs of brain injury survivors through telehealth: A pilot qualitative study

Roberson,

Hagues,

White

et al. 2023

Family Relations

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ObjectiveThis study sought to identify effective means for delivering services to address the unique needs of caregivers for traumatic brain injury (TBI) survivors.BackgroundCaregivers for TBI survivors face unique and intense challenges, including deep isolation. When these caregivers fail to thrive, the entire family system suffers.MethodEmploying a pilot study utilizing qualitative methods, we explored the effectiveness of an intervention piloting telehealth counseling to address some of the unique caregiving challenges for the TBI survivor's caregiver. We conducted two focus groups of four participants to obtain qualitative data.ResultsQualitative analysis identified key themes: isolation, boundary issues, challenges of therapy, and the benefits of telehealth counseling.ConclusionsResults indicate an improvement in overall functioning of caregivers when accessing telehealth services.ImplicationsOn a micro level, results demonstrate that telehealth services can help TBI caregivers prevent boundary enmeshment. On a macro level, results have implications for increased investment and resources for those who serve the TBI population through an online format as well as proposed best practices for the method of service delivery.

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Section: Literature Reviewmentioning

confidence: 99%

Addressing caregiver needs of brain injury survivors through telehealth: A pilot qualitative study

Roberson,

Hagues,

White

et al. 2023

Family Relations

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“…Unpaid carers can feel stress, anxiety and suffer caregiver burden if not supported effectively by formal services and professionals. 8 Furthermore, relationships with family and friends can be strained and dynamics can change, 9 enhancing feelings of isolation for both the person living with dementia and any unpaid carers. 10 However, these impacts are often not felt equally.…”

Section: Introductionmentioning

confidence: 99%

“…People with dementia can struggle to access the services they need, from getting a diagnosis to additional and tailored support services and appropriate healthcare. Unpaid carers can feel stress, anxiety and suffer caregiver burden if not supported effectively by formal services and professionals 8 . Furthermore, relationships with family and friends can be strained and dynamics can change, 9 enhancing feelings of isolation for both the person living with dementia and any unpaid carers 10 .…”

Section: Introductionmentioning

confidence: 99%

A systematic review of digital access to post‐diagnostic health and social care services for dementia

Watson,

Hanna,

Talbot

et al. 2024

Int J Geriat Psychiatry

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ObjectivesFor many people with dementia and unpaid carers, using technology for care and support has become essential. Rapid proliferation of technology highlights the need to understand digital access to health and social care services for dementia. This mixed‐methods systematic review aims to explore digital access to health and social care services for dementia, from the perspective of people with dementia and unpaid carers.MethodsNine electronic databases were searched in May 2023 for qualitative, quantitative, or mixed‐method studies, published in English or German, focused on experiences of using technology‐delivered health and social care services for people with dementia and unpaid carers. After removal of duplicates and screening, 44 empirical papers were included.ResultsFrom the 44 studies, findings were grouped into five categories, highlighting experiences for people with dementia and unpaid carers: (1) Adapting to technology, (2) Inequalities and variations in outcomes, (3) Impact on caring, (4) Impact on health, and (5) Impact on relationships. Proliferation of technology in care access emphasised the need for quick adaptation to technology and examination of its impact. The impact of such service delivery has evidenced mixed findings. There were improvements in the health and wellbeing of people with dementia and unpaid carers, and benefits for their dyadic relationship. However, using technology for health and social care access is not always possible and is often reliant on unpaid carers for support. Lower tech‐literacy, lack of equipment or money to buy equipment and poor internet connection can impact the potential for positive outcomes.ConclusionsTechnology can bring great benefits: social inclusion, improved service access and care. However, using technology in service delivery in dementia needs careful thought. Professionals and service providers need to be cognizant of the complex nature of dementia, and the benefits and challenges of hybrid service delivery.

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Technologies in Long-Term Care and Nursing Homes

Wang

Albayrak

Mattace-Raso

et al. 2023

Practical Issues in Geriatrics

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This practically oriented series presents state of the art knowledge on the principal diseases encountered in older persons and addresses all aspects of management, including current multidisciplinary diagnostic and therapeutic approaches. It is intended as an educational tool that will enhance the everyday clinical practice of both young geriatricians and residents and also assist other specialists who deal with aged patients. Each volume is designed to provide comprehensive information on the topic that it covers, and whenever appropriate the text is complemented by additional material of high educational and practical value, including informative video-clips, standardized diagnostic flow charts and descriptive clinical cases. Practical Issues in Geriatrics will be of value to the scientific and professional community worldwide, improving understanding of the many clinical and social issues in Geriatrics and assisting in the delivery of optimal clinical care.**Indexed in Scopus**

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Solution to support informal caregivers of patients with dementia

Cited by 5 publications

References 15 publications

Addressing caregiver needs of brain injury survivors through telehealth: A pilot qualitative study

Addressing caregiver needs of brain injury survivors through telehealth: A pilot qualitative study

A systematic review of digital access to post‐diagnostic health and social care services for dementia

Technologies in Long-Term Care and Nursing Homes

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