Somebody Else's Heart Inside Me: A Descriptive Study of Psychological Problems After a Heart Transplantation

Kaba, Evridiki; Thompson, David R.; Burnard, Philip; Edwards, Deborah; Theodosopoulou, Eleni

doi:10.1080/01612840590959452

Cited by 55 publications

(73 citation statements)

References 21 publications

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“…Thus, theoretical saturation of categories was achieved (Glaser & Strauss, 1967). The ideas that the interviews produced in the early stage of the study served to shape the line of inquiry and in this way data collection was directed by the theoretical notions which emerged, as previously described in detail (Kaba et al, 2005).…”

Section: Methodsmentioning

confidence: 99%

“…Rather than each recipient being asked precisely the same questions, it allowed the interviewer to pursue topics that came up that had some conceptual promise, or, indeed to introduce such ideas from earlier interviews to further develop a category. As previously described in detail (Kaba et al, 2005), the data constituted a body of information that was being constantly updated, elaborated, and refined.…”

Section: Data Collectionmentioning

confidence: 99%

“…Interview questions moved from general to the particular. The purpose was to elicit fundamental information in keeping with grounded theory methodology, such as dimensions, phases, properties, strategies, consequences, and contexts of behavior, as previously described in detail (Kaba et al, 2005). As conceptual categories of responses emerged from the interviews, additional questions were asked to help clarify the relationships among the categories.…”

Section: Data Collectionmentioning

confidence: 99%

“…Support for the study was provided by the consultant and coordinator of the heart transplant clinic. Ethical approval was sought and granted from the Local Research Ethics Committee, as previously described in detail (Kaba, Thompson, Burnard, Edwards, & Theodosopoulou, 2005).…”

Section: Samplementioning

confidence: 99%

See 3 more Smart Citations

“Price to Pay for Being Alive”: Coping with the Post-Operative Demands in Heart Transplantation

Kaba¹,

Kelesi²,

Fasoi³

et al. 2017

GJHS

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Introduction: Understanding the problems experienced and coping strategies used after the heart transplantation, health care providers may help heart transplant recipients' adaptation to the postoperative period and consequently improve their quality of life. However, there is little qualitative evidence on how heart transplant recipients develop coping strategies and adapt to postoperative life. Aim:The aims of the study were a) to identify the physical and psychosocial problems experienced by heart transplant recipients and b) to identify coping strategies used by heart transplant recipients. Methods:A grounded theory research approach was used in data collection and analysis for studying heart transplant recipients' experience. The participants in this study were 42 heart transplant recipients. The data were gathered by taped, unstructured, in-depth interviews. Constant comparison analysis was used to interpret the data. Findings:Four categories developed from the data analysis, namely: "traumatic experience" "that's a small price to pay for being alive" "somebody else's heart inside me" and "coping". The central or core category, "That's a small price for being alive Vs Too big a price to pay for being alive" emerged and was the main theme around which other categories were integrated. Further interpretation of findings led to the development of a theory entitled "Price to pay for being alive: Coping with the post-operative demands in Heart Transplantation". Conclusion:The theory developed within the frame of this study offers an extension of Moos' Crisis Theory, and applies his basic concepts of major life crises and transitions with adaptations, to heart transplant patients. One such adaptation is the assertion that the factors that influence how adaptively an individual copes with a heart transplant crisis are different from any other health crisis.

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Section: Methodsmentioning

confidence: 99%

Section: Data Collectionmentioning

confidence: 99%

Section: Data Collectionmentioning

confidence: 99%

Section: Samplementioning

confidence: 99%

See 2 more Smart Citations

“Price to Pay for Being Alive”: Coping with the Post-Operative Demands in Heart Transplantation

Kaba¹,

Kelesi²,

Fasoi³

et al. 2017

GJHS

Self Cite

View full text Add to dashboard Cite

show abstract

“…Case studies of heart recipients report otherwise inexplicable psychiatric conditions post-transplant, including "night-time anxiety, feelings of suffocation" (Brosig & Woidera, 1993, "organ related fantasies" (Laederach-Hofmann et al, 2002, "delirium" (Triffaux et al, 2002), and "psychosomatic hyperventilation syndrome" (Bunzel et al, 1990). Psychoanalytic studies of recipients report overpowering feelings of gratitude to the donor family, guilt over the donor's death, denial, and mourning of their own lost organ (Kaba, Thompson, & Burnard, 2005;Sanner, 2003). Some investigators have concluded that negative psychological responses may impact the physiological integration of the graft, and consequently the health of recipients Abbott et al, 2003).…”

Section: Adult Transplant Recipientsmentioning

confidence: 99%

The New Normal: A Bourdieusian Examination of Living Into Young Adulthood Being a Paediatric Heart Transplant Recipient

Mauthner

Angus

Gastaldo

et al. 2014

The Journal of Heart and Lung Transplantation

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Improved success of paediatric cardiac transplantation has resulted in increased survival of recipients into young adulthood (19 to 29 years of age). Young adults who received a heart transplant during childhood have experienced multiple life sustaining procedures. As survival and longevity increase, it is clear that transplant recipients experience negative physiological, psychological and social sequelae. With heart transplant offering individuals a chance to extend life into young adulthood, recipients need lifelong care and at age 18 they will transition from paediatric to adult healthcare facilities. The study addressed young adults circumstances of existence and their competing interests within various social environments. This research project applied Pierre Bourdieu's theoretical concepts of habitus, field and capital, to conceptualize and engage with empirical knowledge production about young adults who have received a heart transplant during childhood. Using visual methodology, focused open-ended interviews were conducted with 12 young adults who had a heart transplant during childhood. Bourdieu's work iii provided a theoretical framework to investigate transplant recipients' identities and social repositioning in relation to dominant discourses of organ transplant and shifting relationships with health services providers. This study involved an iterative process to identify recipients' encounters and new compositions in relation with others, in order to answer the research objective. These findings highlight that young adult transplant recipients struggle with relational dispositions that excludes them from various fields of social engagement; their struggle and exclusion from various fields is symbolic and is embedded in the structure of the dominant social order of the field from where they become excluded; the social order is taken up and embodied, leading young transplant recipients to practices of accommodation and "normalization". Changes

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Student and community perceptions about organ donors, non‐donors and transplant recipients

Hyde

White

2008

Community & Applied Soc Psy

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Despite efforts to encourage organ donation, low organ donation rates in Australia and other Western nations do not meet the demand for transplantable organs. One influence on organ donation decision-making yet to be fully explored is that of prototype perceptions about organ donors, non-donors and transplant recipients. We conducted focus groups and interviews with 54 student and community participants to explore these perceptions of donors and non-donors in a living and posthumous context, as well as transplant recipients. Using content and thematic analysis, transcripts were analysed for consistently emerging themes. Donors were generally perceived positively as altruistic and giving and as ordinary people; however, some participants questioned the motives of living anonymous donors. Non-donors were commonly viewed negatively as self-absorbed and unaware, with living-related non-donors particularly perceived as cold-hearted and weak. Transplant recipients were generally viewed sympathetically (unfortunate and unwell); however, many participants also expressed negative views about transplant recipients as responsible for their predicament, depending upon the type of organ transplant needed. To encourage people's willingness to donate their organs, it is crucial to understand the extent to which these perceptions influence organ donation decisions.

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Somebody Else's Heart Inside Me: A Descriptive Study of Psychological Problems After a Heart Transplantation

Cited by 55 publications

References 21 publications

“Price to Pay for Being Alive”: Coping with the Post-Operative Demands in Heart Transplantation

“Price to Pay for Being Alive”: Coping with the Post-Operative Demands in Heart Transplantation

The New Normal: A Bourdieusian Examination of Living Into Young Adulthood Being a Paediatric Heart Transplant Recipient

Student and community perceptions about organ donors, non‐donors and transplant recipients

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