Stress Experienced and Meaning-Making of Couples with Children with Autism Spectrum Disorder: A Phenomenological Study

Romney, Justin; Fife, Stephen T.; Sanders, Daniel; Snyder, Hailey

doi:10.1080/01926187.2020.1813654

Cited by 10 publications

(13 citation statements)

References 28 publications

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“…Increased stress levels and lower levels of well-being of parents of children with ASD were confirmed by a large number of studies [29] in comparison with parents of neurotypical children or children with other forms of disability [30][31][32][33]. Furthermore, it could often lead to burnout, depression, and psychological and physical breakdown, a condition that is exacerbated by deficits in services and general childcare [26,27,34].…”

Section: Introductionmentioning

confidence: 90%

The Impact of COVID-19 Pandemic Containment Measures on Families and Children with Moderate and High-Functioning ASD (Autism Spectrum Disorder)

et al. 2021

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The present study focuses on the impact of SARS-CoV-2 (COVID-19) transmission prevention measures and, in particular, home confinement of families with children with autism spectrum disorder (ASD) in Greece. It is assumed that the implemented new measures during the pandemic constitute a profound change for children on the spectrum, considering that the core ASD symptoms include the persistence and adherence to routine and stability, a condition that also directly affects the children’s parents. Semi-structured telephone interviews were conducted. Participants were 10 caregivers with a child diagnosed with ASD of medium or high functioning in Greece. The ages of the children range from 6.5 to 15 years old. The results of the thematic analysis revealed three main themes: (1) the educational framework, (2) the management of daily life, and (3) the construction of the new daily routine. These three themes represent the levels that have undergone a decisive transition, and the sub-themes recommend the areas, individual ways of dealing with this shift. So far, the impact of the pandemic mitigation measures cannot be described as generally positive or negative, as there have been advances and setbacks for children and families alike. Finally, governmental measures and technology-assisted teaching (distance learning) were considered necessary but not sufficient enough for full adaptation.

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Section: Introductionmentioning

confidence: 90%

The Impact of COVID-19 Pandemic Containment Measures on Families and Children with Moderate and High-Functioning ASD (Autism Spectrum Disorder)

et al. 2021

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“…This study used descriptive phenomenology representing participants' truth to describe their world (Koch, 1995). This study focus on the understanding of lived experiences of the participants regarding the food taboo (Romney et al, 2020). In detail, Heideggerian phenomenology was used in this study (Koch, 1995;Richardson, 1974).…”

Section: Methodsmentioning

confidence: 99%

Exploring the food taboo among fisherman families in Bulukumba District, South Sulawesi Province, Indonesia

Akbar

Oruh²,

Kamaruddin

et al. 2022

Public Health of Indonesia

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Background: Food taboo is one of the social phenomena that can influence people’s health status, including women in fisherman families. Some types of food categorized as taboo may contain high nutrients. Food taboo practices still occur because people are afraid that bad things will happen if they ignore them. Objective: This study aimed to explore the food taboo among pregnant, breastfeeding, and adult women in Bira Village, Bulukumba District, South Sulawesi Province, Indonesia. Methods: This study employed a phenomenological design. Eight participants were selected using the purposive sampling method. Data were collected in 2022 using semi-structured interviews and were analyzed using summative content analysis using NVivo software. Results: Several types of food were categorized as taboo, such as Lela fish, moringa fruit, pineapple, stingray, moringa leaf, squid, and mango. Most participants agreed that they just follow what the older people suggest, which might not make sense since all those foods contain many nutritional ingredients. Conclusion: The study findings serve as an input for public health professionals and other related stakeholders to address this cultural issue and provide understanding to the community not to avoid taboo food, which is essentially beneficial for their health.

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“…Other stressors include fears about their child losing control and the potential safety risks this could pose to others, and overall behaviour management difficulties (Weiss et al, 2014). Another significant stressor is the cost of ASC treatment and the lack of resources (Romney et al, 2021). ASC-related lifetime costs for individuals in the United States range from an average of $1.4 million to $2.4 million [€1.3 million to €2.3 million, depending on an intellectual disability diagnosis (Buescher et al, 2014)].…”

Section: Practitioner Pointsmentioning

confidence: 99%

It brought us closer: How couples in the United States with children diagnosed with ASC create and maintain relationship functioning

Romney,

Austin,

Fife

et al. 2024

Journal of Family Therapy

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Couples raising a child diagnosed with autism spectrum condition (ASC) experience unique challenges that can affect their relationship. This grounded theory study explores how couples maintain functioning in their relationship despite ongoing stressors related to raising a child on the spectrum. The presented model shows what couples can do to create and maintain their relationship functioning. It utilises four major themes developed from our analysis of interviews with 19 couples in the United States with a child diagnosed with ASC. This study increases understanding of couple functioning when raising a child on the spectrum. The grounded theory defines couple functioning for couples with a child diagnosed with ASC as balancing four mutually influential themes: togetherness, adaptability, resilience and communication. We also discuss clinical implications for systemic therapists to work with couples with a child diagnosed with ASC effectively.

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Stress Experienced and Meaning-Making of Couples with Children with Autism Spectrum Disorder: A Phenomenological Study

Cited by 10 publications

References 28 publications

The Impact of COVID-19 Pandemic Containment Measures on Families and Children with Moderate and High-Functioning ASD (Autism Spectrum Disorder)

The Impact of COVID-19 Pandemic Containment Measures on Families and Children with Moderate and High-Functioning ASD (Autism Spectrum Disorder)

Exploring the food taboo among fisherman families in Bulukumba District, South Sulawesi Province, Indonesia

It brought us closer: How couples in the United States with children diagnosed with ASC create and maintain relationship functioning

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