Taking a Service Forward: The Adolescent and Adult Care of Major Congenital Anomalies—The Move from Adolescent to Lifelong Care

BackgroundSuffering congenital heart disease leads to physical and mental disabilities in children. Children's self‐care can result in appropriate care behaviors for limiting disease‐induced problems. Given the ability of children to care for themselves, we investigated self‐care statues in children who are suffering from congenital heart disease.MethodThis study was conducted using a mixed‐method approach and a sequential explanatory design. A cross‐sectional study was conducted to assess self‐care status in 124 CHD children who were living in Kerman, Iran. In the qualitative phase, the researchers interviewed 13 of these children and three parents using semi‐structured in‐depth and face‐to‐face approaches.ResultsThe mean of self‐care scores in these school‐age children was optimal (10/7 ± 2/6). In the qualitative phase, three main themes were extracted: captive to health issues physical and mental sufferings and wishing for peace of mind.ConclusionThe results showed that self‐care status in these children was optimal. As the main pillar of patient education, nurses can help enhance self‐care behaviors and reduce the complications and problems induced by the disease by implementing educational and support interventions for children with CHD and their families.

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Self‐care status in children with congenital heart disease: A mixed‐method study

Nematollahi

Bagherian

Sharifi

et al. 2020

Child Adoles Psych Nursing

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Taking a Service Forward: The Adolescent and Adult Care of Major Congenital Anomalies—The Move from Adolescent to Lifelong Care

Cited by 1 publication

References 22 publications

Self‐care status in children with congenital heart disease: A mixed‐method study

Self‐care status in children with congenital heart disease: A mixed‐method study

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