Support network and social support for children with special health care need

Abstract

Objective: to understand and identify the support network and social support from the perspective of familiesof children with chronic conditions. Methods: a qualitative study, with content analysis of 134 records, followedby ten semi-structured interviews. Results: the analysis has revealed that the primary caregiver, the mother,participates in a network of limited support, only with the help of her husband, children, grandparents and thechild ́s godparents. They also have a social network through a multidisciplinary team, which in some cases isnot effective. Conclusion: families have a deficient and limited support network and the demand for care relyonly on the support of the husband, grandparents, children, and godparents. Social networking refers to thephilanthropic institutions, while the aid of public service, basic health unit is basic.

Family fortresses in Zika Congenital Syndrome according to Betty Neuman

“…As seen in this study, a research conducted in 2016 with families of minors with special health needs observed that some respondents reported that there was no aversion on the part of the family regarding the consequential dependences of the child in daily activities (20) .…”

“…Concerning the Support Network, a study that dealt with social support to children with special health needs (20) revealed that the families reported receiving help from philanthropic institutions as indispensable to improve the child's quality of life.…”

“…Regarding health professionals, the construction of a network of effective social support to these families, with a health team prepared to meet the care demands of the children with ZVCS is fundamental. Therefore, primary care services must be able to perceive the domestic environment as an extension for care practice (20) .…”

“…This allows for knowledge reciprocity and clarification of doubts among family members. The support from a family of a child with special needs is a stimulus to another family in a similar situation in overcoming the problems experienced in the daily routine of home care (20) .…”

A Estrutura Da Rede Social Da Mãe/Acompanhante Da Criança Hospitalizada

“…No caso dos profissionais de saúde, estes se ligam às mães/acompanhantes por situações e contextos relacionados ao tratamento e assistência à saúde da criança (15,(19)(20) . Destaca-se REFERÊNCIAS que a equipe de enfermagem são os profissionais que apresentam maior contato com a criança e seus acompanhantes, seguido da equipe médica (15) .…”