Spinal Cord Injury

Elliott, Timothy R.; Rivera, Patricia

doi:10.1002/0471264385.wei0918

Cited by 25 publications

(17 citation statements)

References 116 publications

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“…We adopt a dynamic, longitudinal view of QoL following SCI for this study (Elliott & Warren, ) to conceptualize the ways in which important predictor variables (such as functional impairment, pain, family satisfaction) may affect mediating variables (e.g., participation) that subsequently impact QoL (life satisfaction, health status). These outcomes are part of a ‘…dynamic and fluid process in which characteristics of the person and the injury, their social and interpersonal world…and the historical and temporal context interact to influence physical and psychological health’ (Elliott & Rivera, , p. 423).…”

Section: Introductionmentioning

confidence: 99%

Predicting quality of life 5 years after medical discharge for traumatic spinal cord injury

Erosa

Berry

Elliott

et al. 2013

British J Health Psychol

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What is already known on this subject? Life satisfaction and self-rated health status are important aspects of quality of life following traumatic spinal cord injury. Functional impairment has been inconsistently predictive of these variables over time. Prospective research to date has not examined the mediating effects of participation in predicting quality of life. What does this study add? The results indicate that greater functional impairment and pain are prospectively predictive of lower participation. Greater participation, in turn, is prospectively predictive of greater quality of life. Participation appears to mediate the prospective influence of functional impairment, family satisfaction, and pain to quality of life.

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Section: Introductionmentioning

confidence: 99%

Predicting quality of life 5 years after medical discharge for traumatic spinal cord injury

Erosa

Berry

Elliott

et al. 2013

British J Health Psychol

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“…Spinal cord injury (SCI) is a traumatic injury to the spine that damages the spinal cord or local nerves (Elliott & Rivera, 2003). Common causes of SCI include falls, motor vehicle accidents, disease, and violence such as gunshot wounds and explosions (Chen, Tang, Vogel, & DeVivo, 2013).…”

Section: Introductiónmentioning

confidence: 99%

Spinal Cord Injury Functional Impairment and Caregiver Mental Health in a Colombian Sample: An Exploratory Study

Wiese¹,

Leibach²,

Perrin³

et al. 2015

psdc

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psicología desde el caribe issn 0123-417x (impreso) issn 2011-7485 (on line) Vol. 32, n.° 3, septiembre-diciembre 2015 http://dx.doi.org/10.14482/psdc.32.3.6593 Spinal Cord Injury Functional Impairment and Caregiver Mental Health in a colombian sample: An exploratory study Deficiencias funcionales en pacientes con lesiones de la médula espinal y la salud mental del cuidador: un estudio exploratorio en una muestra colombiana AbstractLimited literature has examined the connections between caregiver mental health and the physical and psychosocial functioning of individuals with spinal cord injury (SCI) in Latin America, despite the dearth of services and unique needs of this population. The purpose of the current study was to examine the relationships between caregiver mental health (anxiety, burden, depression, satisfaction with life, and self-esteem) and SCI physical and psychosocial functional impairments in a Colombian sample. Forty SCI caregivers were recruited from Neiva, Colombia, and completed measures of SCI impairments and their own mental health. Greater SCI impairments, and caregiver stress due to those impairments, were associated with higher caregiver depression and anxiety, although only patient psychosocial functional impairments and related caregiver stress were uniquely associated with caregiver depression. Due to the collectivist nature of and the importance of family in many Latino cultures, mental health interventions for family members who provide care for an individual with SCI having greater psychosocial impairments may be particularly important. Palabras clave: SCI impairment, caregivers, mental health. ResumenPoca literatura ha examinado las relaciones entre salud mental del cuidador y funcionamiento físico y psicosocial de las personas con traumatismo de médula espinal en América Latina, a pesar de la escasez de servicios y necesidades únicas de esta población. El propósito del presente estudio fue examinar las relaciones entre la salud mental del cuidador (ansiedad, sobrecarga, depresión, satisfacción con la vida y autoestima) y las discapacidades físicas y psicosociales de personas con traumatismo de médula espinal en una muestra colombiana. Cuarenta cuidadores de personas con traumatismo de médula espinal fueron reclutados en Neiva, Colombia, quienes completaron medidas de discapacidad del traumatismo de mé-dula espinal y de su propia salud mental. Mayores niveles de discapacidad en personas con traumatismo de médula espinal y niveles de estrés del cuidador debido a esas discapacidades, fueron asociadas con mayores niveles de depresión y ansiedad en el cuidador, aunque sólo las discapacidades psicosociales de los pacientes y el estrés relacionado con el cuidador fueron asociados con la depresión en el cuidador. Debido a la naturaleza colectivista y la importancia de la familia en la mayoría de las culturas latinas, las intervenciones centradas en la salud mental de los familiares que cuidan de personas con traumatismo de la medula espinal pueden ser particularmente importantes.

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“…bathing, dressing and feeding the injured person as well as providing bowel and bladder care) (Shewchuk, Richards & Elliott, 1998). Spinal caregivers tend to enter this new role without preparation or specialised training (Elliott & Rivera, 2003) and as such enter new, unfamiliar territory. Assuming this new and demanding caregiver role can represent an attempt to improve the quality of life of the injured person but this often comes at a cost to the caregiver who experiences role overload, financial strain, changes in health status, emotional problems and a lack of information (Donelan, Hill, Hoffman et al, 2002;Vitaliano, Zhang & Scanlan, 2003).…”

Section: Introductionmentioning

confidence: 99%

The impact of assuming the primary caregiver role following traumatic spinal cord injury: An interpretative phenomenological analysis of the spouse's experience

Dickson

O'Brien²,

Ward

et al. 2010

Psychology & Health

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This study aimed to explore the lived experience of assuming the primary caregiver role in a group of spouses of individuals living with a traumatic spinal cord injury (injuries ranged from paraplegia to quadriplegia). Individual in-depth interviews were conducted with eleven participants who were both the spouse and primary caregiver of an individual with a spinal cord injury; of these, ten were female and one was male.All interviews were transcribed verbatim and were subjected to Interpretative Phenomenological Analysis (IPA). Here we present three inter-related master themes: "The emotional impact of spinal cord injury"; "Post-injury shift in relationship dynamics"; and "Impact of caregiving on identity". Regarding the emotional impact of spinal injury, participants reported an almost instantaneous sense of loss, emptiness and grief during the injured person's rehabilitative period and feelings of anxiety were reported in anticipation of their return to the family home. A distinct change in role from spouse and lover to care provider was reported and this ultimately contributed to relationship change and a loss of former identity. The findings are discussed in relation to extant caregiver literature and recommendations for future caregiver support are highlighted.

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Spinal Cord Injury

Cited by 25 publications

References 116 publications

Predicting quality of life 5 years after medical discharge for traumatic spinal cord injury

Predicting quality of life 5 years after medical discharge for traumatic spinal cord injury

Spinal Cord Injury Functional Impairment and Caregiver Mental Health in a Colombian Sample: An Exploratory Study

The impact of assuming the primary caregiver role following traumatic spinal cord injury: An interpretative phenomenological analysis of the spouse's experience

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