Survivorship Care Planning for Young Adults After Cancer Treatment: Understanding Care Patterns and Patient-Reported Outcomes

Szalda, Dava; Schapira, Marilyn M.; Jacobs, Linda A.; Palmer, Steven C.; Vachani, Carolyn; Metz, James M.; Hill‐Kayser, Christine

doi:10.1089/jayao.2017.0112

Cited by 3 publications

(3 citation statements)

References 40 publications

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“…Most studies that examined age and cognitive impairments found that older age was associated with higher levels of impairment 31,36,45,46,56 . However, one article reported that younger survivors had more cognitive impairment 48 , one found that younger survivors reported worse functioning 44 , and one found no difference in cognitive function between older and younger survivors 28 .…”

Section: Agementioning

confidence: 99%

Cancer-related cognitive impairment in survivors of adolescent and young adult cancer: A scoping review

Vizer

Mikles²,

Piepmeier³

2021

Preprint

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Objectives: Cancer-related cognitive impairments (CRCI) are common after treatment and could have importantrepercussions for adolescent and young adult (AYA) survivors diagnosed between ages 15 and 39. However, mostresearch focuses on younger or older survivors so we know relatively little about CRCI among AYA cancer survivors.Here we review the research on CRCI among survivors of AYA cancer to determine prevalence, associated factors,and ongoing impact.Methods: In December 2020 we performed a systematic search in MEDLINE, Web of Science, PsycInfo, CINAHL,EMBASE, and Cochrane Central Register of Controlled Trials to identify peer-reviewed English language articlesdescribing original research with survivors of AYA cancer having at least one outcome concerning cognition. We screened 4090 articles and 35 met eligibility criteria. Guided by the PRISMA-ScR Checklist, we extractedinformation, assessed study quality, organized articles by study design, identified factors associated with CRCI, andidentified ongoing impacts of CRCI.Results: Most studies were cross-sectional surveys and interviews with some longitudinal and neurocognitiveassessment studies, one brain imaging study, and one intervention study. Weighted mean prevalence of CRCI was38.4%. Factors associated with CRCI included older age, female gender, higher dose chemotherapy, andcomorbidities. Ongoing impacts of CRCI included impaired role functioning, financial toxicity, and unmet needs.However, the intervention study had encouraging results for improving cognition and functioning.Conclusions: This review of literature on CRCI in survivors of AYA cancer shows a need for longitudinal, imaging,and intervention studies. Digital health technology is recommended for research and intervention implementation.

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Section: Agementioning

confidence: 99%

Cancer-related cognitive impairment in survivors of adolescent and young adult cancer: A scoping review

Vizer

Mikles²,

Piepmeier³

2021

Preprint

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“…While SCPs have been integrated into adult oncology standard of care, few studies have described their use in pediatrics 3,4 . SCPs are documents that report on health risks (ie, late effects) and recommendations for follow‐up care, health promotion, and well‐being 5 .…”

Section: Introductionmentioning

confidence: 99%

“…While SCPs have been integrated into adult oncology standard of care, few studies have described their use in pediatrics. 3,4 SCPs are documents that report on health risks (ie, late effects) and recommendations for follow-up care, health promotion, and well-being. 5 SCPs for AYA may be especially important given AYA are assuming more responsibility for health care, may lack adequate knowledge of their childhood cancer history and possible late effects, [6][7][8][9] report reduced health-related quality of life, 10 and are at risk for suboptimal health behaviors.…”

Section: Introductionmentioning

confidence: 99%

Acceptability and feasibility of survivorship care plans and an accompanying mobile health intervention for adolescent and young adult survivors of childhood cancer

King‐Dowling

Psihogios

Hill‐Kayser

et al. 2021

Pediatric Blood & Cancer

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Background: Self-management interventions for adolescent and young adult (AYA) survivors of childhood cancer are needed. The present study reports on the acceptability and feasibility of delivering survivorship care plans (SCPs) and an accompanying app to AYA. Procedure: AYA (n = 224) ages 15-29 who completed treatment for cancer were randomized and received a digital SCP only or an SCP plus a mobile app intended to enhance self-management. For 16 weeks, the app delivered one to two daily messages complementing information in their SCP and tailored based on age, treatment, and health goal. Data are presented on feasibility, self-reported acceptability (including satisfaction and perceived benefits) and its relationship to app engagement (for those in app group), and feedback from qualitative interviews conducted with 10 AYA. Results: The SCP and app proved feasible as evidenced by high recruitment and retention, access to technology, time analysis, moderate app engagement, and minimal technical issues. However, 12% reported never reading the SCP and 8% never used the app. The app and SCP were acceptable to AYA, and SCP acceptability ratings did not differ between groups. For those with the app, acceptability was positively related to message engagement. AYA recommended enhanced individualization and design features of the SCP and app.

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Exploring Communication About Intimacy and Sexuality: What Are the Preferences of Adolescents and Young Adults with Cancer and Their Health Care Professionals?

Albers

Mohammad

Husson

et al. 2020

Journal of Adolescent and Young Adult Oncology

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Survivorship Care Planning for Young Adults After Cancer Treatment: Understanding Care Patterns and Patient-Reported Outcomes

Abstract: YAS report high satisfaction with the online SCP, as well as a high symptom burden, although the latter were reported less than for AS.

Cited by 3 publications

References 40 publications

Cancer-related cognitive impairment in survivors of adolescent and young adult cancer: A scoping review

Cancer-related cognitive impairment in survivors of adolescent and young adult cancer: A scoping review

Acceptability and feasibility of survivorship care plans and an accompanying mobile health intervention for adolescent and young adult survivors of childhood cancer

Exploring Communication About Intimacy and Sexuality: What Are the Preferences of Adolescents and Young Adults with Cancer and Their Health Care Professionals?

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