‘Some people are never going to be able to do that’. Challenges for people with intellectual disability in the 21st century

Dowse, Leanne

doi:10.1080/09687590903010933

Cited by 63 publications

(49 citation statements)

References 20 publications

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“…They are rooted in the (neo)liberal belief in unleashing free-market forces which are allegedly going to eliminate monopolies and improve the diversity and quality of services provided (on the significance of market discourse and consumerism for direct payments schemes see Pearson, 2000;Spandler, 2004). Disability scholars, especially those working in the area of intellectual impairments, have been strongly critical of this paradigm (Dowse, 2009). …”

Section: Self-driven Customers?mentioning

confidence: 99%

Personal assistance for disabled people and the understanding of human being

Mladenov

2012

Critical Social Policy

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This paper explores personal assistance -a practice considered crucial for supporting the independence and social inclusion of disabled people. The staring point of the analysis is the presumption that the significance of personal assistance goes well beyond welfare, touching upon existential-ontological issues. In order to uncover these issues, a phenomenological approach is used. The aim is to highlight the understanding of human being which is mediated by an internationally prominent model of personal assistance, to wit, the one promoted by the European Independent Living advocates, as described by Adolf Ratzka (2004a). It is argued that despite its liberal-individualist assertions the scheme described by Ratzka presupposes a distributed, relational understanding of human being. A case study of recent disability-related activism in Bulgaria is developed in order to further substantiate this claim. In conceptual terms, then, the paper adds a fresh perspective to the debates on individualist vs. collectivist approaches to disability equality. This perspective is informed by the phenomenological insights of Martin Heidegger (1962) and Maurice Merleau-Ponty (2002). In policy terms the paper argues for the necessity of promoting and supporting disabled people's self-organising, most importantly peer support and advocacy activities.

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Section: Self-driven Customers?mentioning

confidence: 99%

Personal assistance for disabled people and the understanding of human being

Mladenov

2012

Critical Social Policy

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“…Factors hindering the development of positive risk-taking practices Drawing on concepts of governmentality, surveillance and technologies of performance, Morgan (2005) and Dowse (2009) argue that our current society is underpinned by a culture that individualises risk, where those who are considered incapable of managing their own risk become objects of surveillance and treatment. However, institutions and professionals charged with the responsibility of undertaking such surveillance and treatment are also objects of scrutiny, judged against performance indicators and accountability measures.…”

Section: Introductionmentioning

confidence: 99%

Transforming positive risk-taking practices: the possibilities of creativity and resilience in learning disability contexts

Tai-Seale¹,

Nind

Simmons

2013

Scandinavian Journal of Disability Research

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In this article we examine discourses, conceptualisations and practices of positive risk-taking for or by children and adults with learning disabilities. We identify tensions and contradictions in positive risk-taking discourses that are unhelpful for clarifying for practitioners how positive risk-taking might be implemented. We suggest a conceptual framework that incorporates creativity and resilience and use this to offer examples from special and inclusive education (Intensive Interaction and Learning without Limits) that illustrate how positive risk-taking can be found in education practices. We conclude by arguing that conceptual frameworks such as the one proposed, when linked to supportive frameworks and guiding principles that emphasise professional judgement, offer one way to problematise and challenge current risk-averse practices in education, health and social care settings.

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“…Macrosystem pragmatic considerations include neo-liberalism, a political philosophy which emphasises efficiency and is in contrast to liberalism. This is formative to quality service provision as neo-liberalism imposes of a degree of constraint as well as restrictions within the market (Dowse, 2009;Swenson, 2008).…”

Section: Current Knowledge and Clinical Expertise Current Knowledge mentioning

confidence: 99%

“…The current socioeconomic climate in Australia, as with many Western countries including the USA, Canada and the UK, is largely dominated by neo-liberalism (Van Gramberg & Bassett, 2005). It is considered to underpin the mechanisms of the Western parliamentary democratic system; economics; distribution of goods and services; schooling systems; separation of powers; the legal system, and societal thinking (Dowse, 2009;Reinders, 2008;Swenson, 2008;Wiesel & Fincher, 2009). Literature identifies this as a political philosophy that will continue with globalisation, as stated, "processes associated with globalisation intensify the agenda of neo-liberalism to fundamentally determine their everyday social arrangements and experiences (of people with ID) ... in western democracies such as the USA, the UK and Australia" (Dowse, 2009, p. 571).…”

Section: Workforce Issuesmentioning

confidence: 99%

“…Neo-liberalism is a political philosophy that emphasises economic liberalisation, free trade, open markets, privatisation, deregulation and decreasing the size of the public sector in favor of the private sector (Apple, 2001;Dowse, 2009;Reinders, 2008;Swenson, 2008;Wiesel & Fincher, 2009;Williams, 2004). The current socioeconomic climate in Australia, as with many Western countries including the USA, Canada and the UK, is largely dominated by neo-liberalism (Van Gramberg & Bassett, 2005).…”

Section: Workforce Issuesmentioning

confidence: 99%

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A conceptual model of quality service provision for people with intellectual disability and challenging behaviours: Enhancement and enrichment through service user and other stakeholder consultation

Gatfield¹

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People with intellectual disability and challenging behaviour are one of the most disenfranchised groups in society. How they are supported through services has a primary role in changing this outcome. While legislation provides frameworks for quality service provision for people with disabilities, they do not identify the mechanisms specific to the cohort that can address this disenfranchisement. As such, it is paramount to develop an understanding of quality service provision specific to those with intellectual disability and challenging behaviour.To identify the factors required for quality service provision for people with ID and CB, a three-stage design incorporating participants from various stakeholder groups (n=7) was undertaken. Study one involved data collection from CEOs and managers (n=55) of service provider agencies using a Delphi study, and clinicians and senior practitioners (n=85) using survey methods. Study two incorporated interviews conducted with families/carers of service users (n=11), advocates (n=10), support workers (n=13) and supervisors (n=11) who had provided services to the cohort, complemented by survey data (n=102). Study three involved data collection with service users with intellectual disability and challenging behaviour (n=14) through focus groups.The results of this research led to the identification of processes and practices associated with and impacting on quality service provision that were not identified through the literature review. Further, it identified agents that are formative to the production of quality services.The outcome of this research is a model of quality service provision for the cohort that conceptualises quality as a continuous process and includes factors across sociopolitical systems that are formative to, and impacting on, quality service provision. The developed model has significant implications for service provider agencies, service user consultation, government, substitute decision making, and the National Disability Insurance Scheme.

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‘Some people are never going to be able to do that’. Challenges for people with intellectual disability in the 21st century

Cited by 63 publications

References 20 publications

Personal assistance for disabled people and the understanding of human being

Personal assistance for disabled people and the understanding of human being

Transforming positive risk-taking practices: the possibilities of creativity and resilience in learning disability contexts

A conceptual model of quality service provision for people with intellectual disability and challenging behaviours: Enhancement and enrichment through service user and other stakeholder consultation

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